Hey, I recently stopped Humira. It was causing me severe head aches and fatigue that i couldn't handle. I had a colonscopy just before I quit using it and it showed some changes, but not enough for me to continue having headaches and fatigue. I found that humira was similar to me using immodium. It would slow down my bowel movements, but it wouldn't do much for the consistency. When I had to go I still HAD to go, if you know what I mean. Anyways since I have been off it i have started to lose a lot of my hair, about half. I did have a lot of hair before which was a good thing. I couldn't imagine starting with less hair. But as of 3 days ago i have had extreme pain in my knees, ankles and today it started in my hips. I don't know what to do about it. I can't see my doctor because he doesnt take emergency appointments and my regular doctors appointment isnt until august 10th. I'm almost ready to go to the hospital to ask them what may be going wrong. And get some pain meds while I am there.
I am currently on no meds. Im awaiting confirmation on remicade. This waiting game is killing me because i have no energy and im not even enjoying the nice weather that has been here for a week. Im scared to leave the house because my stomach is so unstable. I also have tons of canker sores in my mouth making it painful to eat. Everything is so frustrating right now. Thanks for listening to me vent. :) hope everyone is well ttyl.