Why does my Dr tell me this

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Not2Spunky
Regular Member


Date Joined Feb 2008
Total Posts : 165
   Posted 7/29/2009 12:44 PM (GMT -7)   
Hello, Why does my GI tell me to eat more fiber and fruits and veggies??? Every time I eat a salad or have any bran/fiber I end up in the ER. I am getting frustrated. KayC
 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/29/2009 12:49 PM (GMT -7)   
Boy I am just like you, if I were to eat more fiber I would end up in the ER with an obstruction. I have the stricturing type of Crohns and can't do fiber at all. That sounds plan crazy to me.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 7/29/2009 12:53 PM (GMT -7)   
I can't take fiber either. I know a lot of GI's recommend it, but that is when you are in good shape. Although I am doing pretty well right now and still can't take a lot of fiber so...there are some of us who just have to avoid it I suppose.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 7/29/2009 1:22 PM (GMT -7)   
I don't get it either. I won't be eating any salads unless I get my stricture taken care of. It's all peeled, de-seeded, and well-cooked veggies and fruits for me!
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 7/29/2009 4:01 PM (GMT -7)   
time for a new gi?
strictures, crohn's, adhesions, endo. Pyoderma Gangrenosum.
LDN 4.5mg ~ Boswellia Serrata ~ Olive Leaf extract ~ SCD yogurt. Done using silver sulfadiazine on Pyoderma, changed to steriod cream, PG 60% healed in 3 weeks . B-12 shots. Juicing veggies!


WriterMum
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 7/29/2009 4:19 PM (GMT -7)   
I on the other hand am much better if I eat some fibre. I can't do salads, vegetables and fruits much, but All Bran Buds and/or Metamucil helps me a lot. As long as I am not bleeding and the inflammation in the colon is not too bad I find that the fibre reduces the diarrhea and so my bum is less sore. I think that the firmer the bowel movements are the less acidic they are and the less the stuff irritates my skin too. I think that too much fibre while you are flaring would be painful, but for me it works when I am in a moderate to mild state.
44 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March this year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Prednisone 5 mg, Salofalk 2000 mg, Nexium 40 mg, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Salofalk suppositories as needed.


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 7/29/2009 4:36 PM (GMT -7)   
Your GI's stupid. If you're flaring...and fiberous stuff is painful, avoid it. Course I deal with my flares by drinking Ensure. about 4 a day with 0 solid food for a couple of days to a week. Calms the flares down at least for me. Then, every now and then I add some salad or fruits. I don't do well with MOST veggies. I even had green beans cause a flare once. I found OUT I had Crohns by ending up in the hospital after eating a purely fibrous diet for a few weeks (I had pancreatitis caused by a gallstone blocking a duct). Course the hospital didn't use more than a sonogram to see what was wrong with me. They kept me off food and such for 3 days and sent me home to eat ONLY tons of fiber and low fat diet. Which I did...and then ended up in an ER about 3 weeks later with stricture and fistulas and abscesses. The nurse said it looked like a bomb exploded inside me. Yay. And into surgery #4.

What I'm trying to say is sometimes, the doc's don't know everything if they haven't taken ALL the tests to see what's wrong. Plus they handle tons of cases a day. So if you really can't stand the idea of fiber...maybe a completely low residue diet for a bit will help ease the pain first.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa
Fibromyalgia Dx'd: July 21, 2009
Lyrica
Hydrocodone
Prenatal Vitamin
Allergy meds


Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 7/29/2009 6:26 PM (GMT -7)   
I said try a new doctor. Any doctor who see their patient in the er after having fiber should say stop eating this stuff. My doctor tells me to avoid anything of the sort. No salad, no seed vegys or fruits. I came back from Cuba 2 months ago, couldn't go to the bathroom for a week, so I decided hey why not have a bowl of rasin bran.. ended up in the ER.
Good luck, hope all works out for you, until you see a new doc, avoid fiber, salad vegys and fruit.
25 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Now on Humira and back on Imuran as well.RA pains all gone!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 7/29/2009 6:44 PM (GMT -7)   
Try firbre supplements (same positive effect as fibre without the pain/issues of fibreous foods), I still take fibre supplements as my GI directed me to 5 yrs ago now and I can eat all fibreous foods now since I started taking the supplements. Fibre is your friend, you just have to know what you're doing with it.

With fibre supplements you want to take caps, not the sugary/junky powders that are full of extra crud in them for flavouring, you want to drink plenty of water with it, you want to start out with the smallest amount (1 cap) and increase only if necessary and only after your system has adjusted to the initial dose first (will likely cause extra gas and bloating which is completely normal and will go away).


Best advice I've ever got from a GI was to take fibre supplements, cut mucus out, formed stools, less trips to the can daily, no more bloating and very little gas, only benefits.

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


manda panda
New Member


Date Joined Jul 2009
Total Posts : 8
   Posted 7/30/2009 9:29 AM (GMT -7)   
it's just something they recommend. My doctor tells me it all the time. But if your getting that severe from doing it.. i wouldn't.

maybe you could just try eating a little bit of fibre slowly. like a granola bar or seomthing.. Somethign small and eat it SLOWLY sometimes if you eat your meals slowly it helps reduce gas bloating, and pain.
Age: 15
Diagnosed in 2007 with Crohns disease of the small and large intestines. Almost died in september of 2008. Still on the road to get this into remision...
Currently Taking: Imuran ( to control the immune system from attacking) and other nutrient supliments such as: iron, calcium and vitamin D


ISF13+
Regular Member


Date Joined Jun 2009
Total Posts : 202
   Posted 7/30/2009 11:37 AM (GMT -7)   
My GI doc explained it to me like this. Fiber is what absorbs excess liquid in your bowel and when you are having loose stools, it bulks them up. When you're constipated, it absorbs any liquid it can and releases it in the bowel so as to loosen the hard stool. So I think they tell us to eat or take fiber to keep everything balanced. Does it work? Not usually, for me anyway. If I happen to get a bit constipated, I just take a stool softener for a couple of nights. Otherwise, what little bit of fiber I get in what I eat generally keeps everything flowing more-so than I'd like.
Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum.  Currently have C-Diff.
Current Medications for the Crohns:  Humera 40mg injections every other week, Imuran 150mg, 3xday, Hyomax, Welchol 625mg, Flagyl 250mg, 3xday, Calcium, Acidophilus & Potassium
Previous Medications I've been on:  Asocal, Pentasa, Cipro, Prednisone & Entocort


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 7/30/2009 12:30 PM (GMT -7)   
Fibre aids with D or C, key is to make sure you're getting both soluble and insoluble fibre in you and drinking plenty of water is key as well and IBDers should be taking extra fluids since we're so prone to dehydration anyways.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)

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