How many days until you decide it's a flare?

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chrisnsteph1022
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   Posted 8/18/2009 7:59 AM (GMT -7)   
After being in remission for 5 years, how many days of 5-10x/day pure liquid D would you go before calling the GI? I'm on day 4. It could just be a bug, right??

CrohnsPatient
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Date Joined Feb 2008
Total Posts : 314
   Posted 8/18/2009 8:13 AM (GMT -7)   
for me it all depends, how much actual pain are you in, are you able to stilll eat, are you not vomiting are you acble to hold down liquids. How much is it affecting your daily life so far.

chrisnsteph1022
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   Posted 8/18/2009 8:19 AM (GMT -7)   
Not vomiting, but never did with my first flare (I've only had one-lasted about 6 months). Pain comes and goes, but tolerable. I'm on an all-protein diet (trying to lose weight) and exercising daily. Today is the first day I've skipped the gym, but it's the D as well as a cold I'm struggling with. So definitely mild...but I'd hate for it to get severe.

CrohnsPatient
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Date Joined Feb 2008
Total Posts : 314
   Posted 8/18/2009 8:21 AM (GMT -7)   
You know it almost seems to me since the 'pain' is tolerable that it might be something along like the flu or similiar since you think you have a cold, it would only makes sense to me. I think your lucky you never had vommitting, or constant pain.

chrisnsteph1022
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   Posted 8/18/2009 8:21 AM (GMT -7)   
I just remembered something else-I had a blood panel done about 3 weeks ago to check my cholesterol and stuff and my WBC was slightly elevated. The doc said it wasn't high enough to cause concern, but she doesn't know about my history.

chrisnsteph1022
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Date Joined Apr 2003
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   Posted 8/18/2009 8:24 AM (GMT -7)   
Oh, I did have constant pain last time. But never vomiting (except with scope preps-those always made me puke). But right now, the pain just kinda comes and goes.

corysgirl06
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Date Joined Jul 2009
Total Posts : 4
   Posted 8/18/2009 9:29 AM (GMT -7)   
If your whites are elevated, you need to let your doc know about whats going on. If you have a history of bowel disease then you could be having an exacerbation of some sort. Don't wait too long or it could get worse very quickly and suddenly. It could be a bug, maybe nothing at all. But just go to the doc and give yourself pice of mind! Advice: Once you have this under control it may be prudent to see a GI specialist and then nutritionist to make sure that you are on the right diet and not eating anything that you may have an allergy to. Good luck and hope you feel well.

Valerie3
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Date Joined Feb 2009
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   Posted 8/18/2009 9:38 AM (GMT -7)   
I have always found my pain borderline tolerable during flares, however I have a high pain tolerance. I was only diagnosed on my last flare, but it was also pretty severe - the only time the pain was unbearable (and I still didn't even go to the hospital) was when I did a bowel prep with an obstruction. I also have only ever had pain that comes in waves, and then a bruised-type feeling on my lower abdomen that I really don't care about at all.

Personally, I would wait about a week, but I've also had a habit of waiting too long on this type of thing. I would suggest that you call your doctor as soon as possible, because it definitely does sound like you might be starting to flare.

Good luck.

pb4
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Date Joined Feb 2004
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   Posted 8/18/2009 9:54 AM (GMT -7)   
Flares/remission can vary for everyone and for each flare (not all flares are necessarily the same each time) I've had 4 GI's tell me that flares/remission can last from a day to yrs.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Nanners
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Date Joined Apr 2005
Total Posts : 14995
   Posted 8/18/2009 10:05 AM (GMT -7)   
Well my personal opinion is that I usually give myself about a week, if things continue and do not improve then I contact my GI. I find that I on occasion will have a bad 3-4 days, I personally do not consider that a flare, but generally just a bad spell because I ate something that didn't agree with me or had more stress than usual. And with those bad spells they never last a week, so for me if its longer than a week, I contact the doctor. JMHO

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 8/18/2009 10:09 AM (GMT -7)   
I now see that you've said you have elevated white count then I would call your doctor, if not today, then definetly tom, ont he 5th day. I wouldnt wait much longer, usually means your body is 'fighting something off' but as you know in us crohnies usually means we're flaring, hence the immuno-suppresents for us to keep down those anti-bodies and such being made to fight imaginary illnesses that we really dont have the body just thinks we have. So bottom line is you should call. I find that amazing you dont vomit even when you flare. I immediatly cant keep anything down, no vomiting and I cant keep down water even , so definetly no food will stay down. I have very watery ostomy, vomiting severe pain obviously dehydrated just very miserable and mine do not and will not get better, until I ATLEAST get an ER visit, more then often I have to be admitted, to get fluids, get pain under control, usually my nasuea is under control by time I leave the ER but the pain is still great and dehydrated and all so they admit me and get that under control give me salumedral(IV prednisone) to get the under lying causes of inflammation getting better and monitor my meals and such on what I can handle. I just gotta give it to you, no vomiting it great, doesnt mean your flares arent bad to you, just I would love to not vomit when I flare, to me that would keep me out of the hospital quite a bit if I coudl just not vomit.

chrisnsteph1022
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Date Joined Apr 2003
Total Posts : 973
   Posted 8/18/2009 10:13 AM (GMT -7)   
Yes, I am definitely lucky in that regard! I did have a lot of nausea with my last flare, and had to take phenergan. I have a phobia of vomiting, though, after being bulemic for a couple years when I was a teen.

pimfram
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Date Joined May 2009
Total Posts : 506
   Posted 8/18/2009 10:30 AM (GMT -7)   
As long as I'm not having a obstruction, I don't do anything other than skipping a meal or 2 and eating a lot less than normal. Seems to work alright.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.


