What is it??? I cant cry anymore.

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cayer
Regular Member


Date Joined Jan 2009
Total Posts : 76
   Posted 7/31/2009 2:03 AM (GMT -7)   
For the last 2 weeks I have felt pressure in my bum EXACTLY like an abscess. its in the same spot as an old one, it gets worse when i'm on my feet for a long time and it is there all day every day. In the past I have had 6 surgery's from abscesses but not in the past 7 years so when I felt the dreaded pain again I got straight onto my GI for some flagyl and after a week of no improvement I rang him to ask his advise and he booked me in for an MRI. I am naturally anxious about the issue because the last time I had one it went misdiagnosed and nearly died from infection and took 2 years to recover from the horrible weight loss and fistula.

When my GI rang me for results he said "its all clear, so good news okay bye" and I stopped him and said well it's not "all clear" because I have pain now and it feels exactly the same as an abscess and he just said "I don't know, maybe you should get your GP to have a look or a gynocologist". I just balled my eyes out instantly because I had been dreading it already and also couldn't believe that he was just going to close the book on it when I still have pain and he hadn't solved it after the MRI cost me $350.

My question to all of you beautiful friends and professionals out there is (other than the fact i have given him the flick after his complete lack of caring or motivation to find out what it is...WHAT IS IT????? has anyone else had this same feeling and have it be something else OR should I get a second opinion about the MRI?

I am going to see a new GI but if it takes a month to get in and it gets worse I wondered what my next step should be on my own.

Thanks guys, having you all to turn to has saved me yet again.

Tina. x x
Tina 26yrs old Diagnosed in 2000 with Crohn's surgery for perianal abscess and fistulas
currently on Imuran 125mg Motillium for digestion used in the past Remcide, salofalc, pred.
Worst pain equal to child labor was after eating home made Granola...i can still hear the screams ha ha.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/31/2009 5:27 AM (GMT -7)   
Unfortunately it just might not have had enough pus in it to show up on an MRI, is it showing up on your skin? if so get a physical exam done...


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

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Jen77
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Date Joined Mar 2006
Total Posts : 2687
   Posted 7/31/2009 2:03 PM (GMT -7)   
Ugh, I just hate it when doctors do that. Obviously it isn't all clear when your in pain! Geez! Just like my upper GI I had, after I drank all the barium the radiologist said it was a useless test for me because of the way my intestines folded up around my TI. I get a call from my GI a week later telling me it all looked great! When I knew they couldn't see the most important part! shakehead
 
I agree that it may not have just been able to show up on the MRI yet. Is your GP good with these things? Mine is wonderful and that would be my next stop. It took a year for me to find someone who could diagnosis my fistula, it was before I had my current GP. Amazingly it was an urgent care doctor that finally nailed it. I wouldn't just let it go, get another opinion.


~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 7/31/2009 2:40 PM (GMT -7)   

I think you should of had a ct scan instead of an mri.  An mri is good at seeing fistulas, but as far as abscesses go, you need a ct.  I always have had ct scans to find my abscesses....and they have found really little ones.

 

Another thing, I always call my surgeon when I feel "the pain".  My gi doesn't have anything to do with my abscesses...there is nothing she can do for them. 


cayer
Regular Member


Date Joined Jan 2009
Total Posts : 76
   Posted 7/31/2009 6:01 PM (GMT -7)   
thanks guys,

It may have gone down a bit from being on the antibiotics and did think that but wasn't sure why the pain would be the same if it had gone down????...also the surgeon is a great idea i hadn't thought of! I saw a Surgeon when my fistula wouldn't go away and he put me on infleximab which i believe put me in remission for 6 years, but when i told my GI how great i felt the infleximab was for me he didn't seem to care because through all my complaints he NEVER even talked about the possibility of using it again.

I will look into a ct scan for sure, im on it right now. Yesterday was rough and I made some big changes in how im going to handle my disease from now on and will see if it works ha ha.

Im trying not to be a drama queen but in the search to find what it is... would a cyst or another lump show up???
Tina 26yrs old Diagnosed in 2000 with Crohn's surgery for perianal abscess and fistulas
currently on Imuran 125mg Motillium for digestion used in the past Remcide, salofalc, pred.
Worst pain equal to child labor was after eating home made Granola...i can still hear the screams ha ha.


nawlinscate
Veteran Member


Date Joined Jan 2007
Total Posts : 656
   Posted 8/1/2009 7:56 AM (GMT -7)   
I had one perianal abscess, which was excruciating. Several months after it was lanced and healed, I began to get what I thought was the same pain. I had to take pain meds just to sit in the car and drive. So I raced back to my doctor--who told me that the pain was from my fissure (which won't ever heal). He said it actually looked as if it were better, even though it felt worse. So who knows?

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 8/2/2009 4:58 PM (GMT -7)   

Hi Cayer, I would say you8 are definitely not crazy, for those of us who know just how excruciating and debilitating abscesses are, we know that pain and how scary it is to think it might be ‘coming back’. I was ignored by my GI for years and he didn’t look at my abscess even when I had been sent to hospital to have it looked at under anaesthetic and treated with IV antibiotics. The only person who ever really ‘understood’ the pain and difficulty of the abscess was my colorectal surgeon. He put setons in for me and then – a few weeks later – when there was still pain there, I went in ASAP and he took a look and saw that the abscess still had remaining trapped sepsis, so they inserted a mushroom drain which I still have.

 

I would say get in to see a colo-surgeon ASAP because they know what to look/feel for and they understand! Let us know how you go!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/2/2009 5:13 PM (GMT -7)   
Cayer, are you treated through a suburban hospital, or do you go to one of the major teaching hospitals in the city? (RMH, MMC, SV, maybe BH - I'm using initials instead of their full name to protect your privacy).

You need to be aware that not all gastros can prescribe Infliximab. This needs to be done at one of the major hospitals, so if your gastro isn't prescribing, it might be because he can't... and it might be time for you to move up into the big-league.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/2/2009 5:19 PM (GMT -7)   
ps. I've been meaning to ask how your brother is - how is he holding up after February's trauma?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's


cayer
Regular Member


Date Joined Jan 2009
Total Posts : 76
   Posted 8/21/2009 6:39 PM (GMT -7)   
So sorry for the late reply guys my laptop died and have been offline a few weeks.

Hi ivy6,

My brother is doing well and lucky to be alive seeing as his neighbors perished in the fires. I flew over the fires on my way to Sydney and couldn't believe how big it was...its not enough to comprehend by hearing the size in numbers until you see the black go on and on and on I couldn't stop crying in the plane because you could feel the horror looking at it. My brothers wife and 2 kids where run off the road recently by a truck going in the wrong direction and flipped the car making it a rite off and everyone was completely scratch free thank god but another close call for them so not the best year for them but they are safe and thats the most important thing.

I did look into the specialised hospitals that have wards for crohns but when I did a bit of research into it they looked REALLY busy and on a sheet i downloaded for there appontment priority guide it said unless you have these:
Strong suspicion of cancer
Impending liver failure (eg severe and progressive jaundice)
Progressive dysphagia
Subacute GI bleeding
Severe inflammatory bowel disease
Significant lower GI bleeding
Suspected oesophageal foreign body
you have cancer

you will bee seen within 2 weeks and any symptoms ouside that is 2-6 weeks and to me that was an indication that they where too busy. I have found a great doc now and am really pleased with how pro-active he has been in finding out how to fix me and can squeeze me in within the week if I need so have high hopes at the moment even though all my symptoms are worse.

x x x Tina
Tina 26yrs old Diagnosed in 2000 with Crohn's surgery for perianal abscess and fistulas
currently on Imuran 125mg Motillium for digestion used in the past Remcide, salofalc, pred.
Worst pain equal to child labor was after eating home made Granola...i can still hear the screams ha ha.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/21/2009 7:37 PM (GMT -7)   
It sounds as if you have been pretty traumatised by the whole experience, Tina.

I think I can imagine what you felt in the plane. I was in a train that went through one of the affected areas, and everybody in the carriage just went dead quiet and *looked*. You could hear what everybody was thinking: there but for the grace of God...

I'm glad you have a great and pro-active doctor. That must make things easier, both emotionally and physically.

It's so incredible - and wonderful - that your brother and his family were ok after the accident. Hang in there yourself, ok?

I.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

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