bowel obstruction,how does one know?

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Sunaddict
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Date Joined Jun 2009
Total Posts : 354
   Posted 7/31/2009 4:53 PM (GMT -7)   
I've done some research on bowel obstruction for crohn's, I only have crohn's in the small not large bowel. From the syptoms I've read it's sounds like I may have one. But I was hoping someone who has had this problem could give me their story and how it felt.
 
Every 2 months after starting remicade(done remi,on humira as of 2 weeks ago) I will end up in the hospital, from something I ate, triggers the suppose ulcer (scope 5 years ago said ulcer,but god knows what it could be now) and I throw up for hours before saying time for hospital visit. Before remicade it would be 3 visit's a week. In recent visits blood test are saying it's not a flar. But all the syptoms are CD. For the rest of the 2 months I have these awful pains (not like usual, same pain just different) always bloated, more gassy then usual. I'm hardly eating so it's not the food,when I do eat, it could take a few painful hours for the food to go down with nausea. Usual ending in having to take a gravol then just crash out.
 
Does any of this sound like a partial blockage? or maybe an ulcer that isn't crohn's related? CD in small bowl,stomach, colon. (from last scope done a little over 5 years ago) next one is end of sept. and my doctor never returns her message, so no way of getting ahold of her.
 
Thanks for any help in advance.
 
*Fustrated*
25 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Now on Humira and back on Imuran as well.RA pains all gone!


pimfram
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Date Joined May 2009
Total Posts : 506
   Posted 7/31/2009 5:09 PM (GMT -7)   
I've had a couple obstructions. Whenever I cannot keep food or water down I know it's time to head to the ER. I wouldn't necessarily rule out a flare, since they can come on quickly. In my experience, I'd say a flare, but everyone is different.

I would try calling your GI (or another GI since yours seems to be unavailable) or even the doctor's nurse and see what they suggest. Prednisone probably wouldn't be a bad idea.
Diagnosed with CD July 2007.
Hospitalized:
July 2007
August 2007
December 2008
January 2009
July 2009


Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 7/31/2009 5:47 PM (GMT -7)   

Thanks for your reply.

They wont treat me with pred anymore, they did 8 different times and never worked. So they stopped.

In montreal GI are very hard to get or you have to wait 6months to a year for an apointment. so I'm caught between a rock and a hard place. 

Like I was saying though my blood work is saying it isn't a flare. (werid)


25 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Now on Humira and back on Imuran as well.RA pains all gone!


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 7/31/2009 5:48 PM (GMT -7)   
For me they come on as unbearable waves of pain, some people call it cramps. I vomit everything in my system. As the waves come I am out of it and can just end up curled on the cold tile floor grateful that it's cold. I will be bloated and in pain leading up to it and can look pregnant even. Vomiting without that pain I attribute to other things.

Haven't they checked if you've been to the ER? They can see it with a CT and get an idea from x-rays, bowel sounds and feeling your gut... Are you passing any BMs?

Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 7/31/2009 7:02 PM (GMT -7)   

no.. they stop checking me with scans, they do x-rays but nothing ever shows, not even that I have cd, thats why it took so long to get diagnosed (10 years) one doc said I might have a blockage but sent me home said contact my gi. which is impossible, and I say so in the er.this is where most my fustration lies.

I've never had an obstruction so I don't know if it's that or the cronh's is getting worse.


25 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Now on Humira and back on Imuran as well.RA pains all gone!


aim928
Regular Member


Date Joined May 2007
Total Posts : 38
   Posted 7/31/2009 7:17 PM (GMT -7)   
I just had an obstruction and it was nothing like I had ever felt before. The pain was cramping or contraction like. I did vomit on the last day prior to going to er but prior to that no vomiting. Felt like I needed to though to feel better. Hope this helps.
DX in 2007. Was on Asacol for almost 2 years and the Entocort for 6 months. That has now stopped working so currently on Prednisone while trying to get up the courage to take Remicade.


