Seton..drainage occurs from seton...and around the incision site..is this normal

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frogeleita
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Date Joined Jul 2009
Total Posts : 342
   Posted 8/14/2009 5:29 PM (GMT -7)   
Hi, just a quick question as i didn't want to ask the doctor being as its now the weekend...should the seton drain not only from the seton but around the incision site...i thought the tissue was supposed to heal...and the incision is larger than the seton..this is going to heal..will pus then get trapped inside causing an abscess right around the seton...so is the pus supposed to escape and drain around the seton..thnks! :)

medchrt1
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Date Joined Sep 2005
Total Posts : 517
   Posted 8/14/2009 6:24 PM (GMT -7)   
Whats the post op procedure,,bath? well you want to do sitz bath and then let it dry, and do again. Ask if you can put some plain salt in bath,,no soap please as that is not good. So the bath will permit the pus to release easier.

frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 8/14/2009 7:41 PM (GMT -7)   
yes sitz baths and take the percocet as prescribed..thats pretty much it

frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 8/15/2009 4:18 AM (GMT -7)   
yeah  I called my surgeon..he told me i also have about a four inch open gash so the abscess will really drain and then scar in around the seton forcing this stuff to only come through the seton..but this is irritating..me i tried to put a guaze in there but that was uncomfortable..does anyone know where i can get a peri-rectal bottles  for washing off..my shower head is stuck on with some type of glue..probally because i live in an apartment...and i can't remove it to put one of those fancy ones with the spray..should i ask managment if they would make an exception? thanks

FallColors
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Date Joined May 2007
Total Posts : 1220
   Posted 8/15/2009 5:43 AM (GMT -7)   
Hi Frogeleita,

It all sounds normal to me. I asked those very same questions -- how is this large wound ever going to heal with all that "stuff" down there?!?!? Won't it get infected??? My doctor said the same as yours -- it will heal from the inside out. It will heal up around the seton. I have had three of these and that is exactly what happened. It is just so very disturbing to so see such a large open wound, and think of the stuff down there. But the body deals with stuff down there normally, and it knows how to handle it now. So take comfort in that!

Unforunately, it is going to take time to heal. It took several months for mine to close completely. My doctor said I could be as active as I wanted to be even with an open wound. I also put gauze in the wound. At first the gauze would stick when I went to remove it -- ouch! I found that using the shower sprayer to wet it first made it easier to remove. I definitely recommend you get your apartment people to install your sprayer - or call a plumber. Expensive but well worth it!!! You can really keep it clean with the sprayer, and that gave me peace of mind. I also use soft guaze squares 4x4". Just feels better to me.

My mom also had a great idea to help speed healing (how do mothers know these things??). She said to wet the gauze with saline before putting it in the wound. I bought saline at the pharmacy, and then found out that my doctor could prescribe large size saline for very cheap. Salt keeps the wound more sterile and for some reason it does speed healing. Also, take at least 3-4 sitz baths a day. All of my doctors said there is nothing better than sitting your body in a tub of hot water for at least 10 minutes several times a day. The toilet sitz baths don't work nearly as well. Being in the tub stimulates blood flow in the body which speeds healing. So get a book or magaizine and get in your "healing bath"!

I really do feel for you! You will need a lot of patience to get through this -- and you will get through it!! Now if it starts going in the wrong direction -- hurts alot more, you get a fever -- then call you doc. Otherwise just try to relax and watch a lot of good movies.

I'd be happy to talk off line if you wish. Click on the email icon that is lit up under my name.

Take care!!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 8/15/2009 9:23 AM (GMT -7)   
thanks fallcolores...i will try the saline....i need to buy some from cvs...moms know all don't they?! I appreciate your response and i will email you...i feel like i keep asking a million questions...its such new territory for me..luckily for me..my surgeon is really nice and he never asks like he is annoyed by my questions..thats a good idea about a bath..i can skip the shower and just take baths...hey do you have any idea how to update my profile? thanks again! :)

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/15/2009 10:37 AM (GMT -7)   
I am glad you have a doctor who will take the time to communicate with you! I've also found that surgeons' nurses are very compasionate too and are willing to take time to talk to me and even see me.

Sitz baths are great. They can get old after a while, but keep doing them! I still recommend the shower spray too. I spray after each bowel movement even now.

