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New Member

Date Joined Oct 2007
Total Posts : 13
   Posted 8/18/2009 12:35 PM (GMT -6)   
We finally have the low dose naltrexone pills for my son and are going to start them tonight.  I was wondering on any of the other people out there that are already on it, how it is going?  Our GI is humoring me to let us try it but he doesn't think it will work.  As I understand it though, it is doing well for a lot of people and the kids in the study in PA.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/18/2009 12:59 PM (GMT -6)   
Up in our Crohns resources we have a medicine thread. We have had many discussions about LDN and you can find info in the following thread:

Good luck!

Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

New Member

Date Joined Oct 2007
Total Posts : 13
   Posted 8/18/2009 3:35 PM (GMT -6)   
I don't know if I am doing something wrong or what but everytime I cut and paste one of the LDN links, it comes up with server error. I'm sorry if I put my post in the wrong place, I am just not sure how or where it goes.

Veteran Member

Date Joined Apr 2006
Total Posts : 1884
   Posted 8/18/2009 3:39 PM (GMT -6)   

My daughter is 21 and started LDN four weeks ago. First few days no side effects. Then the following side effects for days 5-9: gas, bloating, would come home from work exhausted and with subnormal temperature - but after a nap the temp went to normal.

After the 9th day on LDN, the fatigue disappeared and so did the other side effects. She never has D or pain, so the only way we can tell whether she is better is through her labs: she just had bloodwork done the other day, and we are waiting for the results.


New Member

Date Joined Oct 2007
Total Posts : 13
   Posted 8/18/2009 9:19 PM (GMT -6)   
Thanks you for your reply. We so have hopes that this will be the answer for my son. I hope your daughter does very well.

Regular Member

Date Joined Aug 2009
Total Posts : 24
   Posted 8/19/2009 5:23 AM (GMT -6)   
I have Crohns and Multiple Sclerosis. Its no fun. I am about to start LDN as soon as I finish the biopsy. I will let you know how it goes.
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