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flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 7/17/2009 11:01 AM (GMT -7)   
I'm so frustrated..need to vent.
Does anyone of you fellow Chronies have any experience with Disability....here's my story:
I filed right after my first re-section. My sister who is a nurse in oncology suggested I better start making my paper trail...so I did. I think she knew better than I what this terrible disease will eventually do. She gives infusions to Chronies all day long. The part of my intestines they took out....well I don't absorb to much anymore. With no values..I go to the bathroom 4-6 times a day and on bad...non stop cramping.

2 years ago I was denied. At that point I went from working full-time down to part-time and a year ago...only able to really do 15 hours a week...with occasionally 20 during holidays...if I pushed it .Of course this ment....sleep rest and don't do anything just so I could get through 6 hours of work.. Social life...what social life? The type of job I do is physical and I'm on my feet the whole time. My fatigue just continues to get worse. Some days I know I should even drive because of being dizzy, feeling nausea, and my memory. However, the last people I worked for had a real heart for me. They always scheduled another person with me so I was able to use the bathroom at any time. As of last spring I was denied diability a second time. I cried. It's so frustrating. I've always been on top of my game and in authority at my job. Now, instead of the leader....I'm the one who calls in sick. I get left behind....not able to socialize or go on scheduled trips etc. Pride is hard to swallow.
All I want is my career and health back. I don't want to be at home crapping all day long! Feeling fatigue and depression...and Jthe JOINT PAIN.( which now they want to test me for RA in 3 months)
Anyway, had another appt via phone with lawyer today and now they want me to appear in court. They want me to call all my Docotor and tell them I'm applying for Disability and get them to approve. They told me it looks bad that I haven't lost any weight in the past year. Even though I'm going to the bathroom 4-6 times a day. I said the phenomenon is interesting to ME too! Would help if I could MOVE like I used to!!!
Anyway, could use some words of experience in this matter. Some support. Some days I just want to crawl in a hole and not come out. It's difficult to explain to people / lawyers/ public about my butt habits alllll the time.....
Thanks
Flowery
 41 yr old woman with 12 surgerys under my belt. Diagnosed in 2005 CD. PTSD 1999. Gullbladder taken 2000, Hysterectomy 2005, Back surgery 1998 with herniation L-4, L-5, S-1. Two-Re-sections on small intestine, total of 18 inches taken out 2006. Stomach Herniation from re-section 2007, Been getting kidney stones too! The good news...finding this website.
                Meds: Imuran 200mg daily, asacol, Bentyl, Coelestid, occasional flagyl and cipro, high blood pressure meds, paxil 25 mg, 4/20meq's potassium, synthroid...& try to get alot of laughter in.
                         


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 7/17/2009 11:15 AM (GMT -7)   
Do a search..every week there is a long thread about this. You will find tons of info :)
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 7/17/2009 4:56 PM (GMT -7)   
ok this may sound mean, but its true. when your filling out the forms for you disability, you must spell the names of the disease's and conditions correctly.. if some paper pusher is looking at your paper work and looks up "chrons" in the manual, they wont find it and they aren't going to look very hard to find it. when you say 'stomach herniation" , do you mean abdominal hernia along the incision? they wont find stomach herniation in the book either. "same for "gullbladder" etc.. you have to be precise and lead these people by the nose to what you want. maybe you would have a better case if you based your claim on the back problems? i doubt your going to succeed with only 2 crohn's surgeries and so little bowel removed. the reason you not loosing weight is that your absorbing more than you think. the loss of that small amount of intestine , your body really would not even notice. i wish you good luck, and dont let the lawyers suck you dry.
randynoguts 



     http://www.geocities.com/randynogutsweb/


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 7/17/2009 6:07 PM (GMT -7)   
randynoguts
yeah, it did sound mean. i guess I did spell crohn's wrong and I'm not specific with my herniation placement. I am not a lawyer nor am I a doctor. That's the problem. I'm just trying to cope with this awful disease.....trying to get some helpful advice.
Flowery
 41 yr old woman with 12 surgerys under my belt. Diagnosed in 2005 CD. PTSD 1999. Gullbladder taken 2000, Hysterectomy 2005, Back surgery 1998 with herniation L-4, L-5, S-1. Two-Re-sections on small intestine, total of 18 inches taken out 2006. Stomach Herniation from re-section 2007, Been getting kidney stones too! The good news...finding this website.
                Meds: Imuran 200mg daily, asacol, Bentyl, Coelestid, occasional flagyl and cipro, high blood pressure meds, paxil 25 mg, 4/20meq's potassium, synthroid...& try to get alot of laughter in.
                         


Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 7/17/2009 7:25 PM (GMT -7)   
flowery
Please don't feel alone. I too have applyed for disability after my GI told me I could no longer work. The doc is actually the one that filled out the papers. I have been rufused 3 different times.It's been 2 years I haven't work, now really feeling it finacaly. So the third time, the gov wanted me to see one of their doctors. No problem. Except the visit took about 15 minutes. He touched my stomach, said my crohn's is under control. My thought: I was going to the hospital for 10 years atleast 3 times a year with flar ups but they could never figure it out untill 6 years ago.So how can he look at me and tell me my crohn's is under control?!?!?! He said remicade was doing me good. My thoughts:Why then have I got antibodies from the remicade, now suffer from horrifing arthritis pain. Unable to move,walk,sleep, eat, open things. Hardly able to make it to the bathroom, so much pain.So how is remicade helping? when I have an ER visit once or twice a month. He stated I was able to do gain full work on a regural basis. My thoughts: Most days I can't get out of bed the pain is so bad and crippling.
I'm at a lost, and frustrated because I need the sad $500 they give for disability. On top ,the money I spend of meds a month!!
Where do you live?
Montreal, Canada here.
 
 
24 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Hoping to get my life back with Humira.


prof
Veteran Member


Date Joined Feb 2003
Total Posts : 1195
   Posted 7/17/2009 8:32 PM (GMT -7)   
hI:
I don't post much any more... just read.. old memeber but when I see disability stuff I chime in!  I GOT IT!  But...  you need an attorney who specializes in disability and a GI who is willing to say...you are UNABLE to work!  It took me over a year.. 2 denials but I did get it!  I can help.. let me know what you need!
prof


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 7/18/2009 12:02 AM (GMT -7)   
flowery, im sorry, but im just saying you have to watch out for yourself. ill be the first to admit im a lousy speller and gramatically incorrect. but experiance has proven that these things matter. any lawyer or dr familiar with these forms and applications should tell you this, and that you need to be very specific about your problems. for instance when someone says they go to the bathroom alot, they want it spelled out. as in i wake up and go, i get to work and i have to go, 1 hour into work and i have to go, in the middle of this work procedure i have to go etc... they want to know exactly when and where your pain is, dont just say 'my belly hurts. you say - i have unrelenting 10 scale pain about 2 inches to the left of my bellybutton- or for your back, - i have extreme sharp pain in my lower back whenever i .... stoop, bend, lift- i require pain medication every x number of hours which makes it dangerous for me to drive, work on machinery, or use dangerous tools.= again im sorry it sounded mean, it was not meant that way. sometimes im just a little blunt :o)
randynoguts 



     http://www.geocities.com/randynogutsweb/


Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 7/18/2009 9:58 AM (GMT -7)   
where I live, we have common law (boyfriend/girlfriend living together) and if your common law partner has a good job, or makes more then the gov wants. I would have to pay for a lawyer. Which I clearly can't afford. Any other options?
24 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Hoping to get my life back with Humira.


CP64
Regular Member


Date Joined May 2007
Total Posts : 69
   Posted 7/19/2009 6:38 AM (GMT -7)   
I live in massachusetts and was denied the first time on my own--second time hired a disability lawyer and contacted my state representative and was awarded the disability. It took me a little over a year before everything was done. The first time I was denied because i was not mentally disabled--they stated I was physically disabled but that I was not mentally disabled so they said no. When I contacted my state rep he was appauled. I really think I got it because of him!! Don't give up-you will get it and when you do they will go back retroactive to the first date you applied. My husband and I were able to put a deposit on our first home with my retroactive check!!

Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 7/19/2009 9:23 AM (GMT -7)   
Congrats on the new house!! I'm so happy to hear there is still some hope out there. Thank you.

24 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Hoping to get my life back with Humira.


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 7/19/2009 10:27 AM (GMT -7)   

RA & CD, and others

Thanks for your reply. I live in Minnesota.

I'am starting  to realize I need to be more specific about my disease... become more informed.  To be honest, I didn't even look up anything on it because of pure fear and denial. Been sick off and on my whole life. Didn't want to deal with one more thing.  I've always been the type of person who deals with changes slowly. It was just easier for me to believe (aside from taking lots of meds) that it wasn't going to affect me like the others. Well that's changed.

My lawyer is a qualified disability lawyer. I've seen "their" doctor's and like you said RA&CD my appointment was about 15 minutes! I think if you can carry any kind of conversation with the Dr. he's like your fine. They don't realize that you haven't even talked to another human being outside of your home for weeks that maybe it's just nice to SEE someone! but, seriously I'd love to go back to school to learn something I can use more of my brain in...I may have to. I don't know. My career now has been impossible to do.

