It definitely is reassuring…. But it is a bit scary that it happened in the first place, I’ve never experienced that ‘gushing’ before. I will definitely ask about it. It may just be a hemmie-gone-bad that burst or something, but it was a lot of blood and that is never a good thing.
I KNOW! I can’t believe it! I remember hearing about the 12 weeks of waiting and thinking it would go forever! And having the tube in my butt for that long, the thought of it made me so down, and now the 12 weeks is nearly up (and I have since trimmed the drain!)! I don’t want to get my hopes up because it might take longer than that, but the specialist team wanted to see me before Dr Radford goes overseas. He will leave me with another Dr that he works with while he is gone, but he was determined to see me before he went overseas so I am hoping that is so he can approve me for remicade!
12 weeks really did fly huh!
How are you Ivy?? How are your setons going? How is everything in the world of you? It feels like spring already and I am so happy about that!
I am quite desperate to get rid of it, but not as desperate as I was at the start, when it was long and much more cumbersome. I remember thinking it would only be in for 3 weeks – but deep down, knowing it would be in for much longer. More than anything I am just so grateful that it is doing its job. Its funny how quickly you get used to things being stuck in there!
Cutting it did a world of good, the fact that it was long and pulling this way and that, it felt like it was hitting nerves down there. Now its nice and short and a lot easier to deal with, still difficult to sit and I have to sit ‘sideways’ but walking is so much easier.
You’re right, I should get myself prepared for a wait, but I think I will be OK, those 12 weeks went by pretty fast and I’ve got the MRI and CT out of the way (bowel and pelvis) so hopefully, hopefully I’m not too far away…..
I’m so glad the weather is heating up – but I must admit it never really feels like summer in Brisbane! The mornings are a bit chilly and that’s about it really! I want to buy a new bikini for the swim season but I realised yesterday it will probably have to be a black one! L Still, black can be sexay in its own way. J
I started posting in 2005 w2hen I was first diagnosed with Crohn’s disease – I’ve been having ups and downs ever since but have been living with the diagnosis since 2005 and have been admitted to hospital a few times since, and have had two surgeries for a peri-anal abscess and fistula in the last few months.
I mentioned this most recent bleeding to my gastroenterologist and he didn’t seem to see it as too significant given the extent of my crohn’s and the fact that it is in my colon and an aggressive form. I am thinking it must have been a fissure or a large hemmy in a vein because the bleeding was so intense and went on for so long, and I would also have stabbing pains in the area at random times through the day.
I certainly hope you don’t get the diagnosis of Crohn’s because it is a very difficult one, and four years later I am still trying to come to terms with it. But the people on this board are amazing and I don’t know what I would do without them.
Let us know how your scope goes , wishing you all the best!
Ha! Yes, I definitely agree with your whole outlook on it all – I mean we are forced to take on this extra element to our lives, but I do think it makes us stronger, and weaker, in such very different ways.
I just went and searched for all the posts I had written since I started out on these forums, and I found a thread I’d written in the IBD forum, about bleeding, diahorrea etc, and how weak I was, and my ER visits and everything that was happening in my first year of uni, and I was so young and so naïve and had no idea at all what I was in store for, and it was sad. I sounded so chirpy, talking about my colonoscopy and how much I was looking forward to getting results and finding out why I was suddenly so sick, and even after the colonoscopy I was saying “I have deep ulceration and scarring, what does that mean?” and reading it all made me want to cry for the ‘old me’ who was chirpy and happy and care-free. But there is no point because this is life now and you just have to take it on and move forward.
I think I was in denial for a very long time and didn’t want to admit I had a life-long, serious illness. It took me a long time to come to grips with it, and its amazing that I’ve had it for 4 years now and I’m still only just coming to grips with it.
Hopefully I can make something positive out of my crohn’s life!
you certainly CAN phoebe, with an attitude like yours ! just keep positive and enjoy the good parts of life..let the bad parts 'ride' over you , and you'll come out at the other side stronger, more positive, and ready for the next good thing life has to offer !
will keep you posted.. I go for colonoscopy on the 8th September..things are not as bad as you seemed to have, though..I dont have the same symptoms, not losing much blood at all and most days nothing I can see, also no pain or other complications, but, I do realise that if you do see blood, there may or may not be other symptoms/reasons.
I have had sigmoidoscopy in the past - have had an anal fissure - have had much much pain, and an operation to 'cure' the anal fissure..it could be a weakness there, I suppose.. we will see.. Also had an operation, years ago, to have piles removed, and that was successful as I had been losing lots of blood and had pain then.. and my blood count went downhill and I was very weak.
Other than those things ( and a few others I wont go into and bore people ! ) I'm ' fighting fit ! !
Wishing you lots of positive thoughts and love
Ahh thanks Sal, please let us know how you go…. I remember when I was first diagnosed I was posting in the irritable bowel syndrome forum - - IF ONLY!!!
I hope you don’t come out with a Crohn’s diagnosis but at least if you do you’ll have more of a handle on it….. I think I was too young and naïve to take on the diagnosis with any kind of maturity…. I mean I kept going at uni and pushed through it all which took a lot of strength and determination, but I refused to take care of myself properly. These days I try to ‘listen’ to my body more, and act accordingly, like recently my symptoms were so bad that I stopped eating breakfast and lunch at work, which sounds terrible, but the ‘bowel rest’ really helped I think.
I hope you get some answers soon, and if its bleeding fissures, that they offer you a solution. Have you used rectogesic fissure cream before? Or steroid enemas? They are very useful and relieving.