In the beginning I was really stressed thinking about how to get clean. Like freak out stressed. Its not like you can easily clean the setons. Keeping clean at home was easy once I figured out to get the shower sprayer. But when the wound was almost closed and I needed to go out to the store or work, I still had diahrea from antibiotics. Then I found a small bottle that I can adjust to a strong stream so I can shoot out the stuff (misting does nothing). So I carry a kit with the spray bottle, guaze squares, and alcohol-free flushable wet wipes. Ready for anything! Once I got the kit, my stress level went way down.

You can change your profile by clicking on "Control Panel" at the top left of the page.

Keep on asking questions! There are so many on this forum that have gone through this and they willing to share and listen. It is summer so many are away, but you can always look through old posts.

Take care!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 8/15/2009 12:57 PM (GMT -7)   
Just wanted to chime in to say that is the way it went for me too. My surgeon actually told me not to look right away as it would freak me out (the big incision).. She'd say it would "look like a bomb had just gone off." LOL - anyway, of course I'd look to see what had been done. It can be alarming. And the draining is frustrating. I still have my fistula, but just had my third seton removed yesterday. I am just hoping that Cimzia will actually help to close it up.

I also use the shower sprayer to keep clean. Baths are great, especially in the beginning. But, when I don't have time to take a bath, I use the sprayer.

Instead of guaze, I use these 3"x4" cotton squares to push up against the incision. I find them in the cosmetic aisle of places like Target or Walmart (or in my case, Fred Meyer).

Good luck!
--female dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone, Tysabri
--Prochymal in Phase III study (can't wait til it's approved!)
--Compounded budesonide 3mg/daily, Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09


FallColors
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Date Joined May 2007
Total Posts : 1220
   Posted 8/15/2009 4:15 PM (GMT -7)   
Hi SR5599,

I wish they Fred Myers here in DC! I love 4x4" mirasorb guaze sponges ($5.99 for 50 -- 25 packs with 2 each). So nice and soft.
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


bluemom51
Regular Member


Date Joined Jul 2009
Total Posts : 25
   Posted 8/16/2009 8:05 AM (GMT -7)   
I'm still trying to heal from a large abcess in March.  Have had seton drains in since 6/10.  I tried to restart my baby aspirin 2 days ago since I had taken it the prior 2 years, and today there was significant bleeding when I went to the bathroom, so I'm definitely going to stop it.  I see my surgeon on Tuesday - hopefully it's not on to surgery number three.
 
What is the saline everyone talks about - do you just add table salt to the sitz bath, and how much?, or is it something else.  I'm very overweight and a full bath is too much of a struggle for me.
 
Also, has anybody's doctor given them some sort of standard prescription or special compounded cream to use on the outside skin areas.  I'm always so tender and hurting there, and my doctor has never given me anything. 
 
You are all very brave and strong to deal with all this with the great attitudes you seem to have - I feel like a complete pile of wimpy mush, and hope to learn from your strength.  Thanks for your help.

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/16/2009 11:12 AM (GMT -7)   
Hi Bluemom!

It is saline in a bottle. You can get it at most drug stores. If you liek it, ask your doctor to write a prescription so you can get it cheaper. You probably could make it. Try googling "make your own saline solution" It shouldn't take much salt at all.

I used to crouch down in the tub and use the shower sprayer. But my knees started to go. So now I put one foot in the tub and one out of the tub and then sit down on the side. Very easy to spray it all away and easy to get up.

Drainage gives me skin yeast infections. It is diaper rash(!). Your skin begins to break down and it can be amazingly painful (believe me). If you have an infection, topical medicines and cremes won't work. Your doctor needs to prescribe diflucan (or something similar). Then use a creme to protect your skin from wetness and icky stuff. I use Balmex baby creme because it doesn't smell bad, but any creme with zinc oxide will work. Apply liberally, and after each bathroom use. Works great for me. "Baby" yourself!


Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 8/16/2009 1:47 PM (GMT -7)   
Hi thanks for your support all your replys..it feels so good to know..their are so many people out there battling this..i am trying a spray bottle..but it doesn't work that well with some salt water..but i put too much salt and i was near tears..or honestly in tears...now this is weird coming out of my anus is this little black thing..its what they use to tie around the seton..for the most part the upper portion is tied perfectly..but something is coming out of my anus and its poking me...is this normal..or do i need to let my doctor know? I feel right now like i am completely falling apart..i can't stop crying..i am depressed and i don't have any spousal support...he wants me to just take my medicine and suck it up...and i want to talk about it and i want to be able to cry about it

frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 8/16/2009 1:49 PM (GMT -7)   
is it normal to have such a large incision..mine is like 4 or 5 inches.its like the length of the fistula...? how deep is this incision..its making me worried..i am having anxiety problems big time thanks

frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 8/16/2009 1:53 PM (GMT -7)   
also one more thing...all this soaking is irritating the vaginal area and now i feel like i have a yeast infection... but i don't want to use the messy creams..should i just call the nurse tomorrow with my concerns? who do i call when i have a yeast infection if i want difuclan? or however you spell it..thanks

bluemom51
Regular Member


Date Joined Jul 2009
Total Posts : 25
   Posted 8/16/2009 2:28 PM (GMT -7)   
I found out the hard way (after suffering bad anxiety for too many days) - yes, call your doctor, but speak to their nurse.  The nurses are really great and they will take more time explaining things and offering helpful suggestions.  If they think you need to see the doctor, they'll make you an appointment, but many times they can calm your fears, explain what is normal and what is worrisome, etc.  Because my surgeon wouldn't tell me anything or talk to me, it made me so much more afraid.  Since then I've called her nurse 3 times and she always helped me tremendously.  Good luck, and do call your doctor tomorrow - you'll definitely feel better after getting some of your concerns explained or looked at.

frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 8/16/2009 2:57 PM (GMT -7)   
thanks i called him...i couldn't help it..i was crying though...i can't stop crying...its hard...he said to take ibuprofen and called in diflucan and told me that a suture seems to have come loose and that he can trim it ..because i told him its causing me pain..cause i have hemmoroids...i am going to stop calling him and start just calling the nurses for now on...thanks bluemom

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/16/2009 3:11 PM (GMT -7)   
Hi Frogeleita,

I know from personal experience how very very difficult it is to do this alone. This is not something we are prepared for -- how can we know how to handle it?! It does sound like you have a large incision. I had one too. When I saw it the first time I became dizzy and nearly fainted on the bathroom floor. I was in shock. I couldn't believe I could ever manage it. But I learned to do it one hour at a time. Literally I would say to myself "another hour has passed and I made it. I am one hour closer to this being healed and over with". I know it is hard to believe when you are in the blackest part but it will get better. You will get through this and be healthy.

They use a thick black silk thread to tie the seton ends together. The thread follows the seton all the way through. Mine always breaks and comes out -- and it sounds like yours is too. The knot stays tied in the seton so my setons haven't come out. Just the thread. I do think you should call your doctor's nurse tomorrow first thing and ask to get in to see her. I doubt this is an emergency at all, but why not get her to take look? And look everything over too while you are there. I learned I had to be assertive and get in to see them. I learned that they actually don't mind at all and actually assume you will ask to come in if something is wrong. But most of us just sit at home freaking out at the unknown. So please get in to see the nurse or physian's assistant tomorow. I went in once a week for about two months. One time I went in because I developed a red, angry patch near the incision that hurt like it was on fire! Ouuuch!!! I of course assumed I was dying. It turned out to be diapher rash. How was I to know that?!? I don't have children. I felt very foolish, but the nurse assured me it OK and to come in anytime. She was so caring and compasionate.

This is the very roughest part. You are going to get a lot of ugly discharge. Don't let this worry you because the body is just clearing infected stuff and dead tissue. Scary, but all normal. You could take one step forward, two steps back, and then three forward again. This is totally normal. If you get a fever, that is something you want to call you doctor about. But otherwise just keep the nurses number handy. Try to relax and get something to distract your attention. Happy movies and light-hearted comedies are good -- no dramas and definitely no doctor/hospital shows!

