Chronic D since last surgery - Activia

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bdollproject
New Member


Date Joined Aug 2009
Total Posts : 8
   Posted 8/11/2009 3:44 PM (GMT -7)   
Hi, I have Crohn's Disease and I am new to the forums here and I had a bowel resection in February leaving me with about 6 feet of small intestine. Since the surgery, I have had nothing but diarrhea and funky yellow stools. I am told that this will go away in 6 months, which should be about now. My doctor said not to eat Activia because it would give me D but everything I have read online here says it helps with both D & C, so I am gonna try it and see what happens. Does anyone else have any experience with short gut syndrome, did it finally go away or after how long? Before the surgery, I never had D with my crohn's. Thanks in advance!

Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 8/11/2009 7:42 PM (GMT -7)   

Hi bdollproject,

Welcome to the forum!  So sorry to hear about the diarrhea problems you've been having.  Have you been told by your GI doctor that you have short bowel syndrome?  I would definitely ask your GI about this since so much of your small intestine has been removed.  I do not have short bowel syndrome, but have done a little reading about it.  There's some helpful info on the following website about symptoms, treatment etc.  http://digestive.niddk.nih.gov/ddiseases/pubs/shortbowel/index.htm

Are you having blood tests done to check your B12 and other nutritional levels?

Keep us posted, OK? 

Good luck!

 

 

 

 



54 year old female;
 
Have had Crohn's of terminal ileum for over 9 yrs.   Stricturing is pretty severe now, and need surgery SOON.
 
On Humira since Dec. 2008.  Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 8/11/2009 10:31 PM (GMT -7)   
What about taking probiotics in supplement form? A lot of people take Align, myself included, and it seems to have helped. There are so many different kinds out there, but it might be better than activia since it won't have the sugar or traces of lactose to irritate your gut.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 5 mg, pentasa 2 pills 4x a day, omeprazole in the morning, and a women's multivitamin. I'm also trying a B vitamin complex, but it doesn't seem to be working so I'm considering the shots.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/12/2009 6:09 AM (GMT -7)   
I agree with LMills, I think taking probiotics would be better than the Activia. I have friends who do not have Crohns and they have stated that the Activia really upset their stomachs. I can only imagine it might hurt the Crohns tummy more. Align is one many use, VSL#3 alot of doctors recommend (tho costly), and some take Nature's Way Primadolphilus Reuteri. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 8/12/2009 7:04 AM (GMT -7)   
After my re-section had D so bad! Before re-section it was constipation because of fistulas and blockage. But, afterwards D!
Dr. tried me on Lomotil. Didn't work well because I was cramping so bad and just ended up with lots of Cramping...with less D. Still painful! Kinda like Dry heaves without puking...yuck!
Now, I take a probiotic....and Immodium up to 6x's a day. Seems to be helping quiet a bit. I'am able to actually go for a walk down at least a block from my house w/o running back with bad D. I tried Activia but, since I'm a bit sensitive to milk products...really didn't help. Oh, also...when eating Carbo's like pasta and bread, try to stay within 1/2 cup cooked only!. When I was diagnosed with CD it's easy to digest white bread, pasta and I was eating more than I thought. My nutritionist suggested this so I wouldn't get bad D with "sugar dumps" she called them. Eating lots of carbs turns into sugar and your body kinda "dumps" it w/o all the valuves you used to have with more intestine. This has helped me alot too! Good luck ....I feel for ya
Flowery
 41 yr old woman with 12 surgerys under my belt. Diagnosed in 2005 CD. PTSD 1999. Gullbladder taken 2000, Hysterectomy 2005, Back surgery 1998 with herniation L-4, L-5, S-1. Two-Re-sections on small intestine, total of 18 inches taken out 2006. Stomach Herniation from re-section 2007, Been getting kidney stones too! The good news...finding this website.
                Meds: Imuran 200mg daily, asacol, Bentyl, Coelestid, occasional flagyl and cipro, high blood pressure meds, paxil 25 mg, 4/20meq's potassium, synthroid...& try to get alot of laughter in.
                         

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