Diagnosed with Crohn's.

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MC84
New Member


Date Joined Aug 2009
Total Posts : 14
   Posted 8/12/2009 6:34 AM (GMT -7)   
Hey, im 24 years old.. I was diagnosed with Crohns around a year ago after suffering mild constipation for 2-3 years which lead to a fissure. After being diagnosed i was put on a drug which done absolutely nothing & i am going back to see the same doctor in a few weeks. I now have hemorrhoids and they sort of stink.... and they REALLY hurt when i go to the toilet. Basically its been the most frustrating / depressing part of my life. Any advice on what i can do for the hemorrhoids and constipation before seeing this guy? He was basically of no help last time i seen him(probably not his fault after reading alot) but i want to try some methods for myself.


So basically im asking for advice on what i should try doing for a diet to help my constipation... anything will help. Thanks.

Post Edited By Moderator (Nanners) : 8/12/2009 9:31:36 AM (GMT-6)


AllHailDietmar
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 8/12/2009 7:04 AM (GMT -7)   
I totally feel you on the Hemmies they are a pain in the butt, I lived with them for years then asked my doc for some prescription cream and he gave me Proctosol and it has worked wonders!!! Ask your doc if you can take fiber like metamucil as that can really help with constipation but, some crohnies can't take it (I can). A good strict diet is what you are going to learn to have to live with sad. Everybody's diet seems to be a little different so there is not one diet that works for everyone so its kind of hit and miss to find out what works for you. Forget about smoking cigs if you do, I know it sucks. Alot of people seem to be ok with only eating if it swims or flies (like fish, turkey, chicken, etc.) raw veggies seem to be a no-no, potato bread seems to be better than grainy bread. Find out if you are lactose intolerant (shouldn't be that hard lol), try and stay low on gluten (like starches in bread etc.) and stay very low on sugar as these seem to be a constant in crohnies. Try and keep your stress level low (way harder said than done I know), and try to drink lots and lots of water. Basically you are a guinea pig for a little while till you find out some diet that works out for you, remember no red meat, no raw veggies, drink lots of water, take pro-biotics, vitamins, omega-3 religiously (these seems to be consistent). If you are depressed please go and get help! Crohn's disease is not something that is easy to deal with! Your mental health is almost as important as your physical health, most of us have been there. This is also a very supportive forum, most people on here will (especially Nanners, shes the greatest) keep you in their prayers and help you find places to find help at. I get my Hospital visits and most of my medication for basically no cost, you can probably find a place near your area that offers the same stuff just by doing a little research on the internet. Stay strong and remember that you can live a normal life with Crohn's and that usually after you are diagnosed is the worst time for most people (sure was for me, I lost the best job I ever had and my girlfriend of 3 years broke up with me mad ). Good luck and keep us updated. yeah

MC84
New Member


Date Joined Aug 2009
Total Posts : 14
   Posted 8/12/2009 8:13 AM (GMT -7)   
Ok, thanks for the information I'll try working around some diets.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/12/2009 8:30 AM (GMT -7)   
Hi MC84,

And welcome to Healingwell. Sorry for the reason you have to be here though. I suffer with Crohns constipation myself and have to take stool softners every night in order to keep things soft and easier to pass. If I didn't take them one night, I would be in a world of hurt the next day.

As for diet, it really is individual to each of us. I personally eat a low residue diet all the time. That seems to work best for ME. Others have had success with the SCD or Makers Diets, but these diets must be adherred to strictly in order to get the full benefit of them. You can look in our resources thread above and read about the different diet ideas.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MC84
New Member


Date Joined Aug 2009
Total Posts : 14
   Posted 8/13/2009 4:44 PM (GMT -7)   
Thanks for the response, Nanners!


While i have you here, the color of my stools is usually light brown / tan, what could this be an indicator of? Any ideas? Just crohns or is it possible there is more wrong with me then just crohns.. I mean, i just find it weird majority of people have diarrhea on and off while i have had constipation for 2 years straight with out much change no matter what i eat.. I booked into the specialist and am seeing him in 2 weeks... just sucks having to wait so long.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 8/13/2009 6:57 PM (GMT -7)   
Hi, I just wanted to post this link for you cuz with crohn's there is another anal condition called perianal crohn's skin tags which often get misDX as hemmies (it happend to me, long story) anyways the first set of pics is hemmies, the set of pics below are perianal crohn's skin tags, this will give you a good idea if you're dealing with hemmies for sure.
 
 
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Bubcha
New Member


Date Joined Aug 2009
Total Posts : 1
   Posted 8/13/2009 7:10 PM (GMT -7)   
Hey I'm new here but i can really feel where you are coming from with the hemmies. My diet is not under control yet and neither is my medications but after reading what the others have written then i am sure you and i will learn a lot. Good luck with your appointment and i really hope all goes well

MC84
New Member


Date Joined Aug 2009
Total Posts : 14
   Posted 8/14/2009 11:41 AM (GMT -7)   
What color is the feces of other people with constipation? Anyone willing to share?

Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 8/14/2009 12:29 PM (GMT -7)   
When I'm constipated, it doesn't seem to change the color at all for me. I alternate between constipation and diarrhea though.
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