Just a little update on me!

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*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 7/21/2009 9:35 PM (GMT -7)   

Hey guys, had a full two days off work at the hospital on Monday and Tuesday and just wanted to touch base and see how everyone is going! I had my bowel MRI last Thursday (prep made me feel soooo sick and the next day I was running to the loo!) but other than that it went well – had my pelvis MRI on Monday, a follow up with my surgeon on Monday afternoon, and my iron infusion all day yesterday!

 

The iron infusion went well, I actually had my Mom with me which was great….. though afterwards I was freezing and the nurse said it was probably because the saline they flush through afterwards is colder than my body temp. But I was freezing and then hot and exhausted with aching limbs, no appetite and a high temp for the entire night! Anyway, I am feeling much better today, back at work, but has anyone else had a reaction like that before?

 

The appointment with the surgeon went well; he took a look at my mushroom drain and said he thinks it looks good! ‘Much less tender than last time’ – and – (I could hardly believe it) – he would like to take the mushroom drain and the seton out once I’ve had my first remi infusion! Yaaaay! I had almost given up all hope of a ‘normal bottom’! I know I will probably still have drainage etc, and it will take a long time to properly heal, but still!! Then my fabulous new Gastro walked in (they do this clinic together on Tuesdays), and my surgeon told him things were much better in the ‘bottom end’ – so all in all good news really! They hadn’t analysed my MRI’s properly yet, but were having that done yesterday afternoon, and from what my surgeon’s ‘untrained eye’ could tell, there was no more sepsis apart from the remainder behind the drain (I could see the little mushroom on the MRI pictures). He said he would call me if they found anything to be concerned about.

 

Anyway, just thought I’d give a little update, I don’t want to only come crying for help, sometimes there’s positive news too! J

 

 I hope you’re all doing well!


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 7/21/2009 10:06 PM (GMT -7)   
Great news!

As far as the iron infusion, the benadryl they give beforehand always makes me feel cold. Maybe that was it. Also, the first infusion (I had a series of 4 in a row) always made me sick by early evening. Really cold, achy, vomiting, etc. Even when they gave me anti-nausea drugs, I still always had a bad time with the first infusion. So maybe the remainder of them will be easier on you too!
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 7/21/2009 10:58 PM (GMT -7)   
Oh I hope so! I mean I’ve had worse fevers/chills/nausea before, but oh how it brought back memories of my first crohn’s days, when I was too dizzy to shower and too cold to move! It’s like you’re cold right down into your bones! I hate that feeling…. I was scalding my skin in the shower with boiling hot water and still shivering.

I know it will be well worth it though. This will be the first time I will be living an anaemia-free life in over 4 years!!! I can’t wait!! How long did it take for you to feel the effects? I must admit, I feel great today considering how rotten I was last night

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/22/2009 2:13 AM (GMT -7)   
That's good news, Phoebe :-)
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 7/22/2009 4:05 AM (GMT -7)   
Great news!
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 7/22/2009 4:08 AM (GMT -7)   
That is wonderful news! I am so happy for you! I'm praying for swift and complete healing for you.
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


cbcass
Regular Member


Date Joined Dec 2006
Total Posts : 38
   Posted 7/22/2009 1:17 PM (GMT -7)   
Wonderful news, be well.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/22/2009 1:49 PM (GMT -7)   
WooHoo, its nice to hear some good news. When I had my infusion it took me about 3 weeks to feel the full effects. Others have said they felt it even sooner.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 7/22/2009 2:45 PM (GMT -7)   
Yaay for happy news! I'm feeling good today! It's 7:30 in the A.M and I am already at work. The lady at the clinic said most people she's heard of start feeling the effects and find it easier to get out of bed a couple of days after their infusion, but some up to a couple of weeks. Whether it takes days or weeks I am just so happy it's finally happened!

And the prospect of having a healthy bottom, well I don't even dare to hope for it!

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 7/22/2009 3:06 PM (GMT -7)   
Being able to sit for long hours at a time if I need to with no pain is an incredible blessing! People who have never experienced this simply can't understand how incapacitating it can be. Here's to your better bottom!!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 7/22/2009 6:05 PM (GMT -7)   
Hooray. Glad to hear the good news.

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 7/22/2009 6:55 PM (GMT -7)   
Oh fallcolours, its so funny you say that – only on Sunday I was sitting in the food area at Ikea, looking at all these people (fat, skinny, children, grandmothers), and watching them sitting so comfortably, just sitting there, and sitting down with a great THUD, PLOP, skooching around on their chairs like it was nothing, and twisting this way and that. I don’t think I’ll ever look at sitting/getting up and down the same way again! “All these people with healthy bottoms, they’re not sore at all” I said to my boyfriend. “They wouldn’t even think of it”

Funny the things you come to notice and appreciate!

Since November last year I have been unable to sit properly, so I am looking forward to the day when I can!
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