what pain medication works best for you

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ItSawesomeJohn
Regular Member


Date Joined May 2009
Total Posts : 51
   Posted 7/28/2009 1:14 AM (GMT -7)   
I am currently taking vicoprofen 200.-7.5 my tab works ok but I feel like I need something stronger. I was taking oxycodone 5 mg, they stopped working. I wanna ask my doc for something else but I don't know of I should and I don't know what else is stronger
Diagnosed in Jan 2009......educated myselfand all the helpfull and informfull people on here feels like a second home....thanks everyone.......
 
 
i love to help if you aveaquestion let me knoe


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 7/28/2009 2:03 AM (GMT -7)   
I take hydrocodone 10's 3 x daily as needed. I also take 5 neurontin (1 moning 1 afternoon 3 night), and 1 librax before each meal. Please be careful in the amount and type of medication that you take for your pain, but please do not needlessly suffer like I did for so long due to my pride. Many people here have chosen to see a pain management specialist or do like i do and have your primary care treat it. I only recommend the latter option if your doctor is an internist and is really proficient in treat chronic pain and will not just throw oxycontin at it to begin with. I would also hesitate requesting a certain medication and dosage from you doctor because you are really running the risk of appearing as a drug seeker. Nearly all of us here have been treated like this at the E.R. or hospital at one time or another and it is not a pleasant feeling. It also does nothing for your credibility. My suggestion would be to let you doctor know that the oxycodone is not effective anymore and ask what you options are to achieving some pain relief again. Be upfront with you doctor about the level of your pain but don't dramatize it just to get a different medication.(this does happen) I always let me doctor know that the last thing that I want to do is become addicted and lose our relationship of trust. Of course, you will become dependant on the medication but this is not addicted. Also make sure that your doctor understands that you understand thay you know that you will never be 100% pain free but that you want to be able to live life and be able to function. Good luck.

ItSawesomeJohn
Regular Member


Date Joined May 2009
Total Posts : 51
   Posted 7/28/2009 2:43 AM (GMT -7)   
I couldn't put that any better becuase in the hospital I needed dilauded becuase morphine wasn't working and they thought I was going to get addicted but I'm a strong person mentally so that won't happen but I also get immune to the medication quick . But I am going to tell him that I just want to function.

*Sorry I had to edit your post due to rule #2

2. No discussion of medical marijuana use.

Post Edited By Moderator (Nanners) : 7/28/2009 7:23:36 AM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/28/2009 6:25 AM (GMT -7)   
I used Vicodin for my pain for many years and about 2 years ago had to change to Percoset 5-325 mg. It seems to work well for most of my pain.

What do you think is causing you so much pain? Is it the Crohns arthritis or is it stomach issues? I ask because I am wondering with you being in so much pain if you aren't on the right Crohns meds to help. My pain is from Osteoarthritis and Fibro, just to give you an idea of why I take my pain meds.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

britt1449
Regular Member


Date Joined Apr 2009
Total Posts : 85
   Posted 7/28/2009 6:54 AM (GMT -7)   
I was give Ultram, which is a morphine-like drug that doesn't have the same addictive properties as other narcotics. But this really wasn't working, and I called my doctor to see if he could give me something else to help. He put in a script for Lortab 10, and they have worked very well, except they sometimes cause nausea, so I have to take some phenergan from time to time. I have occasional belly pain, but my pain source of chronic pain is low-back and muscle and joint pain in my hips and legs. I have yet to see a rheumy because my GI said there wasn't much they could do for me (I'm on all the med's they would use for arthritis). So basically I would just need the rheumy for a diagnosis- but I do need to go, because if I want pain relief, that is the person I would need to discuss it with, ultimately.
Brittany
 
Currently taking: Humira 40mg/every other week, Imuran 50 mg/day, Zoloft 50 mg/day, vitamins and supplements, Phenergan and Lortab as needed, prednisone tapering down
Have taken: Cyclosporine, Pentasa/Asacol, Aciphex, Imuran, Sulfasalizine, Cipro & Flagyl, Prednisone, various pain med's, Xanax
 
