How often do you get colonoscopies?

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Veteran Member

Date Joined Nov 2007
Total Posts : 4055
   Posted 8/3/2009 3:09 PM (GMT -6)   
I am just curious about how often your GI recommends colonoscopies? My doc says for me (mild Crohn's disease) I should go every 3-4 years, unless I am having severe symptoms. What about the rest of you?
50 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 8/3/2009 3:35 PM (GMT -6)   
I went through a period of time where I had about 10 in a year or so, and most of those had endoscopies as well. I was having a lot of trouble and they couldn't figure out why. I have now been having them about once every 18 months or so. But I saw my doctor in May and thought for sure he would order one since I have gradually been feeling a bit worse over time, nothing major, just a little bit of increase in symptoms. But since all my blood work seems fine, he doesn't want to do any further testing. Not sure if I'm OK with this or not. I did see him just a few days after his wife had a baby so maybe he was off his game.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Veteran Member

Date Joined Mar 2006
Total Posts : 1034
   Posted 8/3/2009 5:13 PM (GMT -6)   
my GI said every 3 years unless something warranted it. this seems to the norm from what i have heard from others about the frequency of colonoscopies.
Crazy Harry

Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07

Regular Member

Date Joined Jan 2009
Total Posts : 209
   Posted 8/3/2009 9:11 PM (GMT -6)   
Did one a year for 4 years( post surgery)
Now every other year(at my request)
B-12injections,Pentasa,Loperamide,Entocort,6mp,Hydrochlorothiazide,8 week
Remission since surgery
and 8-week Remicade.

Veteran Member

Date Joined Jul 2008
Total Posts : 674
   Posted 8/3/2009 9:16 PM (GMT -6)   
I do one about every 2 yrs or so. I havent had one in a year and I recently had a resection with no relief, Im going to request that I get one when I go to see him on the 14th.
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 8/3/2009 9:20 PM (GMT -6)   
My GI explained that at first it's ok to do them 3 or so years apart, then once you've had CD for over 10 years you should have them yearly. She lets me go closer to a year and a half to 2 years as long as I'm not having symptoms or obstructions.

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05
Currently on Humira, Prilosec, Effexor, Seroquel, Calcium, Vit D, sublingual B12; phenergan, ultram, clonazepam as needed

Veteran Member

Date Joined Nov 2005
Total Posts : 1338
   Posted 8/3/2009 9:29 PM (GMT -6)   
It was every 2 years, but the last 2 looked good so 3-5 before the next one (unless something changes).

D&G's Mommy
Regular Member

Date Joined Jan 2005
Total Posts : 185
   Posted 8/4/2009 6:24 AM (GMT -6)   
I just had mine last week and have some activity by surgical site. Oh, joy. I have to go every two years.
Mommy to a 5 and 6-year-old
Currently on Humira, questran from time to time.
Using acupuncture.

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