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 7/31/2009 7:41 PM (GMT -7)   
How recent was your last blood work done? I went from having good blood work and then 2 weeks later I was in the hospital with a partial obstruction.
Diagnosed with CD July 2007.
Hospitalized:
July 2007
August 2007
December 2008
January 2009
July 2009


Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 7/31/2009 7:53 PM (GMT -7)   
aim928
feel like you! but then I do throw up that brings me to the er. then they send me home saying maybe you have a partial blockage, maybe it's crohn's flare, maybe it's not crohn's related. confused
pimfram
My last blood work was when I ended in the er on Sunday, then they did another one on Monday before they said go home.(my 25th bday) 
 
I guess I'll just deal with it until my next appointment (sept 2) hopeful our trip to Halifax goes well (sister in-law's wedding middle of August) hopefuly my gi will get my apointment for my scope moved up.
 
I really appreciate your reply's. Thanks so much.
25 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Now on Humira and back on Imuran as well.RA pains all gone!


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 7/31/2009 8:03 PM (GMT -7)   
That does seem a bit recent for much to go wrong. Maybe methlyprednisolone would work for you, since pred doesn't seem to. You would, of course, need a doc's approval for that.

I would still press the issue of talking to a doctor, say you're feeling terrible and need to try something. It may end up costing you another visit to the ER but when you have pain like you do, relief is priceless.
Diagnosed with CD July 2007.
Hospitalized:
July 2007
August 2007
December 2008
January 2009
July 2009


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 7/31/2009 8:24 PM (GMT -7)   
Just curious, but what will your bloodwork show if you have an obstruction? I was kind of wondering about this since I think I just had another one that seems to have went away yesterday. My CRP was still high, but improving from where it was before. I would think that for someone like Tracy, her bloodwork could be normal and still have an obstruction, especially considering that she's had the disease for a while and it could be from scar tissue.

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 7/31/2009 8:37 PM (GMT -7)   
^The scar tissue bit could very well be an issue, but I would think the CRP would be increased, regardless. Hard to say for sure, though.
Diagnosed with CD July 2007.
Hospitalized:
July 2007
August 2007
December 2008
January 2009
July 2009


Miss_82
Regular Member


Date Joined Jul 2006
Total Posts : 73
   Posted 7/31/2009 10:13 PM (GMT -7)   
Hi RA&CD132010, i'm from montreal also. Where are you being followed? I'm at Royal Victoria. Doc's ok but he never really seems to have time to explain anything in details...

As for blockage, last time i had that was about 3 years ago. It feels like i have a major cramp and can't move or do anything. Even sleeping in a confortable position was hard. I ended up in the hospital, hooked on IV and low residue diet. And major painkiller to make those cramps go away.
26 years old
CD for 20 years
Bowel resection in Dec. 2006
Pentasa 4000mg


Not2Spunky
Regular Member


Date Joined Feb 2008
Total Posts : 165
   Posted 8/1/2009 9:25 AM (GMT -7)   
For me obstructions are so painful, worse then labor
pains. They come in waves like contractions and center around my belly button. I have nausea and vomiting and hyperventalite with them. I go to the Urgent Care and they give me 75mg of phenergan and 50mg of demerol, put me on a liquid diet for 4-7 days and send me home as I refuse to go to the ER.
 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    


JD23
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 8/1/2009 1:06 PM (GMT -7)   
Just curious to those of you who had bowel obstructions.. but how do labs show it? what tests do they run to show an obstruction?

Not2Spunky
Regular Member


Date Joined Feb 2008
Total Posts : 165
   Posted 8/1/2009 2:55 PM (GMT -7)   
Xray or CT scan will show an obstruction
 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    


JD23
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 8/1/2009 2:56 PM (GMT -7)   
Yeah, I know the CT's will and X-rays, but people were referring to blood work/labs that were normal. I was wondering on the tests for blood work and labs..

thanks.

Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 8/1/2009 6:04 PM (GMT -7)   

Hi guys! I appreciate everyones reply's.

Hello Montrealer! ;) I go to Lake Shore (8 mins to my door to their door) but they get me stable do a blood test and xray and send me home. I heard the Jewish is the best, they have a floor just from crohn's and colitis. And it's only GI on this 'cd floor' how it's at the royal?

It seems from everyone's experience I don't have an obstruction, I don't feel worse then labor, and my bloating isn't the size of a pregnant belly. So I'm just so confused as to what the problem is, why I am always sick nausea, hardly able to eat. I know when my crohn's is doing good, I've had good months, this is just odd. Especially since my blood work comes clean.

It's a good question, i mean would it show on the blood work? I've done a millon ct and xray before they knew I had crohn's. They couldn't tell anything from those test. They keep saying for 10 years nothing was wrong with me, probably just a stomach flue.