Surgeries: Appendectomy 2001, Ileocecotomy 2007


ItSawesomeJohn
Regular Member


Date Joined May 2009
Total Posts : 51
   Posted 7/28/2009 10:02 AM (GMT -7)   
Well it's been five months and I'm still taking pentasa/ 6mp/ prednisone. I'm trying to get humira . I don't think i have arthritis yet but it's the stomach issues. It just doesn't let me function
Diagnosed in Jan 2009......educated myselfand all the helpfull and informfull people on here feels like a second home....thanks everyone.......
 
 
i love to help if you aveaquestion let me knoe


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/28/2009 10:20 AM (GMT -7)   
Have you tried any of the antispasmotics for your stomach? Like Bentyl, Levsin or Librax? These work really well to stop the cramps that Crohns can cause. I have been using Librax the past few days and it seems to be helping alot. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 7/28/2009 11:26 AM (GMT -7)   
If Im in the hospital I need IV Dilaudid  (Morphine doesnt touch my pain).  Outside the hospital Ive been given Diluadid in pill form, and also Percocets work for me.

Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.
 

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 7/28/2009 12:12 PM (GMT -7)   
They put me on Tramadol for awhile. I had nausea pretty bad and some severe headaches when I was on it. Ignored it...'cause it did help a bit with pain. Not so much...but hey...nothing does much.

Then I was on Hydrocodone...which I'm still on. It doesn't cover all the pain. It's...about...50% with the Lyrica adding in its 50%. No...it doesn't equal 100. Basically...the Lyrica helps...but I can still feel...flashes? of nerve pain in my hands and feet. The pain meds...meh...they do their fifty of the pain that's left over. So...after those...there's still a whole lot of pain. I've tried to tell my dr. about it...but...eh. The only time...I really dislike it...is when I have to work...like today. So save two of my three pain meds...and take two an hour or so before I work...and one afterward. It's the only way I'll survive working four hours.

As for all types of pain meds...well, they had me on Demerol for a few weeks...and that stuff's wild. Tears the hell out of your veins though. I was on Fentanyl for about 9 weeks straight...on a patient pain button. That stuff was something else too. I would be right out of surgery and walking around like I hadn't had anything. Jumping around...basically MOVING like surgery hadn't occurred (least until the 3rd surgery in 3 months). Felt that 3rd. Then they had me on muscle relaxers, pain meds, until I forgot a whole day passed. Which was GOOOOOD. 'Cause apparently I was hurting so bad 'cause my female time had started during intestinal surgery. I started begging them to kill me. Yeah...that one was bad bad bad pain.

Dilaudid. What can I really say about the stuff? I was on it with my last surgery but I sure don't remember it. I came out of more intestinal surgery where they removed gallbladder and scraped an abscess off my ovary....about a week later LOL. Honestly...it's the only time I lost a week. They gave me that stuff at a different hospital in a different state when I needed gallbladder removed...after they'd been pushing morphine on me all day...and I kept puking all day. They don't listen when you say "no morphine...it'll make me sick". So then they switched me to dilaudid and I didn't puke anymore. That last surgery....was awful. I had pneumonia when I woke up too. They made me do that breathy thing...where it makes you cough up the stuff. I hated them for that. You know...a brand new cut-line...that's 3 inches longer then all the others...'cause it took your gallbladder too...its waaaaaaaaaaaay up your stomach and they PURPOSELY make you cough. Bad doctors. Finally...a nurse told me to keep pumping the pain button while I do the breathy thing. Which I did...and then they removed it the next day. Nice of them. So I quit taking the breathy thing. I coughed plenty of the pneumonia crap out by then.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa
Fibromyalgia Dx'd: July 21, 2009
Lyrica
Hydrocodone
Prenatal Vitamin
Allergy meds


AllHailDietmar
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 7/28/2009 12:31 PM (GMT -7)   
I was on 3x10mg lortab a day, then went to 2x5mg lortab last infusion visit. It sucks the 10mg were barely doing enough and the 5mg do nothing. I also take bentyl but they kind of make me feel stupid. Since then I have been eating healthier and taking supplements to help ease the pain naturally by being as healthy as possible. I'm in pain all the time but, I really don't need to be taking stronger narcotics and then when I'm older and need them they won't work since I'm only 23, I keep telling myself this because I have alot of respect for my G.I (he's the one that took down the pain meds and told me this) and trust what he is doing. I'm disappointed at rule #2, I would love to have a discussion (I don't smoke) but, rules are rules.

