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Veteran Member

Date Joined Sep 2006
Total Posts : 845
   Posted 7/23/2009 1:45 AM (GMT -6)   

Post Edited (tsitodawg) : 11/15/2011 3:52:33 AM (GMT-7)

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 7/23/2009 3:13 AM (GMT -6)   
Oh, no! My heart breaks for you, reading this. What a horrible, horrible ordeal you, your sister, and your family have been through.

There are no words to say how sorry I am - especially as it sounds as if her death may have been avoidable - but please know that we care and are here to listen and support you at this very sad time.


Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 7/23/2009 6:09 AM (GMT -6)   
I'm so sorry for your loss, I'll keep you in my prayers.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 7/23/2009 6:11 AM (GMT -6)   

I am so sorry that you lost your sister!  I am praying that comfort and grace will be given to you and your family.

And thank you for reminding us that we really need to be careful around those who are sick.  I know I become complacent and need to be reminded.

Take care.

Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

Regular Member

Date Joined Jun 2008
Total Posts : 167
   Posted 7/23/2009 6:34 AM (GMT -6)   
I am so sorry for your loss!! (((HUGS))) to you and your family.
Dx with Crohn's in 1997 after 5 years of worsening symptoms.
Resection a few months after dx after 1 month on TPN and IV steroids.
Resection October 2008.
Also have severe asthma.
Fibromyalgia (allergic to Lyrica)

Tried: Pentasa, Cholestyramine, Asacol

Presently taking: now on Remicade, Imuran, probiotics, calcium, B12, nortryptiline.
For asthma I take Advair 250, singulair

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 7/23/2009 6:57 AM (GMT -6)   
I am so sorry for your loss. My prayers are with you and yours.
Take Care,
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

ski bum
Regular Member

Date Joined Jan 2007
Total Posts : 451
   Posted 7/23/2009 7:41 AM (GMT -6)   
tsitodawg, my sincere and heartfelt condolences.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08. Back on Pentasa as maintenance.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/23/2009 8:09 AM (GMT -6)   

I so sorry to hear of your sisters passing. Please know that I will keep you and your family in my prayers.

God Bless,
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Nov 2005
Total Posts : 1338
   Posted 7/23/2009 8:59 AM (GMT -6)   
I'm sorry for your loss, Tsitodawg.

Veteran Member

Date Joined Aug 2003
Total Posts : 1017
   Posted 7/23/2009 9:07 AM (GMT -6)   
I am so sorry for your loss. People laugh when I step away when someone is sick, but this is a true reminder that we need to be careful who we are around and do our best to not catch this nasty bug.

My prayers are that you and your family will find peace.
Red (Lee Ann)
    "No passion so effectually robs the mind of all its powers of acting and reasoning as fear." - Edmund Burke

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 7/23/2009 9:37 AM (GMT -6)   
You are always welcome back here. Thank you for the wake up call. I too had been taking this very lightly and thinking the media had blown it out of proportion. How tragic. I hope the rest of your family is cleared.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 

Veteran Member

Date Joined Jan 2003
Total Posts : 3166
   Posted 7/23/2009 9:43 AM (GMT -6)   
My prayers and condolences.
Take care. Lois

Rider Fan
Veteran Member

Date Joined May 2008
Total Posts : 1445
   Posted 7/23/2009 10:07 AM (GMT -6)   
So sorry for your loss. I think many times people forget that prednisone is a pretty serious immune suppressant.
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 5mg prednisone. Udo's Choice Probiotics (30 billion). Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.

Go Saskatchewan Roughriders!

Regular Member

Date Joined Jan 2009
Total Posts : 498
   Posted 7/23/2009 10:19 AM (GMT -6)   

I am really pained to hear about the loss of your sister. My heart felt condolences for you. I know it is difficult to make up this loss of life, but we have to move on and ensure that such tragedies do not happen on account of insurance cover, and lack of humanitarian approach on the part of doctors.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."

