what is causing me to feel like I'm going to black out with every bowel movement??

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snowbomb63
Regular Member


Date Joined May 2004
Total Posts : 61
   Posted 8/9/2009 10:02 AM (GMT -7)   
Sorry for the yucky details to come, but, here's a new problem for me... I was hoping someone could guide me on what this could be now, this is so frustrating, I'm beyond depressed.

All of a sudden, after dealing with Crohn's for some 8 years, I thought I'd seen it all when it came to bowel movements, but this past week, everytime I go, I'm overcome with intense pain and profuse sweating and feel as though I'm going to black out. I have a ton of gas and distension in my lower abdomen. This is happening like, three times every morning, and then the rest of the day, I'm back to "normal". There is no blood, I haven't changed my diet or meds at all. Also there appears to be a lot of whitish mucus in the bowl. Any help with this? Thanks so much and again, sorry to have to be so graphic.
Marla
Crohn's, Enteropathic Arthritis, Enthesitis, Daily Migraine

Prednisone, 6MP, Entocort, Pentasa, Topamax, Effexor, Vicodin,

Sed rate sits in the 70's and can't seem to get it down


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 8/9/2009 10:06 AM (GMT -7)   
Do you have a full or partial obstruction? That reminds me of the time that I did a bowel prep with an obstruction because my doctors didn't believe me that I had one. I was convinced I was going to die. :(

Edit: By the way, go to the emergency room. It really sounds like an obstruction to me, and you don't want to end up how I did when I didn't go, trust me.

Post Edited (Valerie3) : 8/9/2009 11:11:17 AM (GMT-6)


Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 8/9/2009 10:19 AM (GMT -7)   
 
I too am going through the exact same syptoms, I have the horrible pain and flar up 3-5 times in the morning then I'm ok until night time where I can the pains but no flare.
 
The last very ER visits the medication doctor said she beleived I had a partial blockage, but sent me home and said contact my GI, which I did put only set up a scope at the end of Sept. I've visit the ER 2 times since then, last being on my 25th bday.
 
I really beleive what me and you are going throw is a partial blockage. I suggest you see you GI for scope ASAP. hopefuly before me!!
 
Good luck
25 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Now on Humira and back on Imuran as well.RA pains all gone!


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 8/9/2009 10:25 AM (GMT -7)   
I don't think a scope is the best idea with a partial blockage, the prep almost killed me when I had one. It was honestly a miracle I lived through the prep, I was a total idiot for not going to the ER (family was all convinced I was dying too). It was really scary, so don't do what I did. I'm guessing that they use x-rays/ct scans to look for them.

Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 8/9/2009 11:22 AM (GMT -7)   

Hey Val,

the thing with x-ray and scan and ultersounds by my experince, never can see or tell anything. I had crohn's for 10 years before they diagnosed me, because they were only doing x-ray's, scans and blood test.

I'll just speak of the last 6 months. I've been in the hospital 5 different times with flare ups, throwing up for hours with blood. They do blood test it says I'm not even having a flare (like all my other blood test come) they do an x-ray they see nothing, same with scans.  So is someone saying I don't have crohn's because they never were able to see it threw these test? No I really do have crohn's and for me the only way to see problems e.i ulcers, weather or not the crohn's has spead and of course blockage will have to be done by scope. I was diagnosed with ulcer's in my stomach, I had it for 6 years altogether. They were never ever able to tell me I had an ulcer through x-rays and scans. Only by scope. (this was 3 half years after I was diagnosed with CD, they found the ulcers threw scope again)

As much pain it may be I'm assuming you must atleast try to do a scope if no other test are showing things. I do understand if you have a full blockage they wont be able to pass the scope threw, but now they know you have a blockage, right? I'm just guessing here, never had a blockage and done scope. I'm not sure I even have a blockage. It could be overgrowth bactira in the small bowel.  I heard it's the same syptoms as a partial blockage, or can be caused by one. This disease is confusing and fustrating!!!

May I ask how you dealt with your blockage? did you need surgery?

Key thing, are you feeling better now Valarie3?


25 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Now on Humira and back on Imuran as well.RA pains all gone!


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 8/9/2009 11:29 AM (GMT -7)   
Ulcers and obstructions aren't the same thing though, I'm not sure how they diagnose an obstruction because I've always sucked it up and dealt with it on my own, which is a really bad idea. I know that if you read the instructions on ANY bowel prep, it says not to do it if you suspect you have a bowel obstruction. I'm not sure if they can do an enema or something in the hospital instead to get around this and do a scope, because I've never been hospitalized. If you do one of the regular preps with an obstruction though, you can die from it.

