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MissCris
Regular Member


Date Joined Jun 2006
Total Posts : 320
   Posted 8/5/2009 6:14 AM (GMT -6)   
Ok so I have had very little sleep so bear with me. When I first got sick there was one or two times that I had really severe rectal pain, like sharp stabbing pain that radiated to my vagina as well. It was so bad I would lay on the ground begging for god to kill me. Other than that I really haven't had any kind of pain like that in the 4 years or so since I've been dx'd....until about a month ago. It hasn't been as severe (or I'm just more tolerant of pain now) but it has been pretty much daily for the last month. Sometimes it is like a really sharp shooting pain which made me think it was muscle spasms but sometimes it is this constant dull pressure kind of pain and it makes me insane. I feel like if I go to the bathroom it will help but usually I can't go. When I can go, sometimes it feels better for a little while but usually comes back. I can't pinpoint anything that sets it off and nothing seems to help. It happens when I'm at work walking around, when I'm sleeping, whenever.

Last night I wake up at like 3am to pee and my lower abdomen starts cramping and I feel like I have to go. I was on the toilet for about an hour and went about 8 times. I have been kind of C lately (obviously by my standards not medical....like less than 3 times a day and pretty dry) because of all the Tylenol PM and vicodin I have been taking. The pain started before the "C" though. Finally I managed to remove myself from the toilet long enough to take some vicodin but I'm still having cramps and rectal pain. I haven't talked to my dr yet because when I went for my infusion last Friday, it was a dr that I don't like so I was waiting for this week to talk to a different one. I called yesterday but haven't been able to talk to anyone yet.

Has anyone had any pain like this? I just don't know what could be causing it since it has only started recently and I can't live on 2 hours of sleep a night and vicodin forever.
"Be ashamed to die until you have won some victory for humanity" ~ Horace Mann


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 8/5/2009 8:12 AM (GMT -6)   
Vicodin and various pain meds can be very constipating. Since I HAVE to take my pain meds, I also take stool softners to keep things soft enough to pass. Maybe they might be of benefit to you too. Another thing to ask your doctor about is something for the spasms i.e. Bentyl, Levsin or Librax. That might help to give you some relief. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MissCris
Regular Member


Date Joined Jun 2006
Total Posts : 320
   Posted 8/5/2009 2:51 PM (GMT -6)   
The thought of a stool softner scares me. I amnot always backed up. It's usually the opposite. I've had 3 accidents in the last month and I don't want to cause any more :) I've been on bentyl before and it made me so sick it just wasn't worth it. They mentioned it as a possibility when I was there on Friday until they heard how sick I got. I tried calling again today but couldn't get through again :( they just moved buildings and I think they may be having problems with their phones. Wish me luck and sleep :)
"Be ashamed to die until you have won some victory for humanity" ~ Horace Mann


kyle Nelson
Regular Member


Date Joined Sep 2008
Total Posts : 28
   Posted 8/5/2009 3:03 PM (GMT -6)   
i have had this exact pain. i describe it to my friends and parents as "the butt lightning." lol. it seems to just strike like lightning and the pain is furious. it definitely feels like waves of pain. after the pain, i can hear food crunching it's way through my stricture. the less fiber i eat, the less chance of getting butt lightning.

eljay1066
Veteran Member


Date Joined Jan 2003
Total Posts : 3166
   Posted 8/6/2009 6:35 AM (GMT -6)   
Just wondering, has the doctor checked for a fissure? Usually, with that, the pain comes AFTER a bout of D, though, not before. I am guessing yours is somewhat higher in the rectum. For fissures, though, there is something called Adamantin, or something like that, and it's the only thing that soothes my butt when it is raw, with or without a fissure. Hope you find a good answer and lots of relief.
Take care. Lois

MissCris
Regular Member


Date Joined Jun 2006
Total Posts : 320
   Posted 8/6/2009 5:47 PM (GMT -6)   
lol @ butt lightning. That about sums it up half the time lol. I can kind of deal with it when it is really sharp pains because it goes away after a few minutes. Its this forever-lasting dull pain that I can't take anymore =( It makes me so uncomfortable, I am constantly shifting and moving like a crazy person because subconsciously I think that the pressure will go away if I move -just- right.

I don't think its a fissure because it doesn't hurt more when I go to the bathroom and I haven't had any bleeding or anything. I did have a lot of mucus recently kind of off and on. I'm wondering if the inflammation has started to venture. I finally got ahold of someone today and the dr wanted me to drive out there an pick up a mesalamine enema. Of course I wasn't in pain at the time and its an hour drive so I asked them to just mail it to me. Well now its hurting and I'm kicking myself in the arse :( I wish I had driven up there to get it. At the time all I heard was enema and was like psh what is that going to help but now I realize its medicine =\ *big sigh* They said if the enema doesn't help I need to be evaluated at the ER. I don't really want some dumb ER doc poking around in my butt lol...they don't know what they are doing. I may just try to make an appointment if it doesn't get better...I think I'm about due for a colonoscopy anyway =\
"Be ashamed to die until you have won some victory for humanity" ~ Horace Mann


CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 8/7/2009 8:48 AM (GMT -6)   
I used to have rectal pain all the time. Kinda of a constant pain but also with a SHARP SHOOTING pain in the rectum, and lower back i'd feel it also. Usually meant my actually rectum was inflammed, Since I had Crohns Colitis. Actually whenever I would have real bad lower back pain I could take some Flagyl and it would help quite well for my pain especially how sharp it was and it being in my lower back. A fissure wouldnt necessarily hurt you, whether moving or not. All it is a tunnel, its not like an abcess, with something because it inside of a pocket.

