Should I go away this weekend?

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Guilty Party
New Member


Date Joined May 2009
Total Posts : 18
   Posted 8/11/2009 4:21 AM (GMT -7)   
 
 
Well i was coming off pred... again was down to 5mg daily and my symptons have been gradually returning over the last week. I have run out of my usual pain meds and had been surviving on OTC stuff which really didnt touch the sides. I was afraid this would happen as this is the second time this has happened since i was diagnosed in Febuary and ive only had a few good weeks since ( high pred dose and pain relief is all good ).  I was advised after my last appointment to raise my dose back up if this happens which i have have now done (up to 20mg) and already feel more alive and actually ate something today for the first time in three days! I visited my GP and topped up my steroid tabs so i have enough to taper off and i have some more pain meds now so im back to where i need to be ( albeit temporarily). Just need to contact my nurse which is proving a tiny bit tricky at the mo to see about the possible change to humira as its not looking like the azacol is doing the trick :(.
 
Thing is im due to hit Newquay for a stag weekend on friday and kind of worried about being a damp squib or having a rough time and being stuck away from my own bed curled up in a dingy hotel room all weekend cause i cant bear to go out (we aint booked five star its a stag do lol) Im also due to go to V festival next weekend also, although i think i can regulate what i get up to there a lot easier due to the fact the whole weekend wont be centered on getting absolutely leathered and rolling in and out of nightclubs.
 
Im in two minds what to do, ive only just got back on my feet so to speak and am concerned wether i can hack a weekend away with all my my mates.Im usually always up for this and usually organise all these jollies but for the first time in my life im having second thoughts and have to think hard about committing to stuff. A few of them know im having a rough time time and may pull out but i seriously dont want to let anyone down and lose the fun loving -up for -anything attitude ive always had for things when actually at the moment i think i can make it through.
 
Do you think i can carry this through with the pred dose the same and some pain relief as back up? seems a yes to me but i was kinda hoping you lovely people could shed some light on how you think i might get on or how you deal with/have dealt with these situations.
 
Any feedback would really help........
 
 

AllHailDietmar
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 8/11/2009 4:35 AM (GMT -7)   
Just don't push yourself too far and make sure you know where the restrooms are everywhere you go. I say go for it as a vacation can do wonders for your mental health which can be a very vital process to your overall well being.

Guilty Party
New Member


Date Joined May 2009
Total Posts : 18
   Posted 8/11/2009 4:41 AM (GMT -7)   
I would say a weekend away would be a more positive step than sitting at home feeling ive let everyone down?
I actually think im suffering froma little depression at the moment , i was speaking with the doc yesterday and she feels in agreement and perhaps next week i will get something to help with the helplessness i feel. This disease really does throw up some trump cards i tell you!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/11/2009 6:28 AM (GMT -7)   
I think sometimes vacations are a good idea for us. A chance to get away for a little bit and enjoy ourselves some. I would just be responsible with your drinking and keep it to a minimum or maybe even you could be the designated driver this time. You could still be out with your friends but not killing your gut with alchohol. Just a thought!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/11/2009 6:48 AM (GMT -7)   
I agree with Nanners, but will go even a step further. This was the advice I gave my daughters when they were out and wanted to 'look' like they were drinking to save face. Just get some fizzy drink, pop some fruit in it and call it whatever you want when someone ask you what you are drinking. If you are having club soda or sprite, its a gin and tonic, if you are having coke, its a rum and coke. The only trick is to be the one to go to the bar when your glass is empty so you don't get an unexpected surprise! But thats not to say you cant drink too, but you could alternate just so you don't over tax your system and end up worse off.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 686
   Posted 8/11/2009 7:55 AM (GMT -7)   
I went on vacation a couple of weeks ago after being in the hospital for a week and still have major issues with bms and vomiting. I wish I would have postponed. I was not feeling 100% and it really put a damper on things. I couldn't wait to get home. I usually never want my vacations to end but this time was different. My stomach hurt all the time, I was tired and just wasn't right. I was so run down that I wound up getting bronchitis when I came home.