25 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Now on Humira and back on Imuran as well.RA pains all gone!


Not2Spunky
Regular Member


Date Joined Feb 2008
Total Posts : 165
   Posted 8/1/2009 7:05 PM (GMT -7)   
I am always nauseaed, throw up when brushing my teeth. I thought it was the meds. Went off everything and still always nauseaed. I don't know why. My blood work is never fine Sed rate sits around 40 and everything is way off. HBG around 10.5 and elevated white count to name a few. There is no blood test that I kow of that will show an obstruction, only if the CD is active or not.
 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    


aim928
Regular Member


Date Joined May 2007
Total Posts : 38
   Posted 8/1/2009 9:46 PM (GMT -7)   
To be honest this was my first obstruction and I thought it would have felt worse than it did. Yes it was the worse pain I had been in with my Crohns but again, it wasnt constant. Evening was worse, cramping like contractions, nausea and the pain was around my upper abdomen. So I kept telling my GI doctor that I thought it was something else. He finally said lets do labs and ct. So labs showed a little elevated WBC but SED rate was lowest it had EVER been! The next day I go to have ct done and it showed obstruction big time. So to me I was surprised as well that labs did not indicate this. On the other hand I was already taking prednisone. And I could tell that it would help within a few hours of taking it in the morning. I am hoping at this point that we (drs and I ) did not jump the gun and have surgery to early. But I missed more work in the last 3 months than 2 years. And I have to keep my job. Plus I was already taking Humira and it wasn't do anything after the first 4 doses. So I felt helpless at that point.

Good luck. I can tell you next time I will go to ER sooner. I was at work when they did my CT scan and the radiologist came in and said you should not be at work. And told me not to eat anything and go to the hospital. Oh well, I will know what it feels like next time. Again good luck..if I was you I would press the issue a little sooner.

Amy
DX in 2007. Was on Asacol for almost 2 years and the Entocort for 6 months. That has now stopped working so currently on Prednisone while trying to get up the courage to take Remicade.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/2/2009 7:20 AM (GMT -7)   
Nausea has always been one of my biggest clues that I had a stricture.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

uklass
Regular Member


Date Joined May 2009
Total Posts : 65
   Posted 8/2/2009 8:44 AM (GMT -7)   
I've just come out of hospital after the same thing - I was feeling 'full' (a bit bloated) and generally lethargic then started having waves of pain/spasms across my upper belly (above belly button). I then started to feel sick by which time the spasms were becoming more painful and I was coming out in a cold sweat. I did not have a fever. A normal abdo x-ray didn't show anything  but blood test showed raised white cell count so they knew some inflammation/infection was going on. They knew it wasn't a full obstruction because I had a small BM that morning and some gas but suspected a narrowing/stricture caused by active Crohns or scar tissue because of my history. They had also ruled out bacterial infection/salmonella etc.............leading to 2 days on IV fluids to clear the sytem and rest the bowel and colonoscopy showing flare up of disease at original resection site causing narrowing & partial obstruction. I don't know if I could have avoided the hospital visit if I'd gone on a low residue/liquid diet earlier as the symptoms were vague until spasms started then I don't think I could have ridden it out - anyone got a view on this I'd be greatful too
 
Hope this helps
 
Penny
diagnosed aged 31 in 1996 - emergency surgery (right hemicolectomy). Thought I'd only get 'it' once and have lived in relatively blissful ignorance, apart from a couple of hospital stays for obstructions (scar tissue), until March 09....major surgery, 2 resections, fistula and now only 195cm small bowel left. Not on any meds at present except B12 injections but know there will be some. Just getting used to my 'new' body and it's limitations........
 
Penny x


Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 8/2/2009 9:29 AM (GMT -7)   

so it's possible in other words to maybe have a partial blockage, and it not show up and blood work?! I've had crohn's all my life, blood test always came out clean, thats why they never knew I had crohn's untill one day a docotor said lets to a scope.

I know something isn't right, feel like to 2 last post felt. I'm surviving this, and hopefuly up until my next scope at the end of sept.

I'll probably have another er visit before then, for them to stable me and send me home.

Hope all of you are feeling better.


25 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Now on Humira and back on Imuran as well.RA pains all gone!

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