Scared...Think I Might Have Crohn's

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GreenEyez7
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/23/2009 1:07 PM (GMT -7)   
I just joined this forum, and I'm so glad to have found it.  For the past 4 months I've been suffering (off and on) from stomach cramping, nausea, feeling weak (sort of), and even a couple of episodes (once in April, once in June) of dry heaving.  The last time I had the dry heaving it was accompanied by awful stomach cramps.  It's almost as though I've had the flu off and on for the past few months.  That's how lousy I feel at times.  Some days I feel great, other days I feel lousy.  Is that the pattern of Crohn's? I For the past year my bowels have been loose (but not watery).  I've lost about 10 pounds in the past few months.  I'm a 52 year old woman.  My dad was my age when he was diagnosed with CD.  I remember him telling me about the bloody stools, stomach cramps, and weight loss.  (I don't have the bloody D like he did), but I do have the loose stools.  Anywho, he had surgery, and did pretty well after that.  Thinking back, I do remember being about 30 when I started noticing occasional problems with my stomach/bowels.  Those episodes were few and far between until I got into my 40's.  That's when I had my first bout of Iritis.  The eye specialist asked me if I ever had trouble with my bowels.  I thought that was an odd question.  Now I understand why he asked me that.  I had no idea (until recently) that eye inflammation was related to CD.  At that time my bowel 'issues' weren't bad, so I told him "no."  Anyway, I have a doctors appointment Monday, and I hope and pray everything will be okay.  It's so scary for me because I already suffer with depression and anxiety, so you can imagine how nervous I am about what may be wrong with me.  I have a feeling it's Crohn's though.  Another thing that makes me nervous is I never know when I'm going to have a flare-up.  Recently I was out with my husband enjoying the day (it was hot and a little muggy), when suddenly I felt woozy and a little queasy.  Can CD do this?  I notice when I do get the stomach cramps it's usually at night.  I'd appreciate any feedback.  I've never had surgery and I'm trying not to worry needlessly.
 
Thanks for reading this.  Sorry it was so long.

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 7/23/2009 2:26 PM (GMT -7)   
It sounds a bit like you might have Crohn's - but the doctor will have to confirm that. You might be able to control a lot of your symptoms with diet - several people here report good results from eliminating gluten or following the SCD diet or the Maker's Diet. You also should look at ways of controlling stress. Your anxiety can make the problem worse (stress is a known cause of flares in Crohn's), so you should look at stress reduction through breathing, meditation, yoga, running/exercise or whatever you can find that suits you and is available locally to you. If you take the problem to your doctor, he will almost certainly prescribe a pill and that may suit you too, but I have always preferred to avoid pills wherever possible.

Laslow
Regular Member


Date Joined Oct 2008
Total Posts : 25
   Posted 7/23/2009 6:59 PM (GMT -7)   
Amen to the stress management. I have CD and since my surgey I've tried hard to avoid stress. It seemd to calm things down.
Try not to worry about it. Get a good GI Dr and they take care of you. I have had CD since I was 14. I turned 35 yesterday and I feel great minus a Hernia. Diet, exercise and stress management is the key.

Take care and be happy!!

Jay

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/23/2009 7:52 PM (GMT -7)   
Go to a GI and you might want to think about a pill camera.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 7/23/2009 8:11 PM (GMT -7)   
Sounds like CD, in my opinion, I'm sure your doctor will say the same. Before I was diagnosed, I was having symptom similar to yours; occasional pain, loose stools, and feeling just plain crappy (no pun intended). Stress is definitely bad for Crohn's, in my experience. I will echo what Laslow said, diet, exercise and stress management are usually quite helpful in fending off symptoms.

Best of luck at the doctor's.
Diagnosed with CD July 2007.
Hospitalized:
July 2007
August 2007
December 2008
January 2009
July 2009


GreenEyez7
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/24/2009 8:34 AM (GMT -7)   
Thanks to all of you for your replies and your well wishes.  It is very much appreciated, and I feel less anxious after reading them.  Hopefully my doc will at least send me home with a prescription(s) for something I can take for the cramping and nausea.  I know she's going to send me for some tests, but I hope there's something she can prescribe for my symptoms in the meantime.  Of all the medications that are prescribed for Crohn's Disease, which ones have the fewest side effects?  Anyway, I'll let you all know how it goes.  Thanks again and God bless.

