Remicade and large weight gain

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Regular Member

Date Joined Nov 2005
Total Posts : 77
   Posted 7/22/2009 10:23 PM (GMT -6)   
   My son is 11 and was diagnosed when he was 7.  One week after diagnosis we started him on Remicade.  He responded pretty much immediately and has been doing great.  He is able to go every 12 weeks.  He is living a normal pain free life an 11 year old should.
   However, he has been packing on the pounds.  When he started out almost 4 years ago, he was 63 lbs and about 4 ft 2.  As of his last treatment he is weighing in at 127 lbs and is 5 ft 2.  The past 2 years it seems like he gains about 4-5 lbs in between treatments.  I am sick of people telling me his body is absorbing the nutrients finally. HIs GI tells me it is not the remicade, however I gave him the copy of the report saying otherwise I got from here. 
  I am so thankful he is doing so well and that he is not weighing in at 63lbs anymore.  I just want to know if there are other people out there going through the same with the Remicade.

Veteran Member

Date Joined Jul 2008
Total Posts : 674
   Posted 7/22/2009 10:37 PM (GMT -6)   
Perhaps because he is actually eating now?  I know when Im flaring my weight goes way down...but once prednisone or w.e drug I take to control it (still havent found a good one) kicks in, Im packing the pounds right back on.  Seriously like 3-5 pounds every 2 weeks.  If Remicade is the first drug he has found to put him into remission (?) the weight gain is probably completely normal.  I know when Im not feeling to hot, I just dont care to eat really to avoid pain, but once Im feelin better I shovel in the food.  I was on Remicade for a short period of time...I had an allergic reaction, but while I was on it I did not gain any weight.
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.

Regular Member

Date Joined Jul 2008
Total Posts : 57
   Posted 7/23/2009 7:12 AM (GMT -6)   
I definitely gained weight when i was on remicade
I had been the same weight prob since college (im 30 now) & with every treatment i would put on a few pounds (im pretty small framed so those few pounds added up quick). I eventually had to buy bigger pants since i was uncomfortable.
I was definitely over eating. It was weird, I just never had that full feeling.
Good news is I am off it now for about the last 7 months (maintaining in 6MP) have lost just about all the extra weight & still feel great!
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