Please write as often as you need. We are here for you! Email me if you would like. My address in under my name on the left side of the page (the lit up envelop icon). I am praying for your healing, peace, and comfort!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


bluemom51
Regular Member


Date Joined Jul 2009
Total Posts : 25
   Posted 8/16/2009 5:25 PM (GMT -7)   

FallColors is right - don't hesitate to call and speak with the nurse and if you're really scared, make an appt. so they can look at things.  I also have fussy hemmorroids and a couple of small fissures.  Add that to this surgery and you're not only miserable but really really freaked out.  I keep saying I'd rather have something going on with my arm or something than "down there" - ugghh - it's a big pain, literally.  Then the fun begins all over every time you go to the bathroom or have drainage, etc.  It's not like a little wound somewhere that is dressed and is left alone and heals right up.  That's been the hardest thing for me to get used to - that this is going to take weeks and months.  Keep asking your questions on this forum - everyone here has been so nice and kind and patient with me.  Try ways to distract yourself to reduce your anxiety - it's not easy, but with practice, you'll feel better in a few days, I promise (I didn't believe it either at first). After a little while, you'll just go about your routines and mainly only focus on it a few short times a day.

 


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 8/16/2009 8:11 PM (GMT -7)   
Thanks you guys..you are the best..i am keeping notes on suggestions made by all of you..lots of good ideas and you help me to calm down..i couldn't get through this..without this support! hugs!
I will call in tomorrow..i am nervous about the doctor cutting anything..its like i don't even want to be touched there at all...but i don't like being poked down there and for some reason its so painful. Either way the doctor said to take prescription strength ibuprofen as well..and that in combination..well i am feeling great.. and i am getting ready to get my "kit ready"...so that way.. i have all the stuff i need to feel better...thanks again!
Crohn's Disease,Colitis, Lupus, Hyperthyroidism, anal fistual-seton
medicine-Pentasa...previous..Asacol, Prednisone, Imuran, Flagyl
Peri-rectal surgery-ishiorectal horseshoe shaped abscess, seton placement, two c-sections
soon to be on either Remicade or Humira
Valerian and Melatonin to sleep
First Diagnosed with Crohn's in 2001


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 8/17/2009 9:02 AM (GMT -7)   
Well for those who are reading this post..i am waiting for a call back from the nurse..i told them all the hard times i am having..because now their is a smell coming from the discharge..and i don't know its that normal..and i have like blood clots coming from somewhere and some are made up of more than blood..its hard to say..but on the positive side..i took everyones advice call my apartment complex...and if i buy the shower head that i want..they will install it for free for me..they were really nice about it. I was just wondering..has anyone here had to take some type of depression medications or anti anxiety meds..because they couldn't stop crying...or do these narcotics make me cry alot...its like the tears just keep streaming down..thanks for your support
Crohn's Disease,Colitis, Lupus, Hyperthyroidism, anal fistual-seton
medicine-Pentasa...previous..Asacol, Prednisone, Imuran, Flagyl
Peri-rectal surgery-ishiorectal horseshoe shaped abscess, seton placement, two c-sections
soon to be on either Remicade or Humira
Valerian and Melatonin to sleep
First Diagnosed with Crohn's in 2001


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/17/2009 10:01 AM (GMT -7)   
Hi Frogeleita,

I am so glad you can get the shower sprayer!! Yea!!!!

I am looking at your list of medications (by the way, your signature is very hard to read because of the color. I suggest you make it a darker color). Are you still on flagyl? It is a great antibiotic and often it is exactly what is needed for infections that have rectal/bowel involvement -- but it does a number of on your emotions. It made we wheepy and very emotional and that is not me at all. If you are on flagyl, do not stop taking it unless your doctor tells you to. It is a "big gun" antibiotic for big issues, and you may just have to deal with it because other antibiotics are not as good. It helped me know that it was the drug that was causing hyper-emotionalism. I was willing to suffer through it if it killed the infection!! Please let your nurse know what you are taking. Hang in there!!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


bluemom51
Regular Member


Date Joined Jul 2009
Total Posts : 25
   Posted 8/17/2009 11:07 AM (GMT -7)   
My doctor gave me a low dose of Xanax - .25 - taken when needed.  It is fine to use, especially short-term, and helps quickly with anxiety attacks.  Some days, weeks, months, I don't need any, but when the anxiety flares like when you're dealing with something like this, it can feel like a real life saver.  Hope you start feeling better soon.

frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 8/17/2009 10:12 PM (GMT -7)   
Hi, I used to take Flagyl..that was a while ago..i was on it for a few months..and i had horrible diarrhea and bad joint pain ..like as if i was sick or something..so he took me off it..i want to take some new meds..different then what i am taking now..its only Pentasa..and its not doing much for me...in the past i took Imuran for a long time..they told me it would heal my fistula..but it never did..it started getting strange infections like lymph node infections and had a cancer scare..and it made my hair fall out alot...and since it wasn't helping me..it was my decision to stop taking it...I really am eager to try Remicade or Humira..or possibly getting back on Flagyl and giving it a second try...i know that Pentasa and Asacol did work..because the first colonoscopy..showed alot of inflammation in the colon (he couldn't get to the small bowel first time) and then like 3 years later..after being on medicine next colonoscopy showed...inflammation in the illeum and just rectal area..but its been a long time...since i had one..i don't know where i have inflammation now..except rectal area...the nurse called me back..she said it sound like i am having muscle spasms down there..my god they hurt so bad...i tired to put guaze in there..but it puts more pressure..but i can see hemorroids trying to find their way out...and i passed some strange blod clot from that area...she was really nice and i was thankful to talk to her..being that this is new territory..i don't know exactly what is going on with me..she told me this drain will be in maybe 6 weeks until the next stage of surgery...i am going to ask about zanax or something from my primary care doctor...because i tend to get really worked up..and i this forum is really my only real support..thats why when i say thanks to you guys..i really mean it from the bottom of my heart..i dont' know how i could get by without you guys talking to me..i talk to my gramma, and email my brother...and after being estranged from my parents..we are finally emailing and writing letters...i can't wait for my shower thing to be installed...that was such a good idea to get one! Going through this..its making me look at people in a different light..when i see someone walking down the street..i am thinking..you never really know about someones personal struggle or hard life is for them...i hope someday i can feel better enough to go back to school and be a hairdresser...thanks again
Crohn's Disease,Colitis, Lupus, Hyperthyroidism, anal fistual-seton
medicine-Pentasa...previous..Asacol, Prednisone, Imuran, Flagyl
Peri-rectal surgery-ishiorectal horseshoe shaped abscess, seton placement, two c-sections
soon to be on either Remicade or Humira
Valerian and Melatonin to sleep
First Diagnosed with Crohn's in 2001


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 8/17/2009 10:51 PM (GMT -7)   

 

Oh frogelita I feel your pain, everything you just said – its exactly how I feel too. You start to look at people slouching down onto couches and chairs without a care in the world about their butt or an abscess or anything like that! We are all here for you and I know I would not have gotten through my 2 abscess surgeries / seton / mushroom catheter placement if it were not for the people on this board.

 

Once you have your shower sprayer I am telling you it will be a new lease on life! It sprays everything clean and it doesn’t hurt like TP and leaves you sparkling fresh!

 

If you have spasms it sounds like fissures, I have them too, there is a cream you can get from the chemist for fissures, it is pretty full on and can give you headaches but ask the pharmacist, it does provide relief for bad fissures. At the moment one of my skin tags has like a cut on it or something and even when I spray the area it kills and its so sore to walk!

 

You’re on the road to recovery now, just think, the worst is over. And yes, I think we all look at people in a different way now, but I know you are stronger and wiser…. You’ve been so much and I feel for you because I know how petrifying it can be and nobody understands even if they try to. But we do. hugs hugs hugs

 

 


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 8/17/2009 10:59 PM (GMT -7)   
aww thanks..your the best..what is this spray called..i have to find it..its like weird spasm pain on one side...because i will buy it tomorrow..thats what i will tell myself road to recovery..somewhere on this path..their has to be "my pot of gold"....(my pot of gold would be no fistula) I would dance for joy to not have a fistula..i am envious of anyone who doesn't have one! I can't wait to shower spray away...relief is coming! hugs to u 2!

First diagnosed with Crohn's in 2001 after large peri-rectal abscess..followed by ishiorectal horseshoe abscess...developed a anal fistula connected to the sphincter muscle..drained for about eight years..abscessing many times and getting lanced in the office. Recently had seton drain put in and incision made to drain..to get the inflammation under control to see how much muscle is involved and see if this fistula is possibly superficial. Drain should be in at least 6 weeks until next stage of surgery.

I am currently taking Pentasa..in the past..I have taken Asacol, Imuran, Flagyl, Prednisone. My colon rectal surgeon has stated I might up end up taking in the future..possibly Remicade, Humira, or 6MP.

I have also been diagnosed with Colitis, Lupus, Hyperthyrodism, and possibly Pleurisy.

I am allergic to Plaquenil, Iodine..when used as a contrast dye, latex.

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