I haven't been diagnosed with RA yet...My Dr. wants to see if my flare continues (joint pain) gets better or worse over the next few months. He gave me some non-narcotic pain meds.  I agreed to wait.  I don't want another diagnosis. It took me a year to believe the crohns one. My rhyme had me all set up for remicade and my GI dr. said no...not yet. Meanwhile, I've been in too much pain to work, do anystairs, or even sleep in the same position for a lone period of time.My thumb joints catch and swell and I can't move them.  My feet and ankles swell and my back is in alot of pain. crippling me at times.

I knew that this was going to be a touchy subject. I appreciate the support and experience from you all.


Flowery
 41 yr old woman with 12 surgerys under my belt. Diagnosed in 2005 CD. PTSD 1999. Gullbladder taken 2000, Hysterectomy 2005, Back surgery 1998 with herniation L-4, L-5, S-1. Two-Re-sections on small intestine, total of 18 inches taken out 2006. Stomach Herniation from re-section 2007, Been getting kidney stones too! The good news...finding this website.
                Meds: Imuran 200mg daily, asacol, Bentyl, Coelestid, occasional flagyl and cipro, high blood pressure meds, paxil 25 mg, 4/20meq's potassium, synthroid...& try to get alot of laughter in.
                         


yankeespg23
Regular Member


Date Joined Dec 2007
Total Posts : 63
   Posted 7/19/2009 2:06 PM (GMT -7)   

Hello Flowery.

Sorry about what your going through, your certainly not alone, especially here. Did you appeal your denial?

I was denied about 2 months after I applied. Went to see "their" gov doctor which was complete BS. Touched my stomach, asked me a few questions and that was that, denied, lol.

I appealed and had to wait 19 months to get my hearing. I had all my documentation with me. Colonoscopy pictures, upper G.I  series report, MRI Report etc. Most important I had the backing of my G.I Doc. He gave me a note stating that I was unable to work + was disabled to to my Crohn's. I also brought along my wife, and mom as witneses to testify about my condition. The hearing lasted about 30 min. The judge, off the record, told me that I have proven my case and that he was appoving my claim.

I did not use a lawyer. I received close to 2 years back pay equaling $19,000. I'm om SSD not SSI, so it does not matter if my wife works and how much she makes, does not affect my check. I get $1,039 per month.

Don't give up. Make sure your as organized as you can be with all your medical records. Having your doctors support is a must. Good luck to you.


33 yr old Male from NYC, DX with Crohn's in oct of 1987, at age 12.
Resection in 1990 at age of 15.
Currently on Humira pen shots, 40mg weekly. Cipro 2x a day.
Multi vitamin daily
Anemic again, started iron IV infusions.


RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 7/20/2009 7:26 AM (GMT -7)   
It is my understanding that you cannot get disability unless you have not worked for more than 6 month. So long as you work you are not disabled.
Red (Lee Ann)
    "No passion so effectually robs the mind of all its powers of acting and reasoning as fear." - Edmund Burke


Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 7/20/2009 11:05 AM (GMT -7)   
I think that depends where you live. This is not the case for Montreal. Even though the second time I filed I was off of work for a year and half. Still denied. It's been over 2 years I haven't been able to work.
24 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Hoping to get my life back with Humira.


yankeespg23
Regular Member


Date Joined Dec 2007
Total Posts : 63
   Posted 7/20/2009 1:14 PM (GMT -7)   
 
"It is my understanding that you cannot get disability unless you have not worked for more than 6 month. So long as you work you are not disabled."
 
I'm not sure where you live.
I'm in NY. I applied only 1 month after I was out of work for SSD.
SSI maybe different but there is no 6 month waiting period for applying to SSD.
 
33 yr old Male from NYC, DX with Crohn's in oct of 1987, at age 12.
Resection in 1990 at age of 15.
Currently on Humira pen shots, 40mg weekly. Cipro 2x a day.
Multi vitamin daily
Anemic again, started iron IV infusions.


RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 7/21/2009 6:59 AM (GMT -7)   
Question
Why is there a five-month waiting period for Social Security disability benefits?

Answer
The five month waiting period ensures that during the early months of disability, we do not pay benefits to persons who do not have long-term disabilities. Social Security disability benefits can be paid only after you have been disabled continuously throughout a period of five full calendar months. Therefore, Social Security disability benefits will be paid beginning with the sixth full month after the date your disability began. You are not entitled to benefits for any month in the waiting period.


