Post Edited (Keeper) : 8/15/2009 10:52:30 PM (GMT-6)
6 years ago when I had mine done, my insurance covered it 100% - thankfully.
Ironically mine came back with no diagnosis - thankfully my GI at the time went by my Colonoscopy biopsies, SBT, and labwork to diagnose - he did tell me that (at that point) that he wouldn't make the final diagnosis from Prometheus test and that my result was wrong.
Just my story
jeanneac, I'd been having problems for about 7 or 8 years before being diagnosed with anything (other than IBS or a bad gallbladder). I still don't think they diagnosed me with anything based on the promethius results alone, but they did a capsule endoscopy and then diagnosed me. I don't remember how long they were saying it was indeterminate. They said I had symptoms of both. Eventually, I noticed they started writing Crohn's instead, but I also switched GIs a few times in a couple years, so I don't remember when the dx changed.
As for the warnings about insurance not covering the test, I had three promethius tests previously that were all covered by insurance without any fight at all. I was still with the same company and, as far as I knew, the same plan, but the last test got denied. When I contacted insurance, I was told that our employer had changed their insurance plan number and that it was no longer covered. So, you can have coverage for that test and then lose it without even knowing anything has changed.
If you're worried it might be crohns my advise is to have other tests run like a small bowel follow through, colonoscopy and maybe the pill cam test. Those would allow the doctors to examine your full gastro track and if something's not right they're bound to see it. If those come back positive for crohn's and the serology did too then there's no doubt. However, if they come back negative then it's possible maybe the serology test was wrong. At any rate, I would trust the tests I mentioned above more than serology because serology is still somewhat new and isn't meant to be a substitute for those other tests. Bottom line, if I were you I would want the other tests.