Bottom line don't push yourself.
Jodi

Remicade and 6MP


Broken Faery
New Member


Date Joined Aug 2009
Total Posts : 7
   Posted 8/12/2009 11:48 AM (GMT -7)   
Newquay eh? You sound like a local lol, I'm a Devonian lassy meself. I noticed your post because I always go through a bit of anxiety before going away... I even make myself ill on a lot of oaccsions worrying over it, I discharged myself from hospital last year to catch the ferry to France with my sisters because I knew it was just the dang anxiety getting the better of me (AND IT WAS), i had a great time!

I think it sounds like it's going to be a bit of a heavy weekend? I really do think you should go because I think letting this disease rule our social affairs can lead to a deep resentment that can spiral easily into depression where you end up questioning whether you can ever go anywhere or do anything at all, you have to show the crohn's it's not going to beat you. HOWEVER... I think us crohnies have a responsibility to ourselves to take care of ourselves and whilst I'm telling you you should go I really believe you should take a head strong attitude with you and make a little agreement with yourself before you go that however messed up the rest of the lads plan on getting that it's not worth compromising any progress you've made and setting yourself back into a full blown flair just for the sake of getting totally trollied. TAKE IT EASY, I know it's not quite the same but being there is better than not being there at all and you did say your friends were aware you were going through it right now so I'm sure they won't push you too far when they know how ill you've been. I was a big time party girl but I just can't face it anymore... not like the good old days lol. Plus the alcohol isn't a good mixer for pred I can assure you.

Hang up your worries and go have a wicked weekend, we deserve all the fun and frolics we can get!
Crohn's terminal ileum, 27 now (dx'd age 21), IBS, Anxiety/Depression, Anaemia


Guilty Party
New Member


Date Joined May 2009
Total Posts : 18
   Posted 8/13/2009 12:23 PM (GMT -7)   
Broken Faery said...
Newquay eh? You sound like a local lol, I'm a Devonian lassy meself. I noticed your post because I always go through a bit of anxiety before going away... I even make myself ill on a lot of oaccsions worrying over it, I discharged myself from hospital last year to catch the ferry to France with my sisters because I knew it was just the dang anxiety getting the better of me (AND IT WAS), i had a great time!

I think it sounds like it's going to be a bit of a heavy weekend? I really do think you should go because I think letting this disease rule our social affairs can lead to a deep resentment that can spiral easily into depression where you end up questioning whether you can ever go anywhere or do anything at all, you have to show the crohn's it's not going to beat you. HOWEVER... I think us crohnies have a responsibility to ourselves to take care of ourselves and whilst I'm telling you you should go I really believe you should take a head strong attitude with you and make a little agreement with yourself before you go that however messed up the rest of the lads plan on getting that it's not worth compromising any progress you've made and setting yourself back into a full blown flair just for the sake of getting totally trollied. TAKE IT EASY, I know it's not quite the same but being there is better than not being there at all and you did say your friends were aware you were going through it right now so I'm sure they won't push you too far when they know how ill you've been. I was a big time party girl but I just can't face it anymore... not like the good old days lol. Plus the alcohol isn't a good mixer for pred I can assure you.

Hang up your worries and go have a wicked weekend, we deserve all the fun and frolics we can get!

I would say your hitting the nail on the head here girl! Im not actually a local im travelling to Newquay from Milton Keynes so...;)
Thanks for all the advice guys, there will definately be no driving around thats for sure and i dont feel the need to save face with drinks, if i want a coke i will have one. Im just concerned with the whole "stag weekend" vibe and i want to be part of it without being a letdown really. I guess its kinda my first big test.
 
Well i go tommorrow and can only see how it goes now i guess... perhaps i will report back if i make it in one piece :)
PEACE & GOOD HEALTH TO YOU ALL.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/13/2009 12:40 PM (GMT -7)   
Hope you have a WONDERFUL time:)

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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