Humira and Anaphylactic Shock

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jmiller056
Regular Member


Date Joined Feb 2009
Total Posts : 57
   Posted 7/22/2009 4:47 PM (GMT -7)   
So, I finally got approval for Humira, but now I'm a little concerned. I live 11 miles away from a hospital, what can I do if I go into anaphylactic shock at home? I was also curious about some other things. I have a fistula that drains and I'm not on any antibiotics for it, does this count as an infection that I should tell them about ahead of time? Also, are there any blood tests that I'm supposed to have done periodically to make sure the drug isn't giving me cancer etc?
23 y/o Male; Dx Crohn's Disease in 2001 at age 14.
Lost 3 inches of colon and 7 inches of ileum in 2004 bowel resection.
CD returns in October 2008, Starting the Maker's Diet June 17, 2009
Current meds: Pentasa: 3000 mg; Fibercon: 2 pills 3x; Imodium: 2 pills 3x
Been on: Prednisone, Flagyl, Cipro, Imuran, Entocort, Remicade
Kyrie eleison!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/22/2009 5:01 PM (GMT -7)   
We do have people on the forum who have experienced this type of allergic reaction to Humira, but their reaction developed relatively slowly (over hours), giving them time to get to hospital.

It is possible, likely even, that you will have your first injections under medical supervision, as you (I presume) need to be taught how to give yourself injections, so don't despair or worry too much: you may not be alone if something goes wrong. If you really are worried, I suggest asking a friend, relative or neighbour to sit with you while you inject, or actually asking if you can have the first injections under medical supervision, just to put your mind at ease.

Your doctors should know about your fistula already, surely?

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's


jmiller056
Regular Member


Date Joined Feb 2009
Total Posts : 57
   Posted 7/22/2009 5:59 PM (GMT -7)   
Thanks for the reply, I was thinking that the reaction would take minutes or something. The fistula I have has been with me for years, and it is kind of strange. It likes to drain and heal up again. My pediatric GI knew about it and gave me antibiotics for it once and a while but it always started up again. I tried to tell my new doctor about it twice since CD came back and he just kind of let it roll off his shoulder. It is my only gripe with him, all the other doctors I had couldn't wait to take a look at anything.
23 y/o Male; Dx Crohn's Disease in 2001 at age 14.
Lost 3 inches of colon and 7 inches of ileum in 2004 bowel resection.
CD returns in October 2008, Starting the Maker's Diet June 17, 2009
Current meds: Pentasa: 3000 mg; Fibercon: 2 pills 3x; Imodium: 2 pills 3x
Been on: Prednisone, Flagyl, Cipro, Imuran, Entocort, Remicade
Kyrie eleison!


jsk218
Regular Member


Date Joined Jan 2009
Total Posts : 29
   Posted 7/23/2009 10:59 AM (GMT -7)   
I did my first 4 injections at the doctor's office. The nurse wanted me to stay for an hour to see if anything "off" happened. I had my BF with me, so we just left - and she told him to "keep an eye on me." When you go for your injections, maybe just plan to bring a book with you and hang out for a few hours? I gather that if you're going to have a bad allergic reaction, that it's sort of immediate. You could ask your doctor in advance if you're really concerned. Good luck!
Diagnosed with Crohn’s Disease in Jan 2007, though sick since mid 90’s. Currently on Humira and Protonix. Have had success with Entocort and Cipro; negative experience with Methotrexate.


elexis
Regular Member


Date Joined Feb 2003
Total Posts : 101
   Posted 7/23/2009 3:58 PM (GMT -7)   
When I had my first shots I went to the office to get it done just in case I had a reaction...If it worries u , call the office to see if they will administer the shots for u the first time...

Short story, I'm a maniac when it comes to new meds I have to take and I have had a Anaphylactic reaction to Remicade in the past, so Now whenever I take new meds I keep the liquid benadryl right next to me! HEHehEH....

I wish u well!
Dx w/ Crohn's Disease May 2000
Asacol 400MG
Small Bowel Resection November 2008

Dx w/ Hypothyroid 2001
Medication: Levoxyl 88MCG


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 7/23/2009 5:25 PM (GMT -7)   
Good advice Elexis! Benedryl is frequently used to stop drug reactions. I developed anaphylaxis to Remicade (twice) and the nurse gave 25 mgs of benadryl in my IV. It stopped the reaction cold in 30 seconds - it was totally gone. I then got one humira shot (my doctor was being cautious because of my remicade reaction) and 4 days later I developed hives. They gave me Benadryl and a steriod pack. Just make sure you tell your doctor of any drug reactions you have ever had. Now I keep benedryl liquid or film strips on hand. They both work very fast.

I am in the 2% that can take Humira. It is more than likely that you will take it with no problem and it could help you greatly!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

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