terminology help, please

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skofbengsk
Regular Member


Date Joined Oct 2006
Total Posts : 234
   Posted 7/28/2009 5:55 PM (GMT -7)   
I had my colonoscopy today and was very out of it when the Dr talked to me, he gave me a written report of his findings but I have no idea what many of these things are, the pictures sure aren't pretty though, if anyone can tell me in plain english what any of this means and possibly how good or bad it may be I would be so gratefull.
 
First of all let me say that it can't be that great because he states the intention was "advancing to the cecum. The scope was advanced to the descending colon before the procedure was aborted."  Where is my cecum and how far is it from the descending colon?
 
He also puts that there was "Patchy severe inflammation characterized by congestion (edema), erosions, friability, granularity and deep ulcerations was found in the rectum and in the recto-sigmoid colon. Biopsies were taken with a cold forceps for histology."   I assume congestion just means swelling, what are erosions, friability, and granularity?
 
The next line reads all of the above in addition to: erythema and confluent ulcerations located from 40 to 60 cm proximal to the anus.    What are these?
 
Then also "Appears to possibly have false lumen at 50cm, abcess??, fistula? "    What is a false lumen
I guess I also need to go to medical school.
A couple of weeks ago he told me to restart my entocort and he wanted to start me on 6mp, today however he told me to switch to prednisone indefinately and he wants me to start remicade.    Isn't remicade one of the big guns? Is it typical to go to this before trying other things?
 
Any input is appreciated
Dx CD Oct '06  remarried July '05 mom of 3 boys ages 12, 15, and my baby born Oct. 07. 
Asacol, entocort


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 7/28/2009 8:48 PM (GMT -7)   
you need to ask this of your doctor. without the proper credentials and seeing the pictures, imho, for what you are asking, anything said here can be considered hearsay and may give you the wrong impression of what is happening in your body - good or bad. as the patient, it is your job to make sure the doctor has explained your body to you. that is what you are paying him for. after he does his diagnostics, make sure you know what he found so you can make informed decisions of your treatment based on his findings and medical opinion. a lot of the terms you used have a lot of grey area associated with them and without seeing the pictures it makes accurately commenting very difficult. and a lot of diagnosis is opinion.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 7/29/2009 5:27 AM (GMT -7)   

Your colon is llike an inverted U. The cecum is on the right side, where yuor small bowel connects and empties into your colon. Put your hand on your lower right abdomen, about waist level. Move up to just below the rib cage. That is the cecum. Then move it from right to left across your belly just below your ribs. That is the transverse colon. Then move it down and slightly to trhe center on the left side. That is the descending colon, which leads into the rectum and then to the anus and out. He only got to the top of the left side and his report indicates that you have a lot of active disease in that part of your colon.

Erosions are areas of irritation on the verge of becoming ulcers. Friability means the colon wall is thinned and fragile, which is probably why he went no further, since that increases the risk of performation. Granularity refers to a cobblestone appearance of the bowel wall, and it is a strong indicator of Crohns. Erythema means inflamed. Not sure what he means by false lumen. The bottom line is yuo have a lot of active inflammation and ulceration in at least your rectal and descending colon regions.


skofbengsk
Regular Member


Date Joined Oct 2006
Total Posts : 234
   Posted 7/29/2009 7:46 AM (GMT -7)   
Thanks, I know I need to call my Dr. I just really freaked out a little yesterday when I really woke up at home and looked over his report and it was to late to call him at the office. I was so out of it yesterday when I spoke to him, he could have told me he removed every organ in my body and I would have said ok. I don't know why they only give you 30 minutes in recovery and think they can speak to you.

I will be calling him when the office opens this morning
Dx CD Oct '06  remarried July '05 mom of 3 boys ages 12, 15, and my baby born Oct. 07. 
Asacol, entocort

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