Aimee =)
Veteran Member

Date Joined Jun 2004
Total Posts : 1020
   Posted 7/23/2009 10:45 AM (GMT -6)   
I'm so sorry for your loss *hugs*

Regular Member

Date Joined Feb 2009
Total Posts : 269
   Posted 7/23/2009 11:38 AM (GMT -6)   
I am so sorry for your loss, my thoughts are with you
Diagnosed 2005.
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections, asacol

Regular Member

Date Joined May 2009
Total Posts : 201
   Posted 7/23/2009 1:09 PM (GMT -6)   
sorry for you loss, God bless
Diagnosed with CD 3 years ago.  Refused to take meds until recently started Colazal. 
 Currently on Prednisone 40mg.
I live by faith and not by sight....

Veteran Member

Date Joined Jan 2006
Total Posts : 3129
   Posted 7/23/2009 2:19 PM (GMT -6)   
Thinking of you and your family...take care of yourself.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

Veteran Member

Date Joined Mar 2006
Total Posts : 2672
   Posted 7/23/2009 3:26 PM (GMT -6)   
I am so sorry to hear about your sister, that is just truely heartbreaking. A good reminder for us all to be extra careful around anyone that seems sick. This flu seems to be able to cause more serious complications then the regular flu.

Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.

Regular Member

Date Joined Sep 2008
Total Posts : 150
   Posted 7/23/2009 4:29 PM (GMT -6)   
I know that you are probably tired of hearing this, but I am so so so sorry for the loss of your sister... It could have been prevented, I feel bad because I live in ontario, and as you know we do have health coverage for now,
I find that doctors and nurses, they just dont care anymore, like they did when I was a little girl, they just say things to shut you up!
It's really ridiculous and im sad to say, that.
My heart and thoughts are with you and your family, and again Im so sorry:(
take care of yourself, and thanks for the eye opener, im sure you werent the only one who was taking this flu lightly.....
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.

Regular Member

Date Joined Feb 2003
Total Posts : 101
   Posted 7/23/2009 6:29 PM (GMT -6)   
I'm so sorry for ur loss!
Dx w/ Crohn's Disease May 2000
Asacol 400MG
Small Bowel Resection November 2008

Dx w/ Hypothyroid 2001
Medication: Levoxyl 88MCG

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 7/23/2009 7:03 PM (GMT -6)   
      shocked shakehead shakehead
           My condolences, I am forced to deal with the public all the time & handle money. I make sure I wash my hands constantly now. I hate that I find myself cringing when someone coughs these days, but after two years of ineffectual flu vacinations I just don't even want a mild case of the normal flu. Plus, the bills from the usual bronchitis attack following a flu bug..
        I wish I could take your pain away, but this backs up what I said in the past, people are too blase' about these viruses..
     Sincerely yours,

Veteran Member

Date Joined Sep 2007
Total Posts : 565
   Posted 7/23/2009 7:33 PM (GMT -6)   
how devastating. thank you so much for sharing your story with us. i am scared of catching swine flu, i believe we have had 6 deaths in massachusetts. i am sick of people taking it so lightly, almost in a joking fashion so i remind them i could die from it. i mean, i am not changing my life and going out to public places but i am even more ocd about hand washing and hand sanitizing. with that said, my sincerest condolences to you and your family. if the hospital had taken better care of her could she have survived this? it's appalling she was practically thrown out of the hospital when she was so critically ill.

take care.
.: stephanie :.
34 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, trazodone, iron, calcium, folic acid, b12 injections at home & some other vits

currently in remission! :D

Veteran Member

Date Joined May 2009
Total Posts : 506
   Posted 7/23/2009 8:36 PM (GMT -6)   
My deepest condolences :(
Diagnosed with CD July 2007.
July 2007
August 2007
December 2008
January 2009
July 2009

Regular Member

Date Joined Oct 2008
Total Posts : 25
   Posted 7/23/2009 8:49 PM (GMT -6)   

Ver sorry about your loss. Up here Canada they cal it H1N1. My GP had it and she said it is horrible


God Bless



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