Taken directly from the SSD web site.
Red (Lee Ann)
    "No passion so effectually robs the mind of all its powers of acting and reasoning as fear." - Edmund Burke


Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 7/21/2009 9:12 AM (GMT -7)   
I can vouch for you not having to wait 6 months before getting paid here in Canada, Or Montreal atleast. My dad fell very ill over the past winter. And he was able to get it right away. He got paid right away. I think it end up being about 3 weeks after he fell ill at work. I really beleive each state has it's own rules. Nothing like Canada
24 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Hoping to get my life back with Humira.


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 7/21/2009 5:53 PM (GMT -7)   
flowery said...

I'am starting to realize I need to be more specific about my disease... become more informed.


This is exactly what you need to do in order to become successful with your disability benefits. I think that the more you can get yourself interested in this stuff the greater your chances for success. Use the internet, the library, and other resources to educate yourself. Pay attention to medication side affects, and read up on them, they go a VERY long way in your disability application.

I think of it these days as if it were my job, it sorta is like a part time job.

smilewinkgrin

Take Care
CD dx @ 13 (1987)
Prednisone 20mg every other day
Phenergen PRN
Zantac 150 - Twice Day
Pain Meds
Vitamins


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13481
   Posted 7/22/2009 1:09 AM (GMT -7)   

Flowery the one thing I want to ask you, has any of your drs stated that you are unable to peform any type of employmen?t If the drs do not have this in your medical records you are are going to have a difficult time proving you are disabled. My gi is the one that told me no more work, you need to take a medical retirement, I will send them any kind of report they need.

I was awarded benefits within 6 months. NoGuts is so right, you do have to spell everything out for those people. You must be specific, they do not read between the lines.

Its my understanding that if a person was employed they could not file for disability, but I may be wrong. So do not take my word for it. 

Why is your atty asking you to contact drs? He should have been getting your medical records all along, including all updated medical records. SS does request copies of your medical records, however, they are not that great in getting updated info. Many claims for disability are denied because of not having complete medical records. They base their decision on records at hand.

I do hope your hearing goes well for you . Good luck.


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 7/22/2009 9:58 AM (GMT -7)   
I was also under the impression you had to be out of work for 6 months before disability could be granted. Someone on here applied, was denied, appealed, and lost the case within minutes because they had been working. I don't think it is fair, but it is the way that it is. This is for federal disability not state disability.

Flowery,

As for your hearing, you need to treat it like a regular "work day" and not hope for a healthy day or a good day. You can tell the judge, I had to get up at 4 am, so that I could use the bathroom 10 times and allow 2 hours to make this 20 mile trip so I could stop at every gas station on the way. Feel free to take as many breaks during the hearing as you need, everytime you have to go to the bathroom. And if you end up having an accident, even more proof. Yes, it will be embarassing but they will see what the disease really does.

If you load up on immodium and xanax (like I do for anything important) and you look "fine" you will probably be denied.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13481
   Posted 7/22/2009 3:30 PM (GMT -7)   
FitzyK23 at keast here in the states your understanding is the same as mine. Also, was told you cannot be actively working and file for SSD. I am sure other countries are different like the person from Canada responded.

Congrats on last year in law school.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 7/22/2009 10:39 PM (GMT -7)   
Susie - not to hijack the thread but I have to update my profile. I graduated and have the bar in 6 days. EEK. So scary.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 7/23/2009 1:14 AM (GMT -7)   
I have been on SSD now for over a year for my Crohn's disease and thought that maybe there is some advice that I can give you. BE HONEST. This disease sucks and we are all going to have to live with it for there rest of our lives, but please do not sensationalize or dramatize your symptoms inorder to get on disability. It will not work and the judge or person that is handling your case will see right through it. The disabiliy process can be a long and diffecult road to go down. They make it that way to weed out those that are trying to take advantage of the system. about 9 of 10 people will be denied atleast 2 times before they are approved. It can take years to be approved and you should prepare for the worst but hope for the best. If at all possible, I recommend hiring a good law firm that has expertise with the disability field and they will do the majority of the dirty work for you. Here are some of the guidelines that I tell everyone that is applying.:
1: Talk to all of your doctors first before applying and make sure that they are all onboard with you applying and will support you 100%. A huge part off your being approved depends on the reports that they right and the tests that show that you are disabled.
2: Be very thorough in all of your paperwork and make copies of everything that you send and receive.
3: Print off and save any emails that you send or are sent to you
4: Document the time, date, and length of every phone call that you have with them. Keep notes about what the call was about and who you spoke with including employee numbers. If at all possible I even recommend taping the call
5. Make sure that you fill out every form with the same exact answers. Many of the forms are reduntant and they want to see if you are really telling the same story each time.(hence making copies of the forms that you send in)
6: do not be dramatic when describing you disease, but also do not hold back about your symptoms. Be honest and tell them the truth about what your day is like. Tell them the good things that you can do when you are feeling good and how the bad days stop you from being able to do them.
7: They do ask what your hobbies are and you need to tell them so that if they ever investigate you later, this will not come back on you. For example, I told them that I am a big hunter and fisherman and love to still do them when my body allows me to. I explained that now instead of hiking I have to use an Atv to get around and that I now require the use of a RV instead of tenting due to the fact that I need a bathroom(of couse I like the added comfort too) By telling them this and being approved with this information on record, I am now able to still do these hobbies when I am feeling good enough without having to constantly be looking over my shoulder in fear that I am going to get in trouble.
8.Do not get discouraged when you get denied the first few times. For some like myself you may be approved right away( i was approved the second time in a 3 month span) Many of the people that do the initial reviews of your case probably do not know much about Crohn's disease and they will find any reason to deny you. My first time that I applied I nearly was in tears when I read the denial saying that they felt like I did not even have bowel problems let alone Crohn's diease. This being after multiple operations and my being on Remicade for nearly 4 years at the time. My lawyers laughed at their response and said that was so typical and that they were trying to intimidate me into stopping the process and to make sure that I was not a hypocondriac.
Good luck and I offer any help or advice that I can to those applying