Crybaybee
Regular Member


Date Joined Oct 2008
Total Posts : 29
   Posted 7/24/2009 9:14 AM (GMT -7)   
Phenergan (promethazine) is a godsend for nausea.  You should be able to get a prescription for that right away.
 
Have you ever tried a heating pad for the pain? 
 
I'd also stay away from NSAIDs (Advil and the like) as they are a big no-no for people with bowel problems and will make your symptoms worse.
 
I have anxiety and depression too.  I let things bother me too much, so I feel your pain (literally).
 
Good luck! :-)

GreenEyez7
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/28/2009 6:59 AM (GMT -7)   

I appreciate all of your posts.  I wanted to update everyone..I had my doc appointment yesterday (Monday).  I told her all about my symptoms, family history, and everything I shared with you all on this forum.  As I expected, she sent me for bloodwork, and she referred me to a GI doctor.  Also, I'll be having my first colonoscopy soon.  They'll send me something in the mail letting me know when my appointment is.  Now THIS is what I'm really fearful of.  I've read many of your posts, and most of you say it isn't that bad..that the prep is worse.  I don't know which I'm more nervous about, the prep or the procedure itself.  Is it true the procedure takes almost an hour?  If that's the case I think I'd prefer the 'twilight sleep.'  How is it waking up afterwards?  Do the drugs leave you feeling sick or just drowsy?  If I have Crohn's, will it necessarily show up when they do the colonoscopy?  As for the prep, I dread that.  Is there something you can drink that tastes better than the traditional stuff they give you?  I've heard that tastes awful sad

Thanks in advance...and sorry for all the questions.


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 7/28/2009 7:39 AM (GMT -7)   
The standard sedation for colonoscopy puts you into a "who cares" mode and you will likely remember none of it. There should be no nausea or aftereffects -- mostly you will fart some and be hungry from fasting the day before. Most scopes take about 20 minutes. As for the prep, there are several methods -- talk to the GI about what he/she uses, and there may be some lower volume options if you note that you have trouble drinking a lot of fluid. The prep is not painful, just annoying, but then we go get these tests to learn why we have chronic D, so a little more chronic D for a few hours is worth the outcome. Don;t be put off by the horror stories -- for the vast majority of people, a scope is a minor two-day inconvenience, rating far less in discomfort than getting a tooth filled.

littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 7/28/2009 8:15 AM (GMT -7)   
I have had 2 colonoscopys in the past 4 years. Both were ok. Didnt hurt and I dont remember anything anyway, pretty much myself again the following day.

The prep tastes crappy but if you glug it down can be gone in less than a minute. Just dont try and go out once you have taken the prep cos you need to be near the loo. The worst thing for me was the fasting, I was so so hungry and every advert on the tv seemed to show food
Diagnosed 2005.
 
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections, asacol


ISF13+
Regular Member


Date Joined Jun 2009
Total Posts : 202
   Posted 7/28/2009 8:46 AM (GMT -7)   
I've had 5 colonoscopies and even the prep has improved. The actual procedure itself is no big deal. A good excuse to take a good nap. The prep is the worse, I can't disagree with that but it's gotten better over the years. This last prep had me drinking the equivalent of Bene-Fiber, lots of it. I think it's just that our bodies get weak and we feel yucky because we're on the verge of being dehydrated and our metabolites go wacko due to the constant release of bowel. I wish you luck and hope it all goes well and most of all, I hope they'll find what it is that is making you so sick so you can get treated for it.
Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum.  Currently have C-Diff.
Current Medications for the Crohns:  Humera 40mg injections every other week, Imuran 150mg, 3xday, Hyomax, Welchol 625mg, Flagyl 250mg, 3xday, Calcium, Acidophilus & Potassium
Previous Medications I've been on:  Asocal, Pentasa, Cipro, Prednisone & Entocort


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/28/2009 11:45 AM (GMT -7)   
Unfortunately a colonscopy does not cover all the areas that can be effected by crohns, hence why I suggested a pill camera, because it is much less invasive and it pretty much can cover your entire intestine.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


NOGLUTEN
Regular Member


Date Joined Jun 2009
Total Posts : 22
   Posted 7/30/2009 9:45 AM (GMT -7)   
greeneyez, you should be tested for Celiac Disease. It can cause most of your symptoms. Maybe you will get lucky, like me and only have to be on a GF diet instead of all the medications.
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