Does anyone have Psoriasis?

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Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 8/7/2009 8:55 PM (GMT -7)   
It appears I *may* be developing it. I have a weird skin thing going on that won't clear up and my GI thinks I may be developing psoriasis, since it's so common to get another autoimmune disease to add more joy to the one you already get. I'm thrilled, of course *rolls eye*
 
I have a friend that suffers from a pretty severe case of psoriasis and she took a look at it and it's exactly like what she gets when she's flaring up. She is on Humira and is completely free of issues right now... I am moving from Humira to Cimzia, which does not appear to be used for Psoriasis. I developed it awhile on Humira but we know I stopped responding to Humira some time ago.
 
I've dealt with this weird thing for almost a year now and I'm tempted to just ignore it and hope the Cimzia takes care of it. Is that irresponsible? I'm just tired of having issue after issue.
 
Anyone with personal experience? 

svetla
Regular Member


Date Joined Jan 2009
Total Posts : 31
   Posted 8/7/2009 11:46 PM (GMT -7)   
Hi, I'm just reading"Healing Psoriasis - The Natural Alternative' by Dr. John O. A. Pagano, he connects the leaking gut with the skin conditions and it all kind of makes sense - I have Ulcerative colitis and ever since I have hd it I have had exzema and now it turns out I have developed psoriais - on my hands, fingers and palms , to be exact, and in the beginning it was so painful, infection , and so on, so now I try to manage it with Doak Oil Forte - it's a Coal Tar Oil, and Zinc Oxide on top of that and then cotton gloves, so I don't know where your problem is - you could probably make a bandage, if you decide to try it, but it all comes from inside, so the 'cremas' only help to make it more tolerable, they don't heal. He recommends some herbal teas, special diet, it all sonuds great, the problem is that i don't know what to eat any more, every food seems to irritate either this or that...So, if you can, just se ewhat he has to say, it might help.

good luck,
svetla

D&G's Mommy
Regular Member


Date Joined Jan 2005
Total Posts : 185
   Posted 8/8/2009 4:05 AM (GMT -7)   
I have guttate psoriasis and am currently having my second major attack that came on after having strep throat in June. A week into the strep my entire body, from my chin to my toes, was covered in a red crazy rash. Ended up in the hospital because of the antibiotics treating the strep causing all the diarrhea which in turn dropped my potassium too low and had many doctors telling me it must be a reaction to the augmentin. I finally got to my dermatologist who told me what it was and here I sit 6 weeks later still dealing with it. It's now only on the trunk of my body and not too bad. I have a cream and I am supposed to sit out in the sun 20 minutes on each side every day. I am noticing that it starts to clear and then I get stressed out about something and it comes back. I had one other major attack 20 something years ago, again during a very stressful time in my life and it took forever to get rid of it. I do remember the sun seemed to be the thing that did the trick. Before the strep I have had two little spots of it hanging out on my stomach months but didn't really worry about it because it was just that, two little spots and I seem to have bigger problems most of the time. The whole body experience was another story. I would hope that the Cimizia would help if the Humira did. Aren't all these drugs similar? Since it's newer than Humira maybe it just hasn't been "approved" for psoriasis yet.

Good luck!!
Cathy
Mom to 6 and 8-year-old
Been off meds for a little over a year but pretty sure that's about to change.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/8/2009 2:05 PM (GMT -7)   
I understand that topical vitamin D ointment is an effective aid. It can be used at times when the sun is not shining or in the winter when the sun is too weak to be effective. There is a prescription ointment that you could ask your dermatologist about or (I don't know how much the prescription would cost) you might ask your dermatologist about using an over-the-counter vitamin D cream. There is one available from Biotics Research (see: Bio D forte

wanthealth
Regular Member


Date Joined Feb 2008
Total Posts : 78
   Posted 8/8/2009 4:30 PM (GMT -7)   

Hi Aimee,

I developed a severe case of psoriasis shortly after starting Humira. It's now a year and 1/2 after I stopped the drug and I'm still dealing with psoriasis.  I never had it before.  It's a bit strange because Humira is a drug used to treat Psoriasis!  Recently  the FDA issued a warning of the danger of new onset psoriasis in pediatric patients on the antiTNF drugs .  I'm well beyond "pediatric" age --but am happy to see some recognition of this particular side effect.  Dealing with Psoriasis is sort of like IBD in that some drugs work for some people and  they don't work for others.  It's a matter of  trial and error . Hopefully you can find something that works for you.

Moodindigo


RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 8/10/2009 9:52 AM (GMT -7)   
I had the psoriasis first.
Red (Lee Ann)
    "No passion so effectually robs the mind of all its powers of acting and reasoning as fear." - Edmund Burke


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 8/10/2009 12:25 PM (GMT -7)   
Well.. I have a family history of psoriasis. It stinks because the skin issues are on my Mom's side and the CD is from my Dad's side. I have not been officially dx'd with psoriasis yet, but if i actually got to a derm. I am pretty sure I am in the beginning stages. i get little red blotches that turn itchy and raw, then turn beige (which is dark next to my white-white skin :-) ) and stay that way for over a year.

My Mom's skin was absolutely disgusting. There is no nice way to put it. She had patches of raw skin when it got really bad. She had other medical conditions so she had to stop the one thing that helped her...methotrexate. Have you been on metho at all? Might be a thought.

Right now I avoid the sun becuase of family history of skin cancer. I do take D supplements but I don't know if it really helps or not for me.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

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