It's not Crohn's, it's cancer

New Topic Post Reply Printable Version
28 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Stasi
Regular Member


Date Joined Jul 2009
Total Posts : 36
   Posted 7/29/2009 1:35 PM (GMT -7)   
I didn't really get to know any of you as well as I'd hoped, and you didn't really get to know me. I'd said in some previous posts that my doctors were considering surgery very early on, that I was worried about this, and would try and talk them out of it.

Yesterday I got in touch with them and they told me the biopsies were clear for Crohn's, but that I *probably* have cancer. My surgery is Monday.

Guess I'm in the wrong forum now.

Good luck to you all.
Stasi
Diagnosed July 2009.

Currently taking 2g Pentasa twice daily.

Waiting for first doctors appointment to get some information and treatment, been threatened with surgery already, but hoping to avoid this through some sweet talking with my Doc.. when I meet him.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/29/2009 1:40 PM (GMT -7)   
Oh Stasi, I am so sorry to hear of your cancer diagnosis. Please know that I will definetly keep you in my prayers that your surgery gets it all. Please stay in touch with us and let us know how you are doing. We had another member recently (sorry can't remember his name) had the same thing happen to him.

BIG HUGS,
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 7/29/2009 1:49 PM (GMT -7)   
Hi stasi, so sorry try and stay positive sweetiei know its easy for me to say that as im not in your situation but it will help you to stay strong and fight this darn thing. good luck with the surgery will be thinking of you. let us know how your getting on after when you feel up to it  take care Bev x

Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma. B12 shots,iron syrup,loperimide, Back on citalopram 40mg (for Anxiety)No maintainance drugs.


littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 7/29/2009 1:49 PM (GMT -7)   
So sorry to hear your news Stasi, thats rotten I feel for you. Good luck to you, I hope it all works out good in the end.
Diagnosed 2005.
 
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections, asacol


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 7/29/2009 1:50 PM (GMT -7)   
Hun I'm so sorry to hear that. I was lucky in that for me it was the other way round - they suspected cancer but found Crohn's. Please don't feel your not welcome here as your diagnosis has changed, I'm sure people here will still be happy to hear from you. I wish you all the best with your surgery and hope you recover well, please do keep us updated
 
 


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/29/2009 2:20 PM (GMT -7)   
Stasi,
I am so sorry! I hope things work out!
Navy
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/29/2009 3:03 PM (GMT -7)   
I'm really sorry, Stasi.

Please keep coming here so we can know how you're doing. We worry & care about you.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4100
   Posted 7/29/2009 3:28 PM (GMT -7)   
Hi Staci,
Hopefully you will get some good news and it will be treatable and curable. Keep in touch - we will all be thinking of you!
50 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 7/29/2009 4:38 PM (GMT -7)   
Good luck and remember that there are OTHER ways to care for this sort of situation. In this case, follow the rules and get better. You can always learn to deal with Crohns afterward.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa
Fibromyalgia Dx'd: July 21, 2009
Lyrica
Hydrocodone
Prenatal Vitamin
Allergy meds


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 7/29/2009 4:52 PM (GMT -7)   
Im sorry to hear this Stasi.
Good luck with your surgery and post back to let us know how it went.
Will put you in my prayers.
Jo

Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 7/29/2009 6:21 PM (GMT -7)   
I'm so sorry to hear! your in my prayer's, and I will pray your surgery gets it all out. Good luck, and do keep us posted.
25 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Now on Humira and back on Imuran as well.RA pains all gone!


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 7/29/2009 6:38 PM (GMT -7)   
HI Stasi, I had not heard your story but i just wanted to wish you all the best with your surgery, and hope that you come through the other side with good news. You are very brave and our thoughts are with you.

Much love

Phoebe

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 7/29/2009 9:06 PM (GMT -7)   
Dang, that's not good :( Best of luck and stay strong.
Diagnosed with CD July 2007.
Hospitalized:
July 2007
August 2007
December 2008
January 2009
July 2009


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 7/30/2009 4:20 AM (GMT -7)   
Stasi, I'm so sorry to hear! Please keep in touch and let us know how everything went. I wish you al the best.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


KEANO
Regular Member


Date Joined Sep 2008
Total Posts : 76
   Posted 7/30/2009 5:11 AM (GMT -7)   
Hi Stasi,
 
So sorry to hear about your diagnosis.  I am thinking about you and will say a special prayer for you.  God Bless and try and stay strong.

