Post Edited (ArtistMum) : 8/28/2009 5:51:12 PM (GMT-6)
crohns/colitis/lupus/hyperthyroidism-seton fistula pentasa prednisone cipro flagyl vicodin Ultra
waiting on Remicade
Hi Fall Colours,
WEll I was getting councelling but you only get 12 free sessions a year here and my therapist doesn't take paid customers. Yes, our system is different over here. I love my therapist and she is supportive. She even has another patient going through the same thing, a male. I did end up calling her. Today my fistula wound has cleared up again. If I went to the surgeon today he would think I was insane I reckon. But then maybe two days later it has discharge and pain and redness again. I dont' know whether I'm coming or going.
I have to tell you though, being on post with you guys is helping. I have contact , I have support. I need to stay on the site until I get better. I can only get support from people who know exactly what its like. I will watch my depression closely and monitor my moods.
Ever since the last surgery I have had stomach pain and pain all down my left side which stops me from sleeping at night. My body is not the same. I went back to Yoga on Friday and it felt good but my body aches like it never did before.
If I go to my doctor she over dramatises. She wants me to come in on Monday and get the nurse to dress the wound and put some sort of dressing that sucks out infection. This concerns me because I'm not sure if the surgeon would approve. I just don't want a new bunch of people looking at my bum. Its so alwful. I think I should wait to see the surgeon. Should I tell him its flaring up and down. Should I tell him about the stomach pain and the rest. I just can't get much out of this man. He is the best colorectal surgeon in melbourne by the way. He is meant to be the best. They just don't say much surgeons. I think maybe because they don't know themselves?
Don't worry about me. I am out of bed and doing things again. I have a huge challenge with this as it effects my bipolar in such a way. But I know how to ask for help. I know how to reach out. I won't do anything silly, even if I actually say I might. Been there before, many many times. I will not suicide over a hole in the bum. I will not give up. I promise. Billy
Poorlybot and Artistmum - I too have thought I would go crazy over this anal abcess/fistula mess and my surgeon also won't commit to anything. She just says it all takes time. I've had the first surgery for a large abcess and drains put it. Then the drains were taken out for about 6 weeks. Then she put in 2 seton drains - 1 at each end of the place where the abcess was. I saw her 2 weeks ago and she suggested another surgery in about 4 weeks to "have a look".
I've had to learn to accept that this does take some time and it's not like other areas of the body that seem to heal quicker. She's trying to avoid making me incontinent, so is taking great care. I would love for all this to be over and am sorry for all who are having to go through it. Probably like most people, I had never heard of any of this, so that makes it all even scarier, and it is hard or impossible to discuss with most people - they just don't understand what we are going through. I do agree though that if you can try not to focus on that area so much, it becomes something you mainly think about just at bathroom/shower times. I only deal with my surgeon for issues and questions - my family doctor and other specialists are fairly clueless about this stuff. If you are having pain or see consistently more drainage/infection, give your surgeon's office a call.
I'm trying to listen to the good advice of FallColors and others and busy myself with other things and have faith that if more procedures are in order that I can have the strength to get through it. Hopefully, we can get these beasties to heal up nicely and put it all behind us soon (no pun intended).