Advice about stopping meds.

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MagsGuts
New Member


Date Joined Aug 2009
Total Posts : 6
   Posted 8/11/2009 8:46 AM (GMT -7)   
Hi all,
 
My name is Maggie and I was curious about something. I'm going to try and get pregnant in the next few years. I was wondering if anyone had gotten sucessfully pregnant while on meds, or if I should talk to my doc about stopping them all together. I'm VERY luck because I haven't had a flare in over two years. So I was just wondering if anyone had gone through this, or if it's EVER been documented for one of us to get off meds and be flare free...?
 
Thanks in advance!
 
Mags
 
Diagnosed with Crohn's 11/9/07. Imuran 150MG/Day, Asacol 4xday.

CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 8/11/2009 9:29 AM (GMT -7)   
Welcome to Healingwell!! My names Chris, how did you find or hear about Healing Well if you don't mind me asking?
I think you'll find that you'll really like it here, and grow to even care about others here and their situation. Its really supportive and thats why people keep coming back.

Read the post called 'long-term entecort' I believe. I believe it was Nanners that said something about multiple people here have been on steriods, and biologics like remicade, humira, imuran, things like that, because many doctors believe its best for the women to be healthy better for the baby that is.

You should really read that, and the other advice on the entecort.

Bye until your next post, my posts, or I chat quite a bit also.

MagsGuts
New Member


Date Joined Aug 2009
Total Posts : 6
   Posted 8/11/2009 9:39 AM (GMT -7)   
I see both my Gyno and my Gastro in the next week. I'm just worried that the Gastro will say stay on the meds, and the Gyno will say get off...

I found this through a google search for Imuran Taper. Great site so far!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/11/2009 9:51 AM (GMT -7)   
Hi MagsGuts,

And welcome to Healingwell. As I stated on another post, we have many new moms who have had successful pregnancies while on meds like Imuran/6mp, Remicade and even Humira. The thought is that a healthy mom produces a healthy baby. If you go off your meds, you are more than likely to get sick and that could cause serious complications in your pregnancy.

I hope one of these newer moms will be along soon. One has a link from a well respected doctor that says Imuran is safe during pregnancy.

We usually do have to have high risk ob's, so maybe try looking for one that deals with pregnancy and Crohns might be a good idea. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MagsGuts
New Member


Date Joined Aug 2009
Total Posts : 6
   Posted 8/11/2009 9:53 AM (GMT -7)   
Thanks a lot Nanners!

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 8/11/2009 12:20 PM (GMT -7)   

This subject has come up a number of times recently for some reason. Did a little research and found this:

Imuran and Pregnancy Category D

The U.S. Food and Drug Administration (FDA) uses a category system to classify the possible risks to a fetus when a specific medicine is taken during pregnancy. Pregnancy Category D is a classification given to medicines that have been shown to present a risk to the fetus in studies. However, a pregnancy Category D medicine may still be given to a pregnant woman if the healthcare provider believes that the benefits to the mother outweigh the possible risks to the unborn child.
 
When given to pregnant rabbits and mice, Imuran increased the risk of birth defects, including skeletal and organ problems. In the few reported cases of ="showDescription(event, '/imuran/imuran-uses.html', 'Imuran has been approved for preventing a kidney transplant rejection and treating rheumatoid arthritis.', 'Imuran Uses')" onmouseout=hideDescription(event); href="http://arthritis.emedtv.com/imuran/imuran-uses.html">Imuran use during human pregnancy, infants were born with poorly functioning immune systems.
 
So apparently is it not absolutely forbidden, but certainly not suggested.

MagsGuts
New Member


Date Joined Aug 2009
Total Posts : 6
   Posted 8/11/2009 12:22 PM (GMT -7)   
Thanks Mike B!

Marlowe
Regular Member


Date Joined Aug 2009
Total Posts : 31
   Posted 8/11/2009 8:42 PM (GMT -7)   
HI Magsguts

Welsome to healingwell! Your question reminds me of another question that was asked Octobergirly 'Newly diagnosed with questions " to Dr. Rubin is one of the top Crohn's and ulcerative colitis doctors int he country. He answers questions online I though you might like to see his response or ask a question yourself below is the link.

http://messageboards.ivillage.com/iv-bhgendigesti/

FYI:My cousin was successfully pregnant withh two kids while on a class D too.
Marlowe
Crohn's disease, currently no medications, 2 surgeries, ostomy since 2004


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 8/11/2009 9:36 PM (GMT -7)   
Although you may not have had a flare in a while, you don't know if you would have if you had not been on medication. One important thing to keep in mind is that if you go off your meds and have a flare and get pregnant, you'll likely stay sick throughout the whole pregnancy, while if you're not flaring when you get pregnant, generally you won't have a flare during your pregnancy. I would definitely discuss it with your doctor, but I do believe that you should at least be on something while you're pregnant - if you are really uncomfortable with staying on Imuran, I would suggest that at the very minimum, you continue taking Asacol throughout the pregnancy.

MagsGuts
New Member


Date Joined Aug 2009
Total Posts : 6
   Posted 8/12/2009 6:11 AM (GMT -7)   
Thanks again. I'm not going to try to get pregnant until I troubleshoot with my Crohn's meds to see what my bod can deal with.

You guys are great! I wish I'd have found this website a long time ago!!
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