Crohns and recurring abscess

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dancingwithcrohns
New Member


Date Joined Aug 2009
Total Posts : 4
   Posted 8/5/2009 8:28 AM (GMT -7)   
I was diagnosed with Crohn's disease in 2005 and since have tried many different drugs. Prednisone seems to work the best and I am currently taking 20mg as well as 50mg of the 6mp. about a month ago I had a perianal abscess and had surgery to get it drained. They did the seton treatment as packing and finally yesterday after 5 weeks of having these darn rubberbands in, they were taken out. Now the abscess is back and it won't stop draining. It came back before and the doc called in some antibiotics for me and that was that. I feel like it's never going to go away! Has this happened to anyone before? Any advice or words of wisdom???

KEANO
Regular Member


Date Joined Sep 2008
Total Posts : 76
   Posted 8/5/2009 12:19 PM (GMT -7)   
Hi dancingwithcrohns,
 
I know exactly what you are going through.  I had an abcess like that and it would not stop draining.  Very uncomfortable.  I found wearing pads helped , and also kept staining away from my undergarments.  Eventually the only thing that cleared up my abcess was Remicade.  I am on it now for 3 years and thank god it has kept those abceses away.  Hope this is of some help to you.

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 8/5/2009 2:57 PM (GMT -7)   
Why did they take the seton out? Mine will be 3 years old in Sept. And I have no plans of taking it out. I had abscess after abscess until the seton was put in and I have no intention of going back to the life of recurrent abscesses.

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/6/2009 4:54 AM (GMT -7)   
I agree -- why did they take out the seton? If there is a fistula, you will continue to get drainage from the rectum. With no seton, the fistula can get plugged. It sounds like that is what happened here. The best treatment for an peri-rectal abscesses is to cut it open, scrape it out, and let it heal with out stitches or packing. Not draining it only. The seton will keep the fistula open.

I am not clear on what was done to you, but you may want to get a second opinion with a colo-rectal surgeon who has expereince in Crohn's Disease (CD). I really wonder why the seton was removed.
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


frustratedpatient
New Member


Date Joined Apr 2012
Total Posts : 1
   Posted 4/27/2012 8:10 AM (GMT -7)   
i know this post is old but just ran across it..... I have had Crohn's for 10 years with a few flares over the years but for the most part very well controlled with meds.  Started Humira two years ago, worked a while and then stopped working..discontinued about 6 mos ago.  In January I had the first of 4 surgeries for a rectal abbscess with fistula; first surgery resulted in a seton (sp?), abscess drained with the second, with the third he found an 'arm' off the original fistual and resulted in another seton.  With the fourth, the area was getting infected again requiring lancing.  My colorectal surgeon is telling me this is the nature of the beast and we need to try Remicade.  Remicade was ordered and took weeks to get approved through insurance, just had my week 2 infusion this week.  I understand it can take up to 4 infusions before we will know if the Remicade will heal fistula/abscess.  I have read a ton of information and I haven't run across someone with a similiar situation. Has anyone experienced a recurring abscess, I know I have a plan now with Remicade started but very frustrated.  Thanks
 
 
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