A bit about me

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pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 7/22/2009 8:07 PM (GMT -7)   
Just a little introduction. I am a 23 year old male, diagnosed with Crohn's 2 years ago. I just got out of the hospital on Monday for a small obstruction, but at least it wasn't as bad as the obstruction I had in January *shudders*. I am back to feeling not so well, but it's likely my rushing back to a "regular" diet. I am to begin Remicade this upcoming Monday, which I am hoping will be the answer to my prayers. I am sure my story is not much different than many of yours; if it's not one thing, it's another. Either headaches, or back pain, or gas/bloating, or abdominal cramps. This disease is just so unforgiving. I may be feeling well for a week, then bam, back to feeling crappy for another week or two. It is hard trying to cope with CD while trying to be as normal as possible. It's even harder when I think about how much easier others have it; being able to eat what they want, when they want, and not think twice about it. More often than I care to admit, I end up crying and asking why me. I would gladly give every dollar I will ever make to be rid of this terrible disease.

I didn't expect this post to be so lengthy, but I guess I had some stuff to get off my chest, so to speak. I will try and be more active around here (I've been registered for several months). I have seen many tales of grief and many of encouragement. This is a wonderful forum, community, and resource. I look forward to getting to know everyone :-)
Diagnosed with CD July 2007.
Hospitalized:
July 2007
August 2007
December 2008
January 2009
July 2009


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 7/22/2009 9:04 PM (GMT -7)   

Hi Pimfram, welcome to the board!

 

I am also 23 and was diagnosed when I was 18 – I was in my first year of uni and had just moved 6 hours north (there are no universities close to my home), was missing my parents, sick, poor and completely lost. This place was a haven for me. I managed to get through my degree and was even offered honours! It was a tough journey but I am stronger and wiser for it.

 

This disease takes a lot of figuring out but its great news you’re onto some strong meds. I have had to wait 4 years for remicade, because I was with a negligent gastro who neglected my condition, resulting in abscesses, fistulas, multiple surgeries and hospital stays. But I am confident you will have a better journey if you are onto some great healthcare professionals. I wish I had found better specialists earlier.

 

I know how frustrating it is to feel as if your life is being taken away – or your youth, at least. Even people your age who try to understand will not really get it (no fault of their own). And I, like you, quietly grumble about other people’s grumblings who are my age and live a healthy existence.

 

Anyway enough rambling, welcome to the boards!

 

PS86


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/23/2009 6:26 AM (GMT -7)   
Welcome Pimfram to Healingwell. Please vent away, you are among those who really understand. I myself am in remission but from years of having this disease I agree we get sick and tired of always being sick and tired. You definetly are not alone.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

elexis
Regular Member


Date Joined Feb 2003
Total Posts : 101
   Posted 7/23/2009 4:12 PM (GMT -7)   
Welcome Pimfram, I to was diagnosed at a young age... when I should be enjoying my life, I was gripping this awful disease. In the beginning I was resentful of others and cried allot..."Why Me" was my motto! But as I've gotten older I'm come to KINDA except what I have, Not what has me! The adversity we go through makes us a stronger person everyday! Now don't catch me on a bad day, cause I'll deny I ever said anything positive! HEHehEHHe....

I wish you the best!
Dx w/ Crohn's Disease May 2000
Asacol 400MG
Small Bowel Resection November 2008

Dx w/ Hypothyroid 2001
Medication: Levoxyl 88MCG


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 7/23/2009 4:47 PM (GMT -7)   
I always try to think "Well at least I'm pretty and 6 foot tall and thin!" - kinda makes me feel better. A lot of 'healthy' people are overweight and unhealthy though just in a different way.

I know its completely superficial but i grab onto what I can when I'm really down and I can't sit properly because of my abscess, and i feel 'ugly' because i am so sick all the time.
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