dcham1
New Member


Date Joined Jul 2009
Total Posts : 11
   Posted 7/26/2009 11:42 AM (GMT -7)   
I posted a similar reply in another topic but I want to tell you my fight with SSA. Applied in 2004, been denied 3 times. The third time, I got a lawyer, they were working on my case, then in May of 2009 they said that they no longer could take my case. While waiting for SSDI, my lawyers send the proper paper work up to the SSA office for a "reconsideration" and they denied it, so then my lawyers filed for a hearing and the SSA office in Statesboro, GA "sat" on my hearing paperwork for 6 months, then my lawyer sent a letter telling the SSA office saying that they were being reported to the managing office in Atlanta for sitting on my paperwork for 6 months. Plus the 3rd time that I was denied, they did not even mail me out my denial letter. My lawyers had to call them to get a copy of it, then the denial letter had NO date on it (this was one year later). I got a lawyer 1 week ago to take my case, and I dont know if they will have time to prepare for my hearing that is in 2 weeks. So I expect to go to this hearing by myself. I have contacted Georgia Senators and Congressman and they have been no help. One of the senators aides told me that in order to win my case, I would have to get a local (Savannah, GA) lawyer that knows the judge.

I have no health insurance and no job. I am living with a "friend" of a friend on a temporary basis. Because I have no health insurance, I cant afford medical treatment and medicines. My mom and dad recently paid for a office visit for me. I have the following issues going on: pyoderma gangrenosum on my right lower leg that is active, a swollen left knee (for which I cant bend it and walk with a "limp"), swollen right ankle, constant pain from the crohn's, severe diarrhea. I have to take the following over-the- counter meds to combat some of the above issues: TYLENOL® Arthritis Pain tablets for the constant pain that I am in, Cranberry tablets for the havoc that it is doing to my urinary tract, Protonix 40mg (samples that I get from a doctor), Zantac to take as a "chaser" for the Protonix. With having a damaged rectal muscle, I have to have a supply of Poise pads to combat the "involuntary" leakage that occurs, I have a supply of Triple antiboitic ointment and bandages to treat the pyoderma gangrenosum patches on my leg, amongst other issues. When I went to the doctor, he gave me the $4.00 per month prescription for depression and recommended that (and put it in my medical records) I have a MRI done on my left knee and right ankle. I cant walk too far, I don't sleep at night and i am in pain.

I got a letter from my last employer stating about how I had a hard time working and "lived" a lot of my time in the bathroom. He said that If her could of put a phone inside the bathroom to do my job, he would of put one there. He also stated that If he knew that I had this disease before he hired me, he may of not hired me. I don't know what to expect when I go to this hearing (especially if I have to go by myself). I have little faith in our system. I expect to be denied at this hearing and will probably have to do to a appeals court to fight it. Does anyone have any advice? Thank you in advance.
Contact your senators and congressmen to support ANY IBD legislation. We need all the help we can get to combat this disease.


mikemedic130
Regular Member


Date Joined Mar 2005
Total Posts : 33
   Posted 7/28/2009 8:11 PM (GMT -7)   
Just one quick thought, I took colestid and after a year it made my cramps and diarrhea worse, so my doc stopped it and things improved. Best wishes and prayers
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