B12 - does anyone else get tired when due

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littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 8/2/2009 12:23 PM (GMT -7)   
I had 4 shots of vitamin B12, one a week for a month, that was 3 months ago. My next B12 shot is due next Thursday, and about 2 weeks ago I started to feel really tired, yawning all day, needing 12 hours sleep a night.
 
My GI said that I can only have it every 3 months, I cannot have it any sooner (thats the NHS for you). She told me that many patients tell her they feel tired as they get nearer to their B12 shot been due. But that she is unsure as to why as the B12 readings are ok for these patients including me. So why do I feel so tired. Am I just thinking that Im tired because I know the shot is due or is it genuine.
 
Does anyone else experience this.
 
Im hoping I will be bouncing with energy next week 


Diagnosed 2005.
 
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections, asacol

Post Edited (littlemissmuffet) : 8/2/2009 1:26:57 PM (GMT-6)


Kriss
Regular Member


Date Joined Mar 2005
Total Posts : 357
   Posted 8/2/2009 3:06 PM (GMT -7)   
Why does she tell you you can only have it every three months? I get mine every 4 weeks... I definitely notice when I'm getting close. And the next day or 2 after I get it I'm noticeably LESS tired.
32 year old female... diagnosed with Crohn's at age 16, then with proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, 20mg Prednisone, Bentyl and Percoset as needed... just started Remicade


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/2/2009 3:14 PM (GMT -7)   
I used to get mine every month, then my numbers went down and now I have to get them every 2 weeks. I would ask to look at my numbers. B12 shots are one of those things like insulin that you can do yourself (or like me, have your husband do, cause I'm a chicken), so its really easy. And cheap. I just picked up my syringes and paid less than .30 cents each, I think the actual B12 is less than $5 for a 3 month supply. Certainly nothing that you can't pay out of pocket for if it helps.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 8/3/2009 2:42 AM (GMT -7)   
I also need a B12 shot every two weeks, or I start getting very tired after about a month. I also take iron supplements orally - the B12 is needed to help absorb the iron, so the iron pills are not much use without the shots.

Littlemissmuffet, I suggest following Suzanne's advice and doing your own B12 shots. That's what I do. You only need to inject yourself IM (not IV) and this is not so difficult. If you've never done it before, it would be good if a nurse showed you how. I'm not sure what the rules are in the UK about buying needles and syringes and B12 in ampules - here in Taiwan that is all available across the counter. I reckon it costs me about US$1 per shot.

cheers,
Robert
Crohn's since 1988
3 resections


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/3/2009 7:08 AM (GMT -7)   
Yes I was like Zanne and was getting shots monthly, but it wasn't enough for me, so I started getting them bi-weekly and it really helps. I even start getting tired a couple of days before my next one, so for that you are not alone.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 8/3/2009 8:31 AM (GMT -7)   
Thanks for all the replies - I will have to see how I perk up after the next shot. Here in th UK I dont think yoiu can buy B12 to administer yourself, You have to take what the NHS gives out. I will certainly consider asking my doctor though about the possibilty of every 2 months
Diagnosed 2005.  41 year old female living in UK
 
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections.


rack
New Member


Date Joined Jul 2009
Total Posts : 11
   Posted 8/3/2009 4:15 PM (GMT -7)   
i have mine every 3 mths i get really tired 2 -4 weeks before when due and could sleep 24/7.......i have also been told for yrs they wont give me it more often ..but last time i went the nurse did change it to 10 weeks which i was well chuffed...hopefully

littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 8/6/2009 8:10 AM (GMT -7)   
Just an update. Have just had my B12 shot, my nurse tells me I was 3 weeks late for it ! I got my appointments mixed up. She said this was why I am so tired. I can still only have it every three months but the nurse said I could get away with two weeks early - so I mite try that. I am hoping to be full of energy this weekend. Ha ha - well you never know.
Diagnosed 2005.  41 year old female living in UK
 
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 8/6/2009 6:22 PM (GMT -7)   
I'm really curious about these...can any of you tell me the process you went through to be able to take them? I am tired all the time...I can't wake up before 11:30 anymore, and that is after 10-12 hours of sleep!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 8/7/2009 12:13 AM (GMT -7)   
HI LMills

I had a blood t st to check my B12 levels and ferratin (iron) levels as a routine check at the doctors. Although I have blood tests every 8 weeks this had never been checked before. I was lacking in B12, B12 helps you to absorb iron. I now get B12 shots every 12 weeks. Normally pepele get B12 via food but us crohnies - our body wont absorb it. I was told your body can keep going quite a while on the stores it has. I also take an iron supplement - although I know not everyone can tolerate this.

smilewinkgrin


Diagnosed 2005.  41 year old female living in UK
 
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections.