HM
Regular Member


Date Joined Sep 2008
Total Posts : 211
   Posted 7/30/2009 6:49 AM (GMT -7)   
I am so sorry and will pray for you...

36/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with Arthritis 2007

Diagnosed with UC, then Crohn’s 2008, now the GI isn't sure which is it exactly...he calls me a strange case.

Diagnosed with Generalized Anxiety Disorder 2008

Current medications: Asacol 2 tablets 3X daily, Imuran 50 mg daily,Endcort 3mg 2X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), Cymbalta 60 mg daily. 05 mg Zanax (if needed) Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 7/30/2009 6:54 AM (GMT -7)   
I'm so sorry to hear this. Best wishes for successful surgery and an excellent prognosis. Let us know how you doing.

aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 7/30/2009 7:13 AM (GMT -7)   
Good luck..I hope they get it all early. On the bright side, not stuck with Crohn's all your life
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


Stasi
Regular Member


Date Joined Jul 2009
Total Posts : 36
   Posted 7/30/2009 9:06 AM (GMT -7)   
CT scan came back clear, it's not spread. That's all the news for now.

Thank you for your kind words and prayers.

Stasi
Diagnosed July 2009.

Currently taking 2g Pentasa twice daily.

Waiting for first doctors appointment to get some information and treatment, been threatened with surgery already, but hoping to avoid this through some sweet talking with my Doc.. when I meet him.


ISF13+
Regular Member


Date Joined Jun 2009
Total Posts : 202
   Posted 7/30/2009 11:15 AM (GMT -7)   
Wow! I truly hope they are wrong and that the biopsies will tell them differently. My thoughts are with you.
Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum.  Currently have C-Diff.
Current Medications for the Crohns:  Humera 40mg injections every other week, Imuran 150mg, 3xday, Hyomax, Welchol 625mg, Flagyl 250mg, 3xday, Calcium, Acidophilus & Potassium
Previous Medications I've been on:  Asocal, Pentasa, Cipro, Prednisone & Entocort


Stasi
Regular Member


Date Joined Jul 2009
Total Posts : 36
   Posted 8/16/2009 10:00 AM (GMT -7)   
Quick update.

I've had the surgery, and am now home recovering. They took out about 3ft of bowel and 46 glands. The cancer had spread to 4 of the glands, which is bad news, but I guess better than it could have been. Some good news is that I'm clear of Crohn's, so if I'm lucky enough to beat the cancer I don't also have a life long disease to contend with.

Just need to get over this surgery now, and the chemotherapy, and start living my life again. Focus on today and tomorrow, and try not to worry about what might happen.

Thank you for your support on this forum, you are an amazing set of people.

Stasi.

Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 8/16/2009 10:08 AM (GMT -7)   
Stasi,
You are in my prayers. I wish you the very best.

Elizabeth
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril,
 


littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 8/16/2009 11:00 AM (GMT -7)   
Stasi

Im pleased to hear that you have now got your surgery over and done with. Best wishes for your recovery, I hope everything is good for you from now on

Kerry
Diagnosed 2005.  41 year old female living in UK
 
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections.


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 8/16/2009 4:32 PM (GMT -7)   
Stasi,
Glad you made it through the surgery, now rest up for a speedy recovery. Good luck with the chemo and do keep posting on your progress.
Still in my prayers.
Jo

Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 8/16/2009 7:08 PM (GMT -7)   
Best wishes for a speedy and complete recovery!
New Topic Post Reply Printable Version
28 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Thursday, December 08, 2016 5:06 PM (GMT -7)
There are a total of 2,735,030 posts in 301,267 threads.
View Active Threads


Who's Online
This forum has 151368 registered members. Please welcome our newest member, Martinese.
359 Guest(s), 10 Registered Member(s) are currently online.  Details
Bololidat, THE HAPPY TURTLE, dacarte3, Sarebear89, LG13, Huddie, ChickenArise, Dreamerboy, Mustard Seed, Mister Mike


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer