Update: after the checkup

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manda panda
New Member


Date Joined Jul 2009
Total Posts : 8
   Posted 7/31/2009 2:45 PM (GMT -7)   
Well today was my check up and it wasn't as bad as i thought it would be. I got my new doctor and hes pretty good with me , so that's all good so far. We decided were going to take action and get this thing under control.
 
They discovered that i have become partially immune to the drug i am currently on; Imuran. Meaning im doing well with the drug and the drug is stable, how ever its not doing its full job.  So, now were going to do biologic infusions. We havent figured out what one we are going to do. There is a study that Macmaster hospital is doing with this one drug and if its ready in time for me we can do it for free covered by the hospital. But if its not ready we will have to do one of the other biologic infusion drugs. I might have to be in the hospital for 4-6 hours every few weeks for the infusion through intervenus or every month injected through a needle. Like i said were not sure what the exact plan is but i'm just thankful it's nothing like the feeding tube agian. *huge relief* If it came to the point i would do the tube feeding agian becuase it works SO WELL, but when your going through school and summer, it gets in the way. how ever it did get me a few advantages at the time lol ( special seeting at the backstreet Boys Unbreakable concert! smilewinkgrin ) lol but it does have its downfalls especially at my age.
 
well all went good! just thought i'd keep up to date from my last entry. THANKS!
 
*There are two ways to live: you can live as if nothing is a miracle; you can live as if everything is a miracle.*


Age: 15
Diagnosed in 2007 with Crohns disease of the small and large intestines. Almost died in september of 2008. Still on the road to get this into remision...
Currently Taking: Imuran ( to control the immune system from attacking) and other nutrient supliments such as: iron, calcium and vitamin D


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 7/31/2009 2:51 PM (GMT -7)   
I presume you're going to be on Remicade? I started that on Monday, so far I haven't felt much difference, but I was told it takes most people at least 2 infusions to get its benefits. It took me about 2.5 hours from the iv into my arm until the bag was empty.

Best of luck with your new treatment :)
Diagnosed with CD July 2007.
Hospitalized:
July 2007
August 2007
December 2008
January 2009
July 2009


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 7/31/2009 2:51 PM (GMT -7)   
Thanks for the update! It's great you found a doc you feel comfortable with.

manda panda
New Member


Date Joined Jul 2009
Total Posts : 8
   Posted 7/31/2009 2:52 PM (GMT -7)   
pimfram said...
I presume you're going to be on Remicade? I started that on Monday, so far I haven't felt much difference, but I was told it takes most people at least 2 infusions to get its benefits. It took me about 2.5 hours from the iv into my arm until the bag was empty.

Best of luck with your new treatment :)

Yes! thats it i couldnt remember what he said the drug was but thats it  so thnx for reminding me lol well i hope this treatement will help becuase im doing better but i wanna be at the best i can possibly be tongue


Age: 15
Diagnosed in 2007 with Crohns disease of the small and large intestines. Almost died in september of 2008. Still on the road to get this into remision...
Currently Taking: Imuran ( to control the immune system from attacking) and other nutrient supliments such as: iron, calcium and vitamin D


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 7/31/2009 5:07 PM (GMT -7)   
I was on Remicade when I was first diagnosed - it worked miracles for me for about 2 years. I led a completely normal life. The infusion is no big deal - except you lose out on most of a day. I brought movies to watch, snacks, laptop, magazines, etc and just chilled.

The other med, once a month injection, maybe be Cimzia.

There is another biological that's fairly common - Humira. It's every other week injection you do at home. I was also on that for 2 years, also worked great.

I'm now getting approval to start Cimzia so I can't give any personal experience on that one yet.

Good luck!
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