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flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 8/10/2009 4:43 PM (GMT -7)   
Got "The Shingles". Anybody out there who have had Shingles w/Crohnes? I'm assuming that being on Imuran won't make it better. How long do they last? Dr. said it was due to low immunity. Great! in the middle of hot summer too.
Thanks!
Flowery
 41 yr old woman with 12 surgerys under my belt. Diagnosed in 2005 CD. PTSD 1999. Gullbladder taken 2000, Hysterectomy 2005, Back surgery 1998 with herniation L-4, L-5, S-1. Two-Re-sections on small intestine, total of 18 inches taken out 2006. Stomach Herniation from re-section 2007, Been getting kidney stones too! The good news...finding this website.
                Meds: Imuran 200mg daily, asacol, Bentyl, Coelestid, occasional flagyl and cipro, high blood pressure meds, paxil 25 mg, 4/20meq's potassium, synthroid...& try to get alot of laughter in.
                         


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/10/2009 4:56 PM (GMT -7)   
Hi Flowery! I think the case of Shingles triggered my Crohn's! I didn't have Crohn's before that. I had a good doctor who identified the Shingles immediately and gave me an anti-viral that stopped it cold. I hope you are an anti-viral that works for you!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


AllHailDietmar
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 8/10/2009 5:17 PM (GMT -7)   
I have crohn's and I have had the Shingles 15+ times in my life....and I'm only 23/male. I first got chickenpox when I was 5 and my first shingles outbreak when I was 7. I was dxed with Crohn's last year shortly after having my last shingles outbreak (before that it was less than 6 months ago). I always get them on my forehead too. I also have had numerous blood tests done to test stuff like the level of varicella virus (chickenpox virus) and NOTHING was abnormal! My doctors have been completely baffled on how I keep on getting this (I haven't had shingles since mid-08 right before I found out I had crohn's). I have no idea why I have not gotten the shingles since though, neither have my doctors. I've been treated for shingles with many different drugs ranging from prednisone, topical gel, antiviral, etc. I wish I could give you some better answers but, I just really seem to be the oddball of the bunch and my docs are just confused confused. Wish I could help out more, shingles usually last 2 weeks to a month depending on how bad they are (1 week if you catch them early), stay away from people who haven't chickenpox when you first get shingles as it can be contagious in its early state. Expect headaches, itching, fatigue, nothing too bad especially if you have endured the pain of crohn's. Oh and chamomile lotion FTW! Best of luck to you I know it can suck. turn

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/10/2009 6:27 PM (GMT -7)   
Hi AllHailDietmar,

Wow!! That is 15+ times too many! Is the Shingles always on the same side of your forehead??
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


AllHailDietmar
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 8/11/2009 2:27 AM (GMT -7)   
Yea its usually almost always in the exact same area (left side forehead above eyebrow to hairline, one time it was a little higher though) although it may spread a little bit. I have a decent sized scar there too. Diagnosing it early is the key! I know the symptoms so well I usually go to the doctor before its even visible (one sent me home saying i was just to worried, then I walked in a week later with "I told you so" shingles on my forehead idea). No doctor has come up with any explanation as to why I get it so often, now that I have crohns I'm guessing it has something to do with my haywire immune system (which is really weird because since I was dxed with crohns I haven't had it since, which is a new record for me), stress may be a part of it too as I have also been on anti-anxiety (valium) medication since my last outbreak. I wish I had better answers for you but, I'm just as confused as my doctors (I was even in a shingles study and they were baffled).

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 8/11/2009 5:00 AM (GMT -7)   
I had my first and (hopefully) only encounter with shingles a little over a year ago. Yes, from all my research at the time, a suppressed immune system can cause them. It seems the old chickenpox virus many of us had as kids lingers in the spinal canal and can pop up again, causing shingles rash and pain in a sepcific dermatome (the areas enervated by specific spinal nerves). Quick intervention with an antiviral medication can make the outbreak less severe. They last 2-4 weeks as noted and can be followed, especially in people over 60, by postherpetic neuralgia, a lingering sensiivity with pain and numbness in the affected area log after the rash is gone. Mine lasted abuot 90 days. Beyond the antivirals (which will only help in the first few days) there's nothing much that can be done except riding them out. They are annoying but rarely lead to any other complications.

flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 8/12/2009 6:47 AM (GMT -7)   
AllHailDietmar,
Wow 15+ times...sucks! Been runing atemp of 100 the past few days. I'm in my third week and I usually get them abdomen around to the back. (bra strap area) I thought at first I broke my ribs because my sister and I had a bit of a fall on a 3 wheeler. Then started the pain. I've had chicken pox 3x's and this is my second time with shingles. First time with shingles was in 2000 but never broke out...it just stayed under the skin and in the same place. Just wondered if they get worse every time you get them? Thanks for sharing your story! My Dr. always looks at me funny when I tell them how many times I've had pox and shingles. Good to know I'm not alone in the frequent times of this crazy thing! :)
Flowery
 41 yr old woman with 12 surgerys under my belt. Diagnosed in 2005 CD. PTSD 1999. Gullbladder taken 2000, Hysterectomy 2005, Back surgery 1998 with herniation L-4, L-5, S-1. Two-Re-sections on small intestine, total of 18 inches taken out 2006. Stomach Herniation from re-section 2007, Been getting kidney stones too! The good news...finding this website.
                Meds: Imuran 200mg daily, asacol, Bentyl, Coelestid, occasional flagyl and cipro, high blood pressure meds, paxil 25 mg, 4/20meq's potassium, synthroid...& try to get alot of laughter in.
                         


AllHailDietmar
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 8/12/2009 7:10 AM (GMT -7)   
I'm not really sure if they really got worse everytime I got them. I would usually catch them early enough before they would get bad and I got used to what they felt like so it really wasn't that bad for me at all, although it was pretty bad when I got them when I was younger though. I really wish my Doctors could tell me if my numerous shingles outbreaks have something to do with me having Crohns now idea , it really makes me wonder since they are both immune system related.
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