The way you think about your illness in a good way.

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isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 8/4/2009 1:45 PM (GMT -7)   
Do you sometimes think "better me than somebody else" ?

I do all the time when people are feeling sorry for me for being so sick :)
I think about my Fiancé who could never lie in bed the whole day or my mom who hates all the things related to doctors and begin sick.
Or my dad who Loves going fishing and staying out in the nature where there are no WC :)

I don't love begin sick if I had a choice I be healthy, but if someone has to be sick I would want it to be me.

I believe that God never gives you more than you can handle.

Of course I feel sometimes sad about all this stuff but I never think "why me?"
I am a good patient I do what my doc tells me I learn about my Diseases, I learn about my blood work and the test results
And I am really interested in what is happening with my body.
I am also really active in fixing my head and thinking straight of course I get depressed like in my previous post (I am not perfect) or anxiety gets me but then I talk to my shrink and we fix me :)

Just wanted to post something on the bright side ;)

Hope you all have a good day.
24 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
Crohn's disease in December 2008 Then they changed it to UC in June 2009.
and Autoimmune Hepeatitis in July 2009


Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/4/2009 1:53 PM (GMT -7)   
Isergodur,

That was an awesome post! I have thought many times, I am glad its me and not those I love. I also think God puts those special people in our lives there for a reason. For example, I have the most loving and kind husband. This man takes care of everything in the house, so that I don't have to worry about it. He also massages some part of body every single night because he understands how much I always hurt. So I agree with you, I am glad its me and not one of my children, grandchildren, siblings or beloved husband. Good post!

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 8/4/2009 2:59 PM (GMT -7)   
I have felt that way. It kills me to think that my younger siblings could ever be diagnosed with anything like this disease. I truly hope that they dont..but I feel like Crohn's has given me a great perspective on life that I never, EVER would have obtained had I not been ill.

I do feel regret about being ill now and again, but that stems from personal issues lying outside of Crohn's. The only time I really feel ill at ease is when I have to consider the future. I'm excited, but I'm also afraid of the bad things that lie in wait. We're a breed that knows for certain we will be in the hospital, that we will be extremely ill, and that we will have to plan around all that those imply e.g. bills, future plans, relationships.

In the end though, it is definitely possible to view our diagnosis as a blessing. It helps..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 8/4/2009 5:47 PM (GMT -7)   
I would never ever wish this on even the worst of persons...I would never want to even entertain the possibilityof giving this disease to my child (in my family, there is a strong hereditary component), I was on the fence before, this just kinda sealed the deal. However, in what it has stolen (oh so much), it(the disease), has also given so much too...I've learned to cherish each breath, the feeling of my muscles working, hearing my heartbeat, hearing my husbands heart beat, watch the birds, smiling at the flowers, giggling with the butterflies...

Nanners, Isergoder...I am glad it is me...I would rather take it, than to see my DH, or father, my siblings ill. Alas, my sister suffers too...

this isn't to mean that I don't rant and calmly accept what is my "new normal"...I want my "old normal" back anyday!!!! It seems that I go through all those steps of greif everyday...sometimes multiple times a day...if I'm lucky, I get to have only one "stage"...but I've learned to accept this too..
"The earth laughs in flowers"


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 8/4/2009 6:30 PM (GMT -7)   
I've learned a lot of good things from this DD. It makes me seize all the moments I can and appreciate everything. Also glad it's me and not family. My hubby certainly would not handle this well, same with my mother and other relatives. I always handled GI things easily, even stomach flu, so glad it was me if anyone.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/4/2009 6:39 PM (GMT -7)   
Better me then my supportive members of my family, but to the unsupportive ones maybe I am just not out of the angry stage yet...
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 8/4/2009 7:06 PM (GMT -7)   
Great post!
I too, do not wish this on anyone...
I'm fine with my destiny of whatever...
I still feel for those guy's doing the chemo...
Wow am I lucky.
B-12injections,Pentasa,Loperamide,Entocort,6mp,Hydrochlorothiazide,8 week
Remicade,vitamin-D,Terbinafine,
Remission since surgery
and 8-week Remicade.


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 8/4/2009 7:06 PM (GMT -7)   
I'm the same way, I've ever really been upset about my diagnosis (I was actually relieved..everyone, including my doctor thought that it seemed like I had cancer or something). I haven't had Crohn's for very long, but in a way it makes me feel better because I know I'm not just imagining what's going on with my body (I started to wonder for a while), and I really enjoy learning about this disease. I really hope to get more involved and hopefully help out with finding a cure, so that some day no one will have to live with this disease. I really believe that everyone will have some sort of medical problem, some will last for your whole life, but I'd rather have Crohn's than something deadly. Makes me really appreciate what health I do have and makes me want to take better care of myself.

littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 8/5/2009 7:02 AM (GMT -7)   
My illness makes me more aware and more sympathetic to others problems, especially ill health. I am greatful that I do not have something much worse. I am strong enough to cope where as some others I love (such as my dad) wouldnt.
I am glad that it makes me realise that the little problems are not important.

It has made me see that money and happiness are not as important as health .Good health makes the other two possible.
Diagnosed 2005.  41 year old female living in UK
 
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections.


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 8/5/2009 9:56 AM (GMT -7)   
It's been 19 years since I was diagnosed....I definitely have found that better me than a lot of people I know. In the first years, I grumbled and self-pitied a lot. Then i realized that this actually makes me a more outgoing person than i was before diagnosis. I relish in the days where i can dance, walk the stores, travel, garden or generally enjoy the company I keep.

I just went to my 25year high school reunion. the strangest comment I got was "were you always this much fun?" I always thought I was, but I think I am more fun now that I know to dance my heart out, talk to everyone, laugh out loud a lot & enjoy the good days.
Oh the other strange comment was..."I don't remember you being part of the popular crowd, but I guess you were because you are tonight". Nope, not "popular" just vivacious--my new favorite word.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

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