abnormal number & size of lymph nodes on CT Scan result???

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LauryLu
Regular Member


Date Joined Dec 2008
Total Posts : 75
   Posted 7/27/2009 8:42 PM (GMT -7)   
Ok I am very scared. I just thoroughly read my latest CT scan results from my ER visit a few weeks ago and it says:

There is abnormal number if not size of lymph nodes in the small bowel mesentry. Reactive mesentric lymphadenopathy.

Nothing about this was said to me by my GI or the dr's in the ER. Should I be worried?

I have an appointment with a great new dr tomorrow. I will ask her then but would love to hear from you guys too!
26 yo Female, Crohn's
Diagnosed at 6...symptoms at age 2
Bal-resection 1998
history of steroids, antibiotics, Asacol, Prilosec, Pentasa, 6mp Imuran, Remicade, Humira...
Humira 12/08 and stopped after 3rd dose
LDN 3.5mg Feb-July 09
starting Humira Again


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 7/27/2009 10:22 PM (GMT -7)   
Enlarged lymph nodes usually means an active infection and your immune system is in high gear. Mesenteric just means within the gut. For more have a look at: http://en.wikipedia.org/wiki/Lymphadenopathy[/urll]

lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 7/28/2009 2:25 AM (GMT -7)   
I've been having trouble with enlarged lymph nodes, they tend to come and go my doctors so far haven't seem to concerned, very common apparently especially if your immunosuppressed as you may be having low level infections a lot. I'm double checking with my GI when I see him as its easy to jump to the worst conclusions especially when you read med sheets! But it does sound logical to me that it could just be little infections, ask your new doc if its really worrying and hopefully it'll be nothing sinister to worry about :-)
 
 


LauryLu
Regular Member


Date Joined Dec 2008
Total Posts : 75
   Posted 7/28/2009 3:46 AM (GMT -7)   
thank you for your advice. It confuses me though because it seems like my body is not being suppressed because I have high concentrations of inflammation in my intestine. Doesn't this mean it is over-reacting? I was flaring very badly and not on any medicine. I am just so scared of that L word - "lymphoma"
26 yo Female, Crohn's
Diagnosed at 6...symptoms at age 2
Bal-resection 1998
history of steroids, antibiotics, Asacol, Prilosec, Pentasa, 6mp Imuran, Remicade, Humira...
Humira 12/08 and stopped after 3rd dose
LDN 3.5mg Feb-July 09
starting Humira Again


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 7/28/2009 5:17 AM (GMT -7)   
same its hard not to worry! I just hope that as we are usually pretty closely monitored anything would be caught early enough if it was the worst. But fingers crossed it isn't and something simple could even be the flare making them enlarge becuase of all the inflammation in your system. Have you seen the new doctor yet? If your worried I'm sure you could get them to do some further investigating to put your mind at rest
 
 


beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1091
   Posted 7/28/2009 11:18 AM (GMT -7)   
I wouldn't worry too much. Enlarged lymph nodes in the mesentery is a normal, common radiologic finding in Crohn's disease. My CT scans have shown the same thing.

If one or more of the lymph nodes became *grossly* enlarged, they would suspect lymphoma, but some amount of enlargement is normal in Crohn's. So it would be up to your radiologist and gastroenterologist to determine what is normal Crohn's enlargement vs. what is *too* much enlargement.

Since the radiology report specificies reactive mesenteric lymphadenopathy, that tells me the radiologist sees only minor, normal Crohn's-related enlargement and does not suspect lymphoma.

ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 7/28/2009 3:11 PM (GMT -7)   
I had a similar kind of result with my first CT scan about 4 years ago. The report noted that Lymphoma is one possibility. Freaked me out!! My GI was not concerned, said it was related to CD and it was just a CYA for the radiologist. I made an appointment with my internist to get his opinion as well, and he agreed with my GI. Both said the only way to know for sure was surgery but they didn't think that was necessary. I decided to trust them. I hope all turns out well for you. Please let us know what your doctor has to say. SB
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08. Back on Pentasa as maintenance.


LauryLu
Regular Member


Date Joined Dec 2008
Total Posts : 75
   Posted 7/28/2009 6:57 PM (GMT -7)   
I went to see new dr - by the way she is wonderful - I think I found the ONE! Finally...

nothing to worry about really like you all said. My worries have subsided but still is in the back of my mind. Nothing I ever really thought about before I read the report so thoroughly.

I am long overdue for a colonoscopy and so she scheduled one for Sept - along with an upper GI. Can't wait to see whats really going on in there! We shall see...
26 yo Female, Crohn's
Diagnosed at 6...symptoms at age 2
Bal-resection 1998
history of steroids, antibiotics, Asacol, Prilosec, Pentasa, 6mp Imuran, Remicade, Humira...
Humira 12/08 and stopped after 3rd dose
LDN 3.5mg Feb-July 09
starting Humira Again

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