Self pred burst

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Regular Member

Date Joined Apr 2009
Total Posts : 174
   Posted 8/13/2009 3:38 PM (GMT -6)   
Got off the pred after a month of using it approx 2 weeks ago and the pain and discomfort is slowly but surely coming back, and I've felt quite bad today... Called the doc to set up another appt but that well be toward the end of next week, maybe later. I've read about people who have put themselves back on pred for a while before going to the doctor and I was wondering if that may be an option for me (I have plenty left). Thinking of giving it a shot tomorrow morning if I'm feeling as bad as I do today....

Veteran Member

Date Joined May 2009
Total Posts : 506
   Posted 8/13/2009 3:58 PM (GMT -6)   
I was on terms with my doctor that when I was away at college and I felt like I needed to go on pred, I would. I just made sure to call him or tell him at my next appointment.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Regular Member

Date Joined Apr 2009
Total Posts : 166
   Posted 8/13/2009 6:20 PM (GMT -6)   
I was just finishing up my prednisone (2.5mg) and not scheduled to see my doctor for a couple of weeks. I was having some symptoms again, so I called his office to ask what to do. He told me to go back onto 7.5 mg of prednisone and start tapering again after 2 weeks by 2.5 mg each 2 weeks. I really didn't want to start up again, but 7.5 is not too bad, and already today I feel a bit better. Sometimes it apparently takes a couple of goes at tapering to keep things stable. The other thing I am doing is using salofalk suppositories. My CD is mostly in the last 2 inches of my colon, so that helps. I don't know if you are on any maintenance medication like salofalk, but my GI had me keep that up during the prednisone so that when I tapered I didn't have to build that up again.
44 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March this year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Prednisone 5 mg, Salofalk 2000 mg, Nexium 40 mg, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Salofalk suppositories as needed.

Regular Member

Date Joined Apr 2009
Total Posts : 174
   Posted 8/13/2009 6:34 PM (GMT -6)   
Yeah I'm on pentasa... I went ahead and took a dose of pred and am gonna taper off it the next 2 weeks... Got an appointment for a ct scan on 8/27 so we'll see whats up then (maybe)

Regular Member

Date Joined Mar 2005
Total Posts : 357
   Posted 8/14/2009 7:00 AM (GMT -6)   
I have put myself on pred several times. I've lived with this disease for so long that I can usually figure out when I need it. It's not like anyone's using prednisone for fun! My doctor trusts me to use it when/if I feel I need to.
32 year old female... diagnosed with Crohn's at age 16, then with proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, 20mg Prednisone, Bentyl and Percoset as needed... just started Remicade

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/14/2009 7:59 AM (GMT -6)   
I like Kriss have had the disease for a very long time and my doctor trusts my judgement, so I do occasional bursts of Pred when needed. Can you just put a call into your doc and just ask him what he thinks first?

Remember we are not medical doctors, so I think instead of asking us, maybe you should call and ask your doctor.

Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Apr 2009
Total Posts : 174
   Posted 8/14/2009 5:53 PM (GMT -6)   
Yeah, I understand you all arent medical doctors but sometimes 30plus years of experience is better than a piece of paper saying you know... And you guys are a lot easier to access than a doctor. But I had to call into work today so I decided if I couldnt go to work I should hit up the ER.. Got back on pred and got some pain relievers and a ct scan. Inflammation and stricturing. Got a follow up with my GI next week.

Julia Hill
Veteran Member

Date Joined Mar 2008
Total Posts : 543
   Posted 8/15/2009 8:26 AM (GMT -6)   

I to have had crohn's for many years and have used pred many times. I always phone my GI before starting the pred myself, because on many occasions he has wanted to exam me first and perform tests to get to the root of the problem first. Pred can also mask an infection. Phone your doctor, maybe you can get in sooner.

All the best,
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