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 8/7/2009 11:26 PM (GMT -6)   
Me and this rectal pain have gotten to be quite friends. Just some background, I've had fissures and some surgeries. The worst pain ever was a necrotized strangulated hemorrhoid. I was begging the Almighty for death...instead I got 2 surgeries. I had soft to D type of stools prior to this, months and months....just letting you know this because has anyone looked? You can feel or even look in a mirror or have a significant other do it for you. The feeling part hurts too. I hope you fine resolution
"The earth laughs in flowers"


Kriss
Regular Member


Date Joined Mar 2005
Total Posts : 357
   Posted 8/8/2009 7:05 AM (GMT -6)   
I have had something similar and the docs told me it was proctitis... Canasa suppositories are absolute lifesavers at those times!!
32 year old female... diagnosed with Crohn's at age 16, then with proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, 20mg Prednisone, Bentyl and Percoset as needed... just started Remicade


MissCris
Regular Member


Date Joined Jun 2006
Total Posts : 320
   Posted 8/8/2009 7:25 PM (GMT -6)   
Thanks for the responses. Some good info to consider. I don't have any cd in the colon as of the last scope but we know how it likes to travel. The mesalamine enema may help if that's the case. I haven't really heard much about strangulated hemmies. I do have a little pain with pressure if I kind of press on my lower cheek upward toward my rectum. I know that sounds like a weird thing to do lol but I'm sure you guys know how it is when you're in pain...poking and prodding everywhere to see if you can get some relief or at least make it worse to have a better idea of what is going on. Anyway with that extra pain with pressure it would make sense that something is in there. I had more mucous today too. Has anyone gone to the bathroom and only gotten mucous or mostly mucous? I don't know what causes that. Still kicking myself for having them mail the enema instead of picking it up :( thanks again guys. Good stuff to look into and I'll def get it checked out if it doesn't get better
"Be ashamed to die until you have won some victory for humanity" ~ Horace Mann


MissCris
Regular Member


Date Joined Jun 2006
Total Posts : 320
   Posted 8/9/2009 12:37 AM (GMT -6)   
wow I finally got a chance to look up some of the stuff you guys said and proctitis is so dead on. The good news is that the enema should really help but bleh....

Again, thank you thank you :)
"Be ashamed to die until you have won some victory for humanity" ~ Horace Mann


photoman66
New Member


Date Joined Jul 2012
Total Posts : 1
   Posted 7/17/2012 6:08 PM (GMT -6)   
I was diagnosed with prostatitis about 6 years ago. When I first noticed it, my rectum and anus would hurt and I'd have to go pee quiet frequently. At the time I first noticed it I had been drinking water to try and get off of soft drinks but that is when I started having the symptoms. when I had the prostatitis checkup my prostate hurt so bad that when they were doing that finger up the rectum thing (can't think of what that's called) the doc said that it was unusual for someone to be so sensitive. the strange thing was that I noticed that tobacco would cause it to flair up and my whole rectum and anus was in pain. I was out of work for six months and was in so much pain that I could hardly walk and sitting down was quiet painful. this may sound weird but it felt like I had a corn cob shoved up my rectum. I drive a tow motor and there was a time that it was just unbearable. I'd have to get off the tow motor constantly and go to the bathroom to pee. it got to the point where I would have to get up constantly at night and go to the bathroom too. I've had occasional abdominal cramps for years before the prostatitis came on and sometimes the pain was so bad that I'd have to squat on the ground until the pain went away and I knew then that something wasn't right. It was during the time of my six month leave that I went to my doctor and was overwhelmed with anxiety. He noticed how upset I was and prescribed me clonazepam and it helped me out majorly. Enough so that I was able to go back to work. It has helped me more that anything else that I've been prescribed but I've still never completely got over the discomfort and pain. I recently had a colonoscopy after having more flair-ups and they said that everything looked clear and healthy. I can't understand how it can hurt but look normal. I've never had stool problems other than when I have abdominal cramps and then I get the runs after which my rectum increases with pain, pressure and discomfort. I've taken meds for IBS with no results. I'm just not sure exactly what is going on. I wouldn't think that prostatitis would cause so much discomfort in my intestines and anus. I would have thought that having so much problems with my rectum and anus would have shone up when I had the colonoscopy but they said that my results were excellent. I'm totally confused and don't know what to think.

Chrissy77
Regular Member


Date Joined Jun 2012
Total Posts : 100
   Posted 7/17/2012 6:29 PM (GMT -6)   
My gosh- maybe this is what i have. This is the whole reason i got a colonscopy -- except they just saw inflammation at the TI and that is how I found i have CD.

I have a dull pain that comes and goes- if felt like tailbone pain but it makes no sense about when or what triggers it. Sometimes it is worse during a BM. The closest explanation l have heard was arthritus in the tailbone or sore ligiments. I have had this pain pretty constantly for 6 months and I can't figure it out!

Does it always have a shap pain? Can the dr see this during a Colonscopy?
diagnosed May 2012- haven't started meds and scared to
currently taking natural supplements from my naturopath but no improvement yet
gluten free June 2012
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