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 7/28/2009 1:16 PM (GMT -7)   
Bentyl has done nothing for me.

I was on Lortab liquid & pills, 750s. Came off them cuz I had been on them a long time & was told by a couple docs that's not good.

I would love some pain meds that work but don't cause other problems. I have been having A LOT of abdominal pain around my belly button as of late.

I was on amptrytaline for nerve pain (I also have spondylolethsis & EDS) but it didn't work at all, just helped me sleep. They wanted to try Cymbalta, but insurance doesn't cover it & it's expensive.

I would be interested to discuss #2 as well.
Live for today, for tomorrow you might just get hit by a semi.


ItSawesomeJohn
Regular Member


Date Joined May 2009
Total Posts : 51
   Posted 7/29/2009 10:56 PM (GMT -7)   
darn I feel forbyou joie1 . seems like you went thru alot I'm glad you shared that with us . I think I'm going to stay on the pains meds I have now. If my doc said to not take pain meds I would listen to him cuz sometimes you just can do anything it makes me grumpy sometimes but there are days were I don't needem which is gr8t and smoking gives me heartburn if you know what type of smoke I'm talkin bout LOL cuz even the nurse at the docs office suggested it. But one thing is pain is no joke ya digg LOL have abpaim free summer everybody
Diagnosed in Jan 2009......educated myselfand all the helpfull and informfull people on here feels like a second home....thanks everyone.......
 
 
i love to help if you aveaquestion let me knoe


ISF13+
Regular Member


Date Joined Jun 2009
Total Posts : 202
   Posted 7/30/2009 11:24 AM (GMT -7)   
Ultram, Lortab, Morphine . . .these work for me. We are all individuals so what works for you, may not work for me! Good Luck and I hope you can find out why you are in constant pain.
Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum.  Currently have C-Diff.
Current Medications for the Crohns:  Humera 40mg injections every other week, Imuran 150mg, 3xday, Hyomax, Welchol 625mg, Flagyl 250mg, 3xday, Calcium, Acidophilus & Potassium
Previous Medications I've been on:  Asocal, Pentasa, Cipro, Prednisone & Entocort


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 7/30/2009 1:46 PM (GMT -7)   
Morphine Sulfate works for me, and it's common, easy to find, in pharmacies, and hospitals.
FaceBook; http://www.facebook.com
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ISF13+
Regular Member


Date Joined Jun 2009
Total Posts : 202
   Posted 7/31/2009 8:06 AM (GMT -7)   
Wish I had some of that Morphine last night.  Fortunately, the Lortab worked and I didn't need to go to the ER.  UGH!!! 
Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum.  Currently have C-Diff.
Current Medications for the Crohns:  Humera 40mg injections every other week, Imuran 150mg, 3xday, Hyomax, Welchol 625mg, Flagyl 250mg, 3xday, Calcium, Acidophilus & Potassium
Previous Medications I've been on:  Asocal, Pentasa, Cipro, Prednisone & Entocort


ItSawesomeJohn
Regular Member


Date Joined May 2009
Total Posts : 51
   Posted 7/31/2009 2:35 PM (GMT -7)   
See I would try that morphine sulfate but I can't just ask my doctor for it.
Diagnosed in Jan 2009......educated myselfand all the helpfull and informfull people on here feels like a second home....thanks everyone.......
 
 
i love to help if you aveaquestion let me knoe


sukay
Veteran Member


Date Joined Feb 2003
Total Posts : 1432
   Posted 8/5/2009 11:17 PM (GMT -7)   
After many visits to the ER for my CD the best thing that worked for my pain was:
 
DDDDIIIIIIILLLLAAAAUUUUUUDDDDIIIIIDDDD!!!!!
 
Thank goodness they even sent me home with some to keep on hand!
~sukay~
 Bipolar - 2004
     Crohns disease - 1995 
Arthritis & Fibromyalgia 
 
Leo Buscaglia


eljay1066
Veteran Member


Date Joined Jan 2003
Total Posts : 3166
   Posted 8/6/2009 4:30 AM (GMT -7)   
I'm a fan of dilaudid, too, for when the pain is completely out of control. My family doctor knows and trusts me and I was surprised at the amount she prescribed for me after I was released from the ER a while ago. I'm even more surprised that my insurance covered it.

