bad headache..came off Prednisone..only after five days..GI said i didn't need to ween?

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Regular Member

Date Joined Jul 2009
Total Posts : 342
   Posted 8/6/2009 11:28 PM (GMT -6)   
Hi everyone,
How much longer do you think i will have this major headache..i only took my medicine for like five days..problem is that i have an abscess from another fistula most likely..GI thought it would help..told me i didn't have to wean...i feel like my GI hates me..he calls me back late most times and is chewing while he is talking to me...and tells me remicade won't heal a fistula...I have only been going to him for about two years...mostly i never saw him cause i was that i have a problem..should i continue treatment with him...

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 8/6/2009 11:32 PM (GMT -6)   
If you don't agree with or trust your GI then it's probably time to get a second opinion and/or new doctor. This disease is too serious to be going to someone who isn't as serious as you are.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 5 mg, pentasa 2 pills 4x a day, omeprazole in the morning, and a women's multivitamin. I'm also trying a B vitamin complex, but it doesn't seem to be working so I'm considering the shots.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Regular Member

Date Joined Jul 2009
Total Posts : 342
   Posted 8/6/2009 11:34 PM (GMT -6)   
thank you! I know you are right..we deserve good treatment..thank you for your support

Regular Member

Date Joined Feb 2008
Total Posts : 314
   Posted 8/7/2009 8:10 AM (GMT -6)   
Are you sure that your GI said that Remicade would not help specifically fistulas? Because that is one of the EXACT things that Remicade is approved for... I really believe you must have heard him wrong, because thats like elementary GI knowledge.

The only reason GI's really have you taper is so that your body which has natural steriods in it, will start making these steriods once again. You see when you get above say like 20mg of Prednisone your body stops making the natural steriods because your taking enough by mouth to accomplish what needs to be done. So when you come off, your Dr might wean you to make sure your natural steriods kick back in and are starting to be made once again, which can be found by a simple blood test. Sometimes if you get to around 20 or 15mg and drop down to say like 10mg and your still not making your bodies steriods then your Dr may up your prednisone again back to around 20 to 25mg and then taper once again until your bodies steriods are made once again.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/7/2009 8:16 AM (GMT -6)   
If you are having bad headaches from getting off the Pred, I would call your doctor about this. Evidently you were on a high enough dose for enough time to cause adrenal problems. Maybe call the ER on call nurse and ask them what they think.

Good luck,
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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