New to Crohn's treatment... have only been on Entocort since early March and it isn't working. My GI will be taking me off of it shortly and I'm having another CT scan on July 27th. Background:I have a thickening of the intestine in the ileum, but they can't get to it b/c of where it is, so we don't yet know what it is exactly. It may be scar tissue (thanks to eberyone who answered my inquiry!) Anyway, without getting into a major rant, my symptoms aren't too bad right now I guess, by the standards i have been reading here, I have improved quite a bit. I lost 40+ lbs and couldn't eat at all for 6 weeks at the 1st flare up between feb and March, when I had an obstruction. After the Entocort I could eat a low fiber diet, but I keep getting partial obstructions where I am constipated for a few days, and then I get fever, intestinal spasms, nausea and diarhea for days or weeks after. I'm always in pain and I'm losing my hair in clumps and I'm exhausted. MY ESR was good at 6 in May and I wasn't too bad on the nutrition side, just low on potassium then too.
I took some advice from some of you here and got a new family doctor, so when I got constipated for 8 days again, i went to her before i got to the point of emergency room. i already had major pain and fever though. She gave me Cipro and Flagyl. I've never had this before for Crohn's. It took 2 days for the drugs to clear the constipation, but now I have major pain, and I feel horrible, I have MAJOR diarrhea. I don;t know if this is just par for the course b/c of the anti-biotics. Did any of you have bad side-effects from these drugs? My dr. said they will bring down inflammation so allow food to pass the obstruction. They were supposed to help, which I suppose they did, since I am not C anymore... but WOW I feel awful...
anyone have any advice on these drugs? She said I should they are sometimes used for Crohn's flare ups... I guess I should get used ot them? Not sure why my GI never prescribed them?
Any info would be appreciated
Diagnosed Crohn's March 2009
Misdiagnosed Celiac lifetime
discotomy and decompression L3/L4 & L5/S1 2006
taking Entocort SR 9mg/day
Post Edited (Lili_Enigma) : 7/17/2009 10:09:14 PM (GMT-6)