As for me, it happened to me about 6 or 7 months ago before I got diagnosed (the prep was actually for the barium enema that I got my tentative diagnosis from). I didn't need surgery, it passed on it's own eventually, probably because of the prep, but taking that risk could have caused a perforation or something. I was literally on the floor screaming, I couldn't stand/walk, could barely breathe, in the worst pain of my life, throwing up while having D (partial obstruction, not full one lol), I had the fever and chills alternating, etc. I should have really gone to the hospital, the only reason why I didn't is because I didn't want to go with such bad, uncontrollable D from the prep (I knew I couldn't hold it until I got to the hospital and my dignity got the best of me). My grandmother actually died from a bowel prep gone wrong a few years ago, so it's really a real danger. I was lucky that I was fine by the next day, but it was really a traumatic experience for me and it could have ended up a lot worse if I wasn't lucky.

Edit: Sorry, I missed your last paragraph before. My concern with the scope isn't the scope itself, it's the prep for it. The scope would be fine alone, because it could see the blockage even if it couldn't pass it, but I'm not sure how they prepare you for one if you have an obstruction since I was an idiot and did the normal prep, LOL. It taught me never to listen to a doctor without using my own common sense, I asked her if I could still do it even though I was sure I had an obstruction, and she brushed it off and was sure I didn't have one because I wasn't in the hospital. I deal with pain extraordinarily well, so it would take me being on my deathbed (and even then..) to go to a hospital. Then again, she also thought I didn't have Crohn's...

Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 8/9/2009 12:13 PM (GMT -7)   

****ing doctor's!! I thought it was just me and the hospital/doctor's I was dealing with, but it seems it's not, everyone goes throw something horrible with their docs.

I just figured out the difference, I've always been in the hospital when they did the scope. They did the enama both times for me. So I never had to drink anything or do preps. I could see doing a prep with a blockage can cause problems. I am so so sorry to hear about your grandmother.

I hope you learned your lesson and next time you'll go to the hospital. I know the feeling of feeling traumatizeed I feel this way all the time with food and bad experince at the hospital's.

 


25 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Now on Humira and back on Imuran as well.RA pains all gone!


snowbomb63
Regular Member


Date Joined May 2004
Total Posts : 61
   Posted 8/9/2009 7:24 PM (GMT -7)   
thanks for all the input, I actually had to go to the ER awhile after posting this because I got so bad before... I do not have a partial obstruction or a stricture. All they found was some inflammation in the intestinal wall.
My doctor thinks it could be SIBO which can mimic many of these things, and put me on xifaxan. hmmmmm. I hope she's right about this, it's awful intense pain for a bowel overgrowth, but I guess she knows what she's talking about, any thoughts??
Thanks guys.
Marla
Crohn's, Enteropathic Arthritis, Enthesitis, Daily Migraine

Prednisone, 6MP, Entocort, Pentasa, Topamax, Effexor, Vicodin,

Sed rate sits in the 70's and can't seem to get it down


Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 8/9/2009 7:51 PM (GMT -7)   
I'm so sorry you had to go to the hospital, but atleast you did. I just started reading about SIBO and it was another thought of mine thought are exact syptoms could but SIBO. I really believe shecould be right. How did they test you? All my research has said to that it mimic's the syptoms of a  flare.
I really hope your feeling better!
25 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Now on Humira and back on Imuran as well.RA pains all gone!


Wild_Swan
Regular Member


Date Joined Apr 2007
Total Posts : 89
   Posted 8/10/2009 1:12 PM (GMT -7)   
i had the same symptoms - did scopes & had severe inflammation - if theres risk of an obstruction they can do an x ray & ct first to check before doing a scope. - the inflammation you mentioned - is it being treated - i needed iv steroids & might need an op - i would think 0 i'm no dr now but if you felt like i did & it sounds like it you prob need some steroids first to see how it goes
 
 


snowbomb63
Regular Member


Date Joined May 2004
Total Posts : 61
   Posted 8/10/2009 4:57 PM (GMT -7)   
Yeah, SIBO sure can mimic the symptoms of a really bad flare, My Gosh, so sick from some bacterial overgrowth!! The test they did on me in the ER was, bloodwork, and a CatScan with contrast. I've started Xifaxan and it's already working some, the pain is now at a level I can deal with. Again, thanks to you all, it's so nice to come where people understand. All be well, Marla
Crohn's, Enteropathic Arthritis, Enthesitis, Daily Migraine

Prednisone, 6MP, Entocort, Pentasa, Topamax, Effexor, Vicodin,

Sed rate sits in the 70's and can't seem to get it down

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