? for the ladies........

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New Member

Date Joined Aug 2009
Total Posts : 4
   Posted 8/15/2009 6:04 PM (GMT -6)   
Hi all
I hate for this to be my first post but I am a bit concerned...........I am as yet one of the great undiagnosed........last scoped 6 yrs ago.......nada zilch nothing but I was already on mtx for another condition. I ceased mtx over 12 months ago and bang symptoms come back!
 I am due to be scoped again with an edoscopy next wednesday.........just starting the prep.
I have been unwell since last xmas........this AM I have worse then normal pain on the middle left side. Sort of flank pain? I have ' been' a number of times already today and now have that " sit and nothing much happens" urge.........except I have a small amount of bright vaginal blood. I dont have a uterus ( got rid of that long ago )so Its not a period! It seems to be only when I open my bowels..... I feel unwell, shakey, hot and cold and I was really good yesterday other than not being able to stay awake! My back aches and my mouth feels ' greasy '............
Could it be a fistula? I know its not a fissure ( I have had 2 repaired. ) and I dont have any pain in that area.
Any advice gratefully recieved!

Elite Member

Date Joined Feb 2004
Total Posts : 20558
   Posted 8/15/2009 9:51 PM (GMT -6)   
OUCH, sounds like it could be a fistula, especially if it's not from periods, I hope you'll be in to see your doc about this right away?

My bum is broken....there's a big crack down the middle of it! LOL :)

Regular Member

Date Joined Jan 2006
Total Posts : 355
   Posted 8/16/2009 12:04 AM (GMT -6)   
Are you sure it's from your vagina and not your urethra/bladder? Could it be a kidney infection or stone? Just a thought. The flank pain and hot and cold situation makes me wonder. I suggest getting to the doctor asap also. Hope you are well soon.

New Member

Date Joined Aug 2009
Total Posts : 4
   Posted 8/16/2009 2:42 AM (GMT -6)   
Thanks ladies
pretty sure its not urethral........wrong side of the paper ( sorry tmi!) Panadol has taken the temp down and things have settled a little....
No chance on getting in to see the Dr.......will cope till Wednesday and maybe have time to mention it to the GI doing the scope..........I seriously hate this :(

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 8/16/2009 6:04 AM (GMT -6)   
Good luck with everything Jan! you will be in my thoughts

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/16/2009 8:08 AM (GMT -6)   
Hey Jan,

Any possibility of getting in with your family doctor instead of the GI before your scope? Or can you at least put a call into the your GI to discuss this latest development? If things get worse before Weds, do go to ER if needed. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

New Member

Date Joined Aug 2009
Total Posts : 4
   Posted 8/16/2009 2:14 PM (GMT -6)   
thanks ladies
no chance of seeing my gp unless i am REALLY sick.........:( and I have only met this gi once before...............I will see what he comes up with but am not holding my breath..................Drs that mumble mumble ibs as they are typing dont give me a lot of reassurance..........

Regular Member

Date Joined Oct 2008
Total Posts : 376
   Posted 8/16/2009 11:51 PM (GMT -6)   
definitely mention it before the scope so they can sort of look toward that area. I had a fistula that went into my vaginal wall...and its just plain disgusting (and this while IN a hospital for them to well, notice or help me care for it). It could even be caused by muscle strain. Just keep in mind that a bit of blood is not especially scary (you could've caused tearing by a lot of um, straining caused by the colon prep stuff)...teaspoons as compared to cups (scary scary ER time scary).
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Allergies and Asthma my whole life
OTC Wal-Zyr D 12-hour
Depression after surgeries and illness of 2003.
Crohns Dx'd: February 2008.
Fibromyalgia Dx'd: July 21, 2009
Prenatal Vitamin

Regular Member

Date Joined Jun 2009
Total Posts : 202
   Posted 8/17/2009 11:38 AM (GMT -6)   
I routinely get vaginal fissures.  I have no uterus either.  Evidently it goes along with all the other fun Crohns symptoms.  But I do agree with the others, make sure you mention it to your doctor, sooner, rather than later.  I hope that all goes well.

Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum. 
Current Medications for the Crohns:  Humera 40mg injections every other week, Imuran 150mg, 3xday, Hyomax, Welchol 625mg, Vancocin HCI 125mg, 4xday for C-Diff, Calcium, Acidophilus & Potassium
Previous Medications I've been on:  Asocal, Pentasa, Cipro, Prednisone, Flagyl & Entocort

New Member

Date Joined Aug 2009
Total Posts : 4
   Posted 8/19/2009 5:18 PM (GMT -6)   
I have the invisible GI.................didnt see him before or after my upper and lower scope............the anesthetic guy did a very good job tho!
I asked the theatre nurse if I could look in the theatre notes ( which we did ) otherwise I would be none the wiser.:(
Mild divertictultis on the ascending colen, 2 x 1cm polyps and 6 biopsies sent to path.............a drawing of the stomach with a horizantle line across the top ( at the fundas ) and 40 written next to that............no idea on that one.
No instructions left other than see your local MO in 2 weeks ( obviously to read the report )
So I didnt get to ask about the possibility of a fistular.............however I did note that during the prep.......Pico.......that I had vaginal fluid suprisingly the same colour as the bowel fluid !
I can see how the diver fits but I have lost nearly 10 kgs and feel very ordinary.........
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