I have spinal stenosis, and for chronic pain I use the patches, but my insurance company will give me only a month's worth at a time, and no refills. I can't help but wonder why they filled more than one prescription for dilaudid, the last one for 60! I'm allowed to use darvocet along with the patches. That's pretty mild but it doesn't give me the side effects that percocet did. I reserve dilaudid for when it's time to bring out the big guns, like kidney stone or severe CD.
Take care. Lois

GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 8/6/2009 11:44 AM (GMT -7)   
I guess acetaminophen works best for me because my doctor said to avoid NSAIDs and won't prescribe me anything else.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/6/2009 12:26 PM (GMT -7)   
Gden,

GI's are notorious for not prescribing pain meds. Many of us have to go to either our family docs or pain mgmt clinics to get our pain meds.

Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4100
   Posted 8/6/2009 2:02 PM (GMT -7)   
I don't have severe pain, but sometimes when I am having some spasms or I am really uncomfortable I take a Xanax at night. I know it is not a pain med, but it relaxes me enough so I can fall asleep.
50 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics


CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 8/7/2009 7:20 AM (GMT -7)   
I use 150mcg transdermal patch of Fentynal and for breakthrough I use 6 - 30mg oxycodones so a day I take the 150mcg of fent and 180mv of oxycodone, but I believe I will be talking to my dr about the oxycodone, Id rather take something else that I dont have to take so much of that, Its not working well for me anymore.

Dalaudid IV works well for me, but has to be about 3 or 4 times the amount everyone else gets. IM or through the muscle doesnt help me at all, and neither do the pill form of dalaudid, dont know why. Demeral doesnt work for me well, neither does darvocet. Morphine and morphine based drugs make me feel like my skin is crawling, or like i'm claustraphobic. Opana, which is I guess a few years old now, when I took it it was only a month or two out on the market, but it worked well, supposed ot last 24 hours for one pill also, its oxy-morphone. Vicodin doesnt really help me, and really neither does the percocet unless its just oxycodone, I cant handle the tylenol. Methadone works REALLY well also, my BIG issue with methodone is...say you have to go to the ER, I have to take Dalaudid IV, well if I'm taking methodone regularly at home, then the dalaudid doesnt seem to help, nor does any other narcotic. Which is the point of the methodone. Its released in the GI tract instead of going through the liver and it blocks narcotics from working. But also is a quite strong narcotic in its own right, just has draw backs if you have to go to the ER for pain.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/7/2009 7:45 AM (GMT -7)   
Crohnspatient,

I was just wondering what type of pain you are having that is causing you to use such strong pain meds. Most of us don't need this strong of meds, but I do understand that some with other issues do require the use of these stronger meds. So just curious why you use such strong meds.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 8/8/2009 10:12 AM (GMT -7)   
I carry a bottle of Hydrocodone in my purse at all times - it doesn't remove the pain but it dulls it. I honestly rely on Ibuprofen for most of my issues - which right now is almost all joint pain. My GI prescribes my pain meds.

When in the hospital, I'm a happy camper with morphine.

CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 8/8/2009 11:01 AM (GMT -7)   
I take so much just from tolerance. So many ER visits, Admittances, or surgeries. I was taking 2-60mg oxycontin along with the 6-30mg oxycodone but medicare decided that after almost a year that they ddint want to pay for all of the oxycontin anymore and recomended that they would pay for fentynal my dr looked it up which would work better fo rme because if i flared i'd not be able to keep down my oxycontin then i'd start to wirhdraw so he agreed with the fentynal and the equavalent of the 2-60mg oxy's a day was 150mcg of fentyna so I take either 2-75mcg's or 1-100mcg and 1-50mcg patch. seems to work well for me. I really wish I could go back ot the oringinal days of just taking like a 5mg vicodin but anything less and i dont really get relief. Its not like Im even getting 100 percent relief now, which you arent supposed to, its to manage your pain and get you as close as possible to your pre-illness life. All I can say I guess is it works for me at htis moment in my life. But I would say the Iv narcotics on top of the at home meds definetly gave me quite a tolerance. plus as I said I cant handle things morphine based, so that counted out a complete family of medicines. And the dalaudid is 10 times the stength. Which is why fentynal doses are so small. the 100mcg is something like 10.24mg of narcotic, because its 80 times stronger then morphine.
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