FallColors is right - don't hesitate to call and speak with the nurse and if you're really scared, make an appt. so they can look at things. I also have fussy hemmorroids and a couple of small fissures. Add that to this surgery and you're not only miserable but really really freaked out. I keep saying I'd rather have something going on with my arm or something than "down there" - ugghh - it's a big pain, literally. Then the fun begins all over every time you go to the bathroom or have drainage, etc. It's not like a little wound somewhere that is dressed and is left alone and heals right up. That's been the hardest thing for me to get used to - that this is going to take weeks and months. Keep asking your questions on this forum - everyone here has been so nice and kind and patient with me. Try ways to distract yourself to reduce your anxiety - it's not easy, but with practice, you'll feel better in a few days, I promise (I didn't believe it either at first). After a little while, you'll just go about your routines and mainly only focus on it a few short times a day.
Oh frogelita I feel your pain, everything you just said – its exactly how I feel too. You start to look at people slouching down onto couches and chairs without a care in the world about their butt or an abscess or anything like that! We are all here for you and I know I would not have gotten through my 2 abscess surgeries / seton / mushroom catheter placement if it were not for the people on this board.
Once you have your shower sprayer I am telling you it will be a new lease on life! It sprays everything clean and it doesn’t hurt like TP and leaves you sparkling fresh!
If you have spasms it sounds like fissures, I have them too, there is a cream you can get from the chemist for fissures, it is pretty full on and can give you headaches but ask the pharmacist, it does provide relief for bad fissures. At the moment one of my skin tags has like a cut on it or something and even when I spray the area it kills and its so sore to walk!
You’re on the road to recovery now, just think, the worst is over. And yes, I think we all look at people in a different way now, but I know you are stronger and wiser…. You’ve been so much and I feel for you because I know how petrifying it can be and nobody understands even if they try to. But we do. hugs hugs hugs
First diagnosed with Crohn's in 2001 after large peri-rectal abscess..followed by ishiorectal horseshoe abscess...developed a anal fistula connected to the sphincter muscle..drained for about eight years..abscessing many times and getting lanced in the office. Recently had seton drain put in and incision made to drain..to get the inflammation under control to see how much muscle is involved and see if this fistula is possibly superficial. Drain should be in at least 6 weeks until next stage of surgery.
I am currently taking Pentasa..in the past..I have taken Asacol, Imuran, Flagyl, Prednisone. My colon rectal surgeon has stated I might up end up taking in the future..possibly Remicade, Humira, or 6MP.
I have also been diagnosed with Colitis, Lupus, Hyperthyrodism, and possibly Pleurisy.
I am allergic to Plaquenil, Iodine..when used as a contrast dye, latex.