Anna-M
New Member


Date Joined Oct 2009
Total Posts : 4
   Posted 10/25/2009 1:43 PM (GMT -7)   
I do my own shots and the DR says I can take them every two weeks. I get my meds by prescription.
Initially I was having them twice a week, then once a week, then monthly. After a cpl months of just monthly I was anemic again and so we went back to every two weeks.
I can see no reason why he would be stingy on B12. Insist on more frequent doses. It's not like it's going to hurt you. I think some Drs are just nuts with control issues.
If my dr wasn't the way he is, I'd just mail order it, as it's cheap.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/25/2009 1:55 PM (GMT -7)   
umm ...You can get out of bed, even when you are late? I am kinda of making light of the situation. I have gotten so low I could not stand up without passing out.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

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littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 10/25/2009 2:57 PM (GMT -7)   
The only time I couldnt get out of bed was when I had a big liver problem. Most of the time I can force myself to get up. I have to to go to work. Lucky for me I work flexi. Not sure ill make to work tomorrow though. Havent eaten all day cos of constant bowel pain.
Diagnosed 2005.  41 year old female living in UK
 
Current medication  -  infliximab infusions, ranitidine, Vitamin B12 injections, anti depressants


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 10/25/2009 5:43 PM (GMT -7)   
My G.P. watches my B-12 very closely...
He is aware and almost over protective of my B-12,and rate to absorb.
Wondering why your Dr's don't let you have more...
I've complained to my gastro about being tired all the time and he said
"Of course your tired, you have active Crohn's..."
Grrrr...
B-12injections,Pentasa,Loperamide,Entocort,6mp,Hydrochlorothiazide,8 week
Remicade,vitamin-D,Fluconazole(yummy).More over the counter vitamin-D
Remission since surgery and 8-week Remicade.A real freakin medicine cabinet...
.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/26/2009 6:01 AM (GMT -7)   
Whats sad is you really can't o'd on B12. I get my shots thru my insurance every 2 weeks and then I take one at home in the weeks between. Nothing bad has happened to me. IMO
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 10/26/2009 12:44 PM (GMT -7)   
I just love you folks!! This weekend,I could NOT hardly get out of the bed. Even stong will and fussing at myself did not do it. Yep, you guessed,4 weeks since my last B12 injection. I thought 2cc would last a little longer. Well,it does not heal that abcsess, however I am up and about. I honestly am not sure what I would do without all of you!

Mary Lynn


mull
Regular Member


Date Joined Feb 2009
Total Posts : 86
   Posted 10/26/2009 3:41 PM (GMT -7)   
ya always about a week before i thought it was just me
im a 40 yr old woman who has CD since 1993..
current medication is pentassa and purinethol.


momoftwo
New Member


Date Joined Jan 2003
Total Posts : 14
   Posted 10/26/2009 4:06 PM (GMT -7)   
Hi!  I get B12 injections every 3 weeks - 1500 mcg.  Please everyone, if you are having difficulty with exhaustion - inisist that your doctor gets a blood test done to see where your levels are at.  Lack of B12, can cause some nasty side affects besides just feeling tired.  You need B12 to thrive physically and mentally.  Its also known as pernicious anemia --- look it up. 
 
 

SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 10/26/2009 5:02 PM (GMT -7)   
i get
b-12 inj.every month for Pernisious Anemia
SnowyLynne


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 11/3/2009 4:47 AM (GMT -7)   
Littlemissmuffet, you are quite right that you can only get B12 injections through a prescription in the UK. At least, that was the information I found when I was trying, yet again in vain, to get B12 to relieve my severe chronic fatigue. The answer I have always gotten is that you only need it if you have had your bowel removed. eyes
However, while searching to see if I could get the nasal spray that I had heard about, I discovered that the sublingual variety of B12 pill, that dissolves straight through the membrane under the tongue into the bloodstream (not through the gut, which is useless to us), is now available from health food stores. I got some of that, and what a difference ! yeah turn
I don't know if this is the same as the B12 in the injections - I believe there are different forms it comes in - and it may not work as well, but it is certainly worth a try. What I have found is that it works best when I have all the other nutrients I need - miss any of them and its effect is much diminished. This is probably because it the body uses it as a catalyst in reactions, so if any other ingredient is lacking then it can't do the job.
The next time your medical care provider tells you that you store a water soluble vitamin that is composed of cyanide and cobalt stuck together, please ask them where and how it is stored, I was under the impression that medical dogma stated that watersoluble vitamins not needed straight away are excreted through the urine, this is why taking most supplements is supposed to be a waste of time !
You might also want to tell them that the Mayo Clinic did an experiment years ago, where they rated patients for severity of symptoms against the clinical deficiency scale for B12, took blood samples to check blood B12 levels, then gave them B12 supplements. What they found was that even when in theory the blood levels were only at the low end of the "normal" range - not officially deficient - symptoms of deficiency were still clearly present. Their conclusion was that the clinical deficiency scale used was incorrectly calibrated (it dated back to the 1930s when the technology was primitive and readings likely to be inaccurate)and needed updating.
shakehead I guess the word just didn't get out to the general medical population, the paper must just never have been cited. sad

sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 11/3/2009 5:44 AM (GMT -7)   
I also get really tired when I'm due for a shot (I get one per month) and unfortunately that is right now... One week to go!
19 y/o female, diagnosed crohns december 2008
currently taking 500 mg pentasa 4x daily

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