Prednisone is my friend

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britt1449
Regular Member


Date Joined Apr 2009
Total Posts : 85
   Posted 7/25/2009 8:37 AM (GMT -7)   
I started a 40 mg taper a few weeks ago, and before recently, it had been a long time since I had been on it.  Man, it does have some wierd side effects, but it seems to really help my initial problems!  My self-esteem has sky rocketed as a result of all the weight gain!  Last week at the doc I weighed in at 108lbs, and I am 5' 7", so I had lost a few pounds, and that always depresses me. :(  But I weighed myself yesterday, and I am 116lbs!! lol  Eight pounds in 9 days, haha.  I only wish I could stay on Prednisone forever- then at least I would feel somewhat like a "normal" person.  Feeling great!
Brittany
 
Currently taking: Humira 40mg/every other week, Imuran 50 mg/day, Zoloft 50 mg/day, vitamins and supplements, Phenergan and Lortab as needed, prednisone tapering down
Have taken: Cyclosporine, Pentasa/Asacol, Aciphex, Imuran, Sulfasalizine, Cipro & Flagyl, Prednisone, various pain med's, Xanax
 
Surgeries: Appendectomy 2001, Ileocecotomy 2007


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10391
   Posted 7/25/2009 8:41 AM (GMT -7)   
LOL, Prednisone is one of those friends who tells you you're smart and beautiful and hip, then down the road a ways hires a hit man to get rid of you.
Judy
 
Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 


britt1449
Regular Member


Date Joined Apr 2009
Total Posts : 85
   Posted 7/25/2009 8:44 AM (GMT -7)   
LOLOL, thanks for the laugh. That's priceless.
Brittany
 
Currently taking: Humira 40mg/every other week, Imuran 50 mg/day, Zoloft 50 mg/day, vitamins and supplements, Phenergan and Lortab as needed, prednisone tapering down
Have taken: Cyclosporine, Pentasa/Asacol, Aciphex, Imuran, Sulfasalizine, Cipro & Flagyl, Prednisone, various pain med's, Xanax
 
Surgeries: Appendectomy 2001, Ileocecotomy 2007


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/25/2009 10:07 AM (GMT -7)   
LOL Judy, I almost spit my food on the computer:) You hit the nail on the head, thats for sure.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 7/25/2009 12:17 PM (GMT -7)   
Ah yes, Prednisone.  I tell it I love it every morning when I take it, then curse it at night when I cannot sleep because of the insomnia and night sweats. Haha.
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.
 

LauryLu
Regular Member


Date Joined Dec 2008
Total Posts : 75
   Posted 7/26/2009 5:48 AM (GMT -7)   
yes I was loving it too - 40 mg - 10 lbs in 8 days! I can eat what I want - which is just crazy to me. THEN I started to taper to 30mg this week- that is when it all hits the fan and my love turns into hate. Right now I am wobbling around barely able to get through the day without excruciating joint pain (to mention just ONE of the many horrible side effects I get). Mainly in my knees but also pain in the wrists and my swollen feet and ankles. What causes this to happen with most prednisone users? I am so curious to know why it causes THIS much pain in my knees - is it extra fluid that is being built up? What drives me up the wall to, is when I mention it to my GI -all he responds is "really thats interesting" and notes it in his little book. Man, give me some advice, some insight, pain-killers, anything....
26 yo Female, Crohn's
Diagnosed at 6...symptoms at age 2
Bal-resection 1998
history of steroids, antibiotics, Asacol, Prilosec, Pentasa, 6mp Imuran, Remicade, Humira...
Humira 12/08 and stopped after 3rd dose
LDN 3.5mg Feb-July 09
starting Humira Again


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/26/2009 8:12 AM (GMT -7)   
Everytime I go down the on the Pred the first couple of days after, I have the worst joint pain, then my body adjusts. Then on the next taper down I go thru the same thing. I definetly have a love/hate relationship with Pred too.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 7/26/2009 8:20 AM (GMT -7)   
Prednisone is the drug we all love to hate. I always get terrible acne and insomnia from it, but it does work well at reducing any pain I'm having. Take the bad with the good, I guess.
Diagnosed with CD July 2007.
Hospitalized:
July 2007
August 2007
December 2008
January 2009
July 2009


Wild_Swan
Regular Member


Date Joined Apr 2007
Total Posts : 89
   Posted 7/26/2009 11:32 AM (GMT -7)   
yup love it too - at the high doses only though - it does crap all when i lower it - i'm beginging to wonder what is life like without steroids (been on them 2 yrs & counting)
 
 

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