GDen
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Date Joined May 2009
Total Posts : 703
   Posted 8/18/2009 12:09 PM (GMT -7)   
With my current flare I waited about a week before contacting my GE. They said that was too long to wait and in the future to contact them after a couple of days of D.

chrisnsteph1022
Veteran Member


Date Joined Apr 2003
Total Posts : 973
   Posted 8/18/2009 12:36 PM (GMT -7)   
Ok, I'm heading to my pdoc right now for a possible sinus infection or cold or something. I'll have them check my WBC again (it's been 3 weeks) and see if there's been a change.
Stephanie, 29, married for 10 wonderful years and mommy to two awesome toddlers
dx with Crohn's 4/2003, in remission since 11/2003
dx with bipolar II 8/2009, still trying to figure it out


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/18/2009 12:53 PM (GMT -7)   
Let us know what the doc says! Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

chrisnsteph1022
Veteran Member


Date Joined Apr 2003
Total Posts : 973
   Posted 8/18/2009 2:35 PM (GMT -7)   
She didn't know I had Crohn's (I started seeing her after I went into remission) so she drew blood and ordered a CBC panel and sed rate. It will probably be a week (they send it out). If that comes back bad, I'll find a GI, I guess. Maybe by the time it comes back, the diarrhea will be gone. I can hope...
Stephanie, 29, married for 10 wonderful years and mommy to two awesome toddlers
dx with Crohn's 4/2003, in remission since 11/2003
dx with bipolar II 8/2009, still trying to figure it out


chrisnsteph1022
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Date Joined Apr 2003
Total Posts : 973
   Posted 8/19/2009 5:08 AM (GMT -7)   
And now I'm on day 5. Starting the morning off with a bang. Ugh.
Stephanie, 29, married for 10 wonderful years and mommy to two awesome toddlers
dx with Crohn's 4/2003, in remission since 11/2003
dx with bipolar II 8/2009, still trying to figure it out


chrisnsteph1022
Veteran Member


Date Joined Apr 2003
Total Posts : 973
   Posted 8/23/2009 9:43 AM (GMT -7)   
I'm not holding out much hope. I'm on day 9 and it's getting worse. I've gone from a couple times a day (with the exception of the first few days) to where I am today-11am and have gone 5 times so far. And I'm remembering how much I HATE this disease. On the way to the store, I had to turn around and fly back to the house. Then as soon as getting to the store finally, I had to immediately go to the restroom. I haven't gotten the blood tests back yet. I'm not sure what to do if they come back normal. See a GI anyway? I mean, a bug or eating something bad wouldn't last for 9 days. The pain is getting more frequent, but still not constant. Yet. I've been nauseous almost constantly the past 2-3 days. I don't want to wait until it gets reallllly bad to figure out it's a flare and have it get out of control.
Stephanie, 29, married for 10 wonderful years and mommy to two awesome toddlers
dx with Crohn's 4/2003, in remission since 11/2003
dx with bipolar II 8/2009, still trying to figure it out


vitaka
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Date Joined Jun 2006
Total Posts : 887
   Posted 8/23/2009 11:12 AM (GMT -7)   
I would most definitely still see a GI even if your bloodwork comes back normal, as there are a number of different indicators of disease activity and you may not show them all at any given time. I know that the first time I flared my doctor told me my labs were much better than would be expected for my symptoms, but that the bloodwork often does not correlate well for patients with mostly small bowel inflammation (of course, I'm not sure where your Crohn's is located). Your GI will probably want to do some tests (e.g., colonoscopy, pill cam) to determine the disease activity and determine the best treatment options.

I would also encourage you to see your GI sooner rather than later. The longer you wait, the more symptoms that will emerge (assuming this is a flare and not just a bug). I'm in the same boat as you, where my symptoms are not constant yet, but are getting close, and I am waiting to see a GI to (hopefully) nip this in the bud before it gets as bad as my last flare.
29-year-old PhD student, diagnosed with Crohn's ileocolitis in Feb. '06. During the summer of 2006, I completed the Adacolumn Apheresis clinical trial, which helped me enjoy 2+ years of remission and more than one year med-free. During spring and summer of 2009 the symptoms slowly but surely began to return, and now I'm flaring again. Waiting to see GI, back on 4g Pentasa/day.


chrisnsteph1022
Veteran Member


Date Joined Apr 2003
Total Posts : 973
   Posted 8/23/2009 11:59 AM (GMT -7)   
Last time, my small bowel was fine except at the very end. Most of the disease was in the first 1/3 of my large bowel.
Stephanie, 29, married for 10 wonderful years and mommy to two awesome toddlers
dx with Crohn's 4/2003, in remission since 11/2003
dx with bipolar II 8/2009, still trying to figure it out

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