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Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 7/18/2009 7:28 PM (GMT -7)   
Hi, I thought I'd ask you since you had much experience with Crohn's. I read a post where it said you went 20 years remission then end up having an obstruction. I was wondering did you have any symptoms at all during that time? was there any sign that an emergency was on coming?

I don't know if I have Crohn's or not, I go to the bathroom just fine, but my entire gut area will feel tender or maybe its a bloated feeling and hear things moving through my abdomen below my belly button. It has gone away for a short time and come back again. I went on a day long juice fast not long ago and the right side of my abdomen got random pains. Do any of these symptoms sound familiar to you?

I was originally diagnosed with colitis, but my symptoms seem to have changed a lot since then. I have to pay for my doctors visits and tests so I avoid them if possible.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/19/2009 7:06 AM (GMT -7)   
I can look back now and see that I did have symptoms although I didn't connect it to my Crohns.. But I was diagnosed young and was like most young people, you don't want to deal with the fact that you have a chronic incurable illness.

I have been blessed to have a milder form of Crohns. But during that time I would get stomach aches frequently, I was constipated alot too and had to use stool softners all the time. Maybe thats why I didn't think of Crohns during this time, because I always associated diarrhea with Crohns. But I just brushed those off as if it were the flu or I ate something that didn't agree with me, or even I was just constipated. Didn't really think much about the Crohns. I now realiize that some bouts that sent me to the ER occasionally over the last 10 years of my remission were at least partial obstructions that the ER misdiagnosed as gastritis. I even had my appendix removed after one ER visit. Turns out my appendix was healthy. So yes, I had warning signs during at least the last 10 years of my remission. But because I had never educated myself about Crohns, I just took the doctors word that it was just gastritis. I could have avoided alot of it too if I would have just taken the maintainence meds my doctor wanted me to. So now I am a big advocate for educating yourself about the disease and ALWAYS taking some type of maintainence medication. Hope that helps. If you have other questions don't hesitate to ask.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 7/19/2009 8:49 AM (GMT -7)   
Thanks Nanners,
Yes I really don't have constipation or diarrhea right now, but I do get a little bit of watery stuff on my TP at times. The somewhat tender to pressure gut area and the gurgling that I can feel on my right side worries me some. I was diagnosed saying I had colitis back in November, so it hasn't been a long time.

One more thing, what test did they do to finally determine you had Crohn's?

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/19/2009 9:00 AM (GMT -7)   
I was diagnosed 33 years ago. I was diagnosed thru barium enemas, small bowel follow thru's (old school:). Now days they diagnose you with a colonoscopy. If the colonoscopy is inconclusive the other recommended test is a pill cam. In this test they have you swallow a pill camera and it takes pictures of your digestive tracts as it go thru your system. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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