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LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 7/24/2009 8:39 PM (GMT -7)   
My apologies for not posting in a while...Life has been so hectic.
Things have gradually been improving concerning Crohn's so that I can walk 30 minutes almost every day and can eat (carefully) without wanting to spend the next week in the bathroom.
I'm eating gluten/sugar/dairy free for the most part still but am much stricter about it. It really seems to help. I haven't taken my humira in two months, birth control in one month, and am down to 7.5 mg on prednisone. So, that leaves pentasa four times daily and an omeprazole every morning.
I'm still trying to get Tenncare (Tennessee's medicaid) but am on COBRA for...I'm not sure how long.

In any case, my boyfriend is wanting to play scrabble and watch a movie so I'll leave at this for now. I really miss all of you and hope everyone is doing okay. Meaning...let me know how you're doing if you have the time! :) Sending best wishes and love to you all.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/24/2009 9:07 PM (GMT -7)   
Wow, Bonnie, that is fantastic. I'm so glad to know that things are looking up there.

Enjoy that game of Scrabble!
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 7/24/2009 11:10 PM (GMT -7)   
Im glad to hear you are doing so well, after all you have been through. Your strict diet seems to be paying off for you - good for you! Keep posting as we miss you :)
Jo

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 7/25/2009 4:33 AM (GMT -7)   
Congrats!!! I'm really glad your feeling better.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/25/2009 6:16 AM (GMT -7)   
Yeah, so glad to hear you are feeling better. Enjoy it and live your life. I hope you beat his pants off on Scrabble:) tee hee!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 7/25/2009 8:46 PM (GMT -7)   
Thank you guys!! I'm happy to hear from you. In that vein, how have YOU been?

I used all of my letters on the second turn by the way ;) 100 points total!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/25/2009 9:48 PM (GMT -7)   
Oooh, well done, you!! What was the word?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 7/25/2009 10:54 PM (GMT -7)   
'Enjoins' :) Thank goodness for that blank tile you know? He wasn't terribly pleased however..haha.

You know one thing I still have difficult with in feeling well is stress..I still haven't gone to see anybody. But walking seems to help that a lot. I wonder if this can sustain a person?..I just can't help but recall all the times people, myself included, have started to flare up from a stressful situation..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/26/2009 2:11 AM (GMT -7)   
:-) Impressive. What you want now, is to do that on a triple word score :-)

Stress: is this still the situation with your father? Are you not seeing anybody about it because it would be too expensive, or because you simply don't have the time and energy?


I think any sort of exercise will help with stress. Next time you're walking, you might like to try this meditation I found in a religious book; I tried it today and found it really made me zen out a bit.

Start walking, and start counting your paces:

1, 2, and then scroll backwards, 1.

You build up in increments of one, so:

1, 1, 2, 1, 1, 2, 3, 2, 1, 2, 3, 4, 3, 2, 1, 2, 3, 4, 5, 4, 3, 2, 1, 2, 3, 4, 5, 6, 5, 4, 3, 2, 1... and so on until you get to ten, and then start scrolling backwards again.

It's best to do this in a quiet area so you don't always have to be dodging pedestrians, but it can be very calming.


What sort of stress symptoms are you experiencing, Bonnie? We might be able to come up with some practical solutions to help relieve some of them.

Are you sleeping ok, or do you find you lie awake worrying about things?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 7/27/2009 6:39 AM (GMT -7)   
A lot of the stress seems to be coming from 1) tension between my boyfriend and my siblings and 2) the episode that happened with my boyfriend and that other girl at work.

Mostly number 2. I'm not angry with my boyfriend, just angry with what happened and with the girl. As time goes by I continually hear things that do no credit to her character, and I never really got to express my anger at being treated the way I was.
I know I will have to get over it eventually, but, and I think this is saying a lot considering I don't even hold a grudge against the person who hired hitmen against my family, I don't like her. At all.

And I get to run into her frequently. She followed me around thinking I didn't know who she was while I was walking around in Best Buy (boyfriend works there, so do a number of our friends, so does she).

Ivy, thank you thank you thank you...I will be trying that. I really need to find a way to calm down and work things out, and I think that meditation will help. Especially the counting method.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/27/2009 6:42 AM (GMT -7)   
Bonnie,

I have had this darn disease for over 33 years and just about 2 years I developed alot of anxiety. I saw a therapist and take Xanax lowest dose available for those bad times and am now doing much better. I only use my Xanax maybe 1-3 times a month and have learned to recognize the anxiety and stop it right away with the Xanax. Maybe talk to your PCP about something like that.

Good luck,
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 7/27/2009 8:13 AM (GMT -7)   
Nanners, I think you're right...I really do need to see someone, and I was actually pretty curious about xanax. I have heard great things (like calming your stomach?).
Thank you for the suggestion by the away!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."

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