Health in General

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angelang40
Regular Member


Date Joined Sep 2007
Total Posts : 160
   Posted 7/18/2009 8:46 AM (GMT -7)   
hi all hope everyone is well!as for myself not been doing to good with one thing and another seem to be dealling with the crohns only problem just lately is with  being on the methotrexate!as you are aware for all the people on methotrexate it lowers your immune system only now am i beginning to realise just how much!since may this year ive had 2 colds and 1 bout of flu and ive had this chest infection since the 7/7 now on my second course of antibiotics i just hope i can shake this off before the 28/7 because thats when im due my diagnostic laparoscopy for menstrual yes as well as the crohns and thyroid im experiencing menstrual problems thats another issue!
 
Also been put back on anti depressents because my health has been really getting me down just lately!
My meds are
50mg tramadol (PAIN)
50mg thyroxine
coedine phosphate(DIAH
domperidome (NAUSEA)
methotrexate
folic acid
ferrous sulphate
fluoxetene (anti depressent)
 
on top of that i take multivitamins i dont take any food supplements or immune system meds perhaps i should i just cant comprehend why i seem to be ill so much!are there any other supplements you think i should take that you think may help rather confused right now!
 

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 7/18/2009 1:46 PM (GMT -7)   
Vitamin D is vital for immune health. It has been suggested that the "seasonal flu" that appears every winter is due to generally low vitamin D levels in people every winter. Crohn's interferes with vitamin absorption generally and vitamin D which is absorbed in the small intestine is particularly hard hit. To raise your vitamin D stores you need to take 2000 IU daily, but you may want to take more for a short time to boost your stores. I would recommend a product by Biotics Research which is called Bio D forte (see: Biotics Research

It seems odd that you are on folic acid, but not B12. Generally B12 is more likely to be a problem in Crohn's. Is this your doctor's suggestion or did you add folic acid yourself? Has the doctor done blood tests for vitamin/mineral levels? I was going to assume that your doctor had tested for iron, but I began to wonder if that were so? In any event, many people find ferrous sulphate to be very hard on their gut. It is much better to get a chelated form like ferrous citrate because it is easier to absorb and not so hard on your gut.

Finally, you don't mention taking any probiotics. They are one of the more useful things you can do for your gut, if you get the right ones. The most effective ones by the results of actual testing on people with intestinal problems are: Culturelle, Align and VSL#3. The first two are in many drug stores - don't know about VSL#3 though.

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 7/18/2009 6:16 PM (GMT -7)   
I so understand what you are saying

In 2006 I got precancerous cells on my cervix.
Then in spring 2007 I was DX with endometriosis
In summer 2007 I got health anxiety.
fall 2007 started having tummy issues. was DX with UC in oct 2008 then with CD and now back to UC (I think my docs cant decide)
I have terrible joint pains, my sores don't heal well or at all.

And to top it all of now my liver is acting up and my doc thinks I have autoimmune hepatitis.

So some people cant catch a break ;)

My mom and dad are freaking out about the liver thing, but I just told them that somebody has to be sick and better me then someone else.

Good luck with all your stuff and just remember we will get peace in the end :)
24 year old female
Diagnosed with Crohn's disease in December 2008 Then UC in June 2009.
So now I just have UC..

Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 7/18/2009 8:56 PM (GMT -7)   
Isergodur (Ice person?) the joints, sores and liver problems all should clear up when/if they get your Crohn's (UC?) symptoms under control. Are you taking any supplements/vitamins/probiotics on your own or your doctor's recommendation?

angelang40
Regular Member


Date Joined Sep 2007
Total Posts : 160
   Posted 7/19/2009 3:32 AM (GMT -7)   
hi keeper many thanks for your advice the hospitals in the uk are not really all that competent when it comes to advice im afraid i have to find things out for myself online!whenever i do have an appointment for my consultant i never actually get to see him if it was not for this website i would be totally clueless  like many others in the meantime im going to change my meds i find the  same problem with ferrous sulphate it does tend to make you constipated!
 
Ive got nothing but praise to say about this forum keep up the good work!

angelang40
Regular Member


Date Joined Sep 2007
Total Posts : 160
   Posted 7/19/2009 3:38 AM (GMT -7)   
keeper i have never been advised by my consultant regarding vitamins priobiotics etc i do take priobiotics 1st thing in the mornngs always as regards to folic acid that was to be recommended by my consultant to take 2x weekly to cut down the side effects of the methotrexate i was on injections weekly then asked to be put onto oral at the moment i just take ferrous sulphate and vitamin c thats why i asked if a food sipplement was necessary for when i dont have much of an appetite!your advice is truly appreciated thank you.

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 7/19/2009 6:47 AM (GMT -7)   
Keeper said...
Isergodur (Ice person?) the joints, sores and liver problems all should clear up when/if they get your Crohn's (UC?) symptoms under control. Are you taking any supplements/vitamins/probiotics on your own or your doctor's recommendation?


No I am not taking anything extra at the moment, my doc said I could not take anything except the drugs I need due to my liver.
So on Wednesday I get the results from my liver biopsy.

Is there anything you recommend that I should be taking?
24 year old female
Diagnosed with Crohn's disease in December 2008 Then UC in June 2009.
So now I just have UC..

Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 7/19/2009 1:51 PM (GMT -7)   
Isergodur - I would think that a probiotic would be really useful. I don't know what is available where you are - I usually suggest Culturelle or Align or VSL#3 - but they are mostly available in the US and UK. I can't see a problem using probiotics while taking liver treatment, but you should ask your doctor. It really can help your gut to quiet down.

My second impulse would be vitamin D, but that really is a possible conflict with liver treatment. Maybe wait until you are off your liver regime.

Finally, due to the frequency of problems with B12, a sublingual (under the tongue) B12 supplement would be smart. A prolonged deficiency of B12 will cause pernicious anemia. There is no cure for that and it would require B12 injections for the rest of your life. Again, ask your doctor.

Once you are off the liver treatment, you really should be taking a multivitamin because Crohn's commonly causes deficiencies due to diarrhea. In addition, extra calcium and magnesium (to avoid bone problems due to steroids like prednisone), extra (beyond what is in the multivitamin): vitamin E (helps reduce systemic inflammation and Crohn's-related issues like skin, eye, stomach - reflux, throat and sinus problems), vitamin C - in a neutralized form like calcium ascorbate (similar to vitamin E's action), vitamin D (commonly deficient and insufficiently fortified in foods) and possibly vitamin K (may need a doctor's prescription - deficiency is associated with kidney stones and poor absorption of calcium). Iron is another common deficiency in Crohn's due to absorption problems - your doctor should be checking your iron levels by blood tests.

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 7/19/2009 4:47 PM (GMT -7)   
thanks Keeper :)

My doc is always checking if I need any supplements and at the moment I am really good.

But I am going to meet him on Wednesday and I will ask him about all this stuff and what I can take

Thanks :)
24 year old female
Diagnosed with Crohn's disease in December 2008 Then UC in June 2009.
So now I just have UC..

Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~

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