Having Strange Pain Any One With Ideas? Update

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Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/18/2009 10:23 AM (GMT -7)   
For the last few weeks I have had pretty severe pain on both my sides. It is right above my hip bone, under my ribs. No real fever, other than what I normally have. The pain was gradual at first and fleeting, but now it is pretty constant and much worse. When it started it was toward the front, but now it is more on my back, but it moves around during the day, which makes me think that it is maybe intestinal. But both sides is a bit weird. So that made me think kidney, I did go have a urinalysis yesterday just to rule out an infection, negative. Of course, the doctor didn't want to see me, just sent me to the lab. It is so bad that I can't sleep on my sides. And to top it all off, this is the week that my GP leaves to become a concierge doctor, so after 21 years with him I have to start over and try to explain my lovely complicated self to someone new. I just don't even know whether to call my GI, GYN, or new GP. So, anyone with a history of this type of pain, or any ideas?
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Post Edited (Zanne) : 8/20/2009 12:29:58 PM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/18/2009 10:37 AM (GMT -7)   
Not sure what that pain could be other than maybe adhesion pain. But I would call your GI I think and run it by him.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

bella_sky
Regular Member


Date Joined Aug 2009
Total Posts : 90
   Posted 8/18/2009 12:09 PM (GMT -7)   
Oh my that sounds awful!! I say make appointments with all three and explain the urgency with each request for an appointment. Thats how I was able to finally get the right care anyways. Best of luck you and hope the pain eases soon! The tests suck, to say the least, but you may have to repeat many of them with the new pain, hang in there hun!
dx w/CD finally in July 2009, currently taking pentasa, entocort, cipro, flagyl, probiotics, celexa.
 
Learning a lot of tips and information by reading your posts - thank you for this forum, I am relieved to feel not alone in fighting this to get my life back.
 
"My dreams, my terms."


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/18/2009 9:56 PM (GMT -7)   
Moves around? Sounds like both ends of the colon are involved. My anatomy is a bit sketchy... There is the ileocecal valve on the right side and the sigmoid colon on the left. It is a bit of a coincidence to have both sides sore at the same time - unless it is a referred nerve pain?? That is, some injury/pressure/inflammation of the nerve feeding both sides, presumably happening well above the sore point, possibly where it exits the spine. But then it moves about.... Is the pain worse at different times? Do you remember injuring your back recently? Have you changed your meds or diet? A new exercise plan? New TV/computer chair? Wild guesses is all I can come up with.

Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 8/18/2009 10:10 PM (GMT -7)   
Do you still have your gall bladder?  If so, have you had it checked?
Diagnosed in October, 2004 at age 32 (misdiagnosed with IBS in 2002)
37/F/SC
Current Rx's: Colazal (generic), Omeprazole, Ferrous Sulfate, Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Cranberry pills
Secondary conditions: swelling ankles, extreme fatigue, mouth ulcers, joint pain
Previous/occasional Rx's: Prednisone, Flagyl, Levaquin, Xifaxan, Carafate
4/7/09: Gall bladder removal laproscopic surgery (gall stones)


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 8/19/2009 4:46 AM (GMT -7)   
Hey Zanne...I second the gall bladder thought. My pain was mostly on the right side below rib radiating to the back. But, when the stones were in the right spot, I felt it across my gut and back.

The other thought I had was back strain. I have had some back issues and know that it would be from ribs to hips (I am very short waisted so that is a short area and sometimes hard to tell where the pain is really from).

Give someone a call if it is keeping you up or keeping you worried.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/19/2009 8:27 AM (GMT -7)   
Gallbladder is out. By moving, I mean when it started it was toward the front of my sides, now it is more on my back. But it is both sides which made me think kidneys, since I have 2. But I also thought maybe it was a back issue with pain radiating out. I have had so much bowel removed that my bowel anatomy is completely screwed up from when I was born and lord only knows where anything is any more. I was kind of inclined to think kidney stones but didn't know if you could have them on both sides at the same time. I haven't started any exercises, changed chairs or done anything differently. I may end up going to the walk in clinic if it doesn't go away by tomorrow since at the moment I don't really have a GP who knows anything about me. Thank you all for your ideas.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/20/2009 11:34 AM (GMT -7)   
So I do have an infection. Not sure if it is Kidney or bladder, but it took 4 days for them to finally decide. The doctor's office called this morning and told me I needed to start the antibiotics ASAP. I was actually out of state watching a friends 2 year old while she was in labor ( I agreed to this weeks ago, or I would not have done it). I drove back home to pick up the medicine, and it hasn't been called in yet. 3 hours!!! How much of an emergency is it that I need to start it ASAP. Hopefully once I do start the medicine, the pain will subside and I can finally get some relief. Cause this is bad, and I am a CDer who can actually take pain pretty well. I go to work when I have complete blockages, but this has me not wanting to do anything. Thanks for your help everyone.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 8/20/2009 1:01 PM (GMT -7)   
I still get pain where my gallbladder used to be. They did an ultrasound to see if there were any trapped stones in my ducts. Nope, just a bunch of scar tissue. They said no doubt that's probably what was hurting me.
 
I'm glad you figured out it was an infection though. I hope the antibiotics kick in real soon!


~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 8/20/2009 1:21 PM (GMT -7)   
Hi hope your soon feeling better once those anti's get working. Bev x

Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal sheduled for Nov09 Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid, Back on citalopram 40mg (for Anxiety.)

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