God Bless the ignorant!

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Cleo
Veteran Member


Date Joined Apr 2004
Total Posts : 992
   Posted 8/19/2009 11:58 AM (GMT -7)   
I just got out of the hospital last night. Another wonderful flare that sent to the ER over the weekend. I went to give my boss my return to work slip. She looks and me and says" so what are they gonna do? Is this just gonna keep happening?"
 
I sure wish I knew the answer to that question. I have been rather lucky for awhile.
 
I'm having issues breathing right now. Don't know what that's about.
I decided to take off a few more days before I left her office. I know peeps don't understand something they can't see, but do they really think this is fun for us? Like I want to spend my life in a hospital bed?
Cindy 
 
Life isn't like a bowl of cherries, it's more like a jar of Jalapenos... What you do today, might burn your "butt" tomorrrow!


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/19/2009 12:13 PM (GMT -7)   
Sorry you had to deal with that after having been in the hospital. So we would rather spend the weekend in the hospital instead of having fun??? Geesh!!!

Hope you get feeling better soon.

Big Hugs,
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 8/19/2009 12:33 PM (GMT -7)   

Ugh, "What are they gonna do?". Really, like we wouldn't want some magical pill that made sure this didn't keep happening. Because we just love hospital stays. That kind of thing just drives me bonkers.

Glad your out of the hospital, I hope your having a speedy recovery from that flare.


~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 8/19/2009 12:38 PM (GMT -7)   
I have to say your subject line made me giggle...you just have to let them go or give them a boot to the head. I guess since it's your boss you'll have to let this one go..hmmmmmmmm

about the breathlessness...are you anemic?? That can cause breathlessness. Check with your doc on that
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Cleo
Veteran Member


Date Joined Apr 2004
Total Posts : 992
   Posted 8/19/2009 4:42 PM (GMT -7)   
I'm felling a little better this afternoon. I'm not real fond of struggling to breathe! They didn't say anything about me bein anemic this time but I was last month.

They want me to start the test crap again. Both scopes, Gotta find a GI I like first. Lost my GI in the divorce! lol

I've missed you guys hope I can keep in touch better now. Take care
Cindy 
 
Life isn't like a bowl of cherries, it's more like a jar of Jalapenos... What you do today, might burn your "butt" tomorrrow!


Kriss
Regular Member


Date Joined Mar 2005
Total Posts : 357
   Posted 8/19/2009 5:50 PM (GMT -7)   
Your boss sounds like my boss, well, ex-boss now.... I had to ask to go home early one day and she asked me why I wasn't feeling well (she already knew about the CD).. i said i hadn't been too good since I ate something in particular the week before.. her response - couldn't you have just passed it by now? OMG....
32 year old female... diagnosed with Crohn's at age 16, then with proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, 20mg Prednisone, Bentyl and Percoset as needed... just started Remicade


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 8/19/2009 6:32 PM (GMT -7)   
I'm sorry, what? "couldn't you have passed it by now?"
It takes three weeks for everything to be completely cleared out of your system. I know plenty of people who aren't sick with IBD that knew that already. Oh, ignorance...
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 5 mg, pentasa 2 pills 4x a day, omeprazole in the morning, and a women's multivitamin. I'm also trying a B vitamin complex, but it doesn't seem to be working so I'm considering the shots.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 8/19/2009 8:40 PM (GMT -7)   
Grrrr 'is this gonna keep happening' - like you really want to be like this. As you said it is ignorance. Glad you are feeling a bit better though Cleo :0
Jo

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1719
   Posted 8/20/2009 8:47 AM (GMT -7)   
Cleo it 's good to see you back again. Sorry to hear you are still having problems. Maybe someone needs to inform your boss that this is a CHRONIC disease and yes it will keep happening. I bet when she gets a sniffle everyone in the office has to hear about it.......
 


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 8/20/2009 9:44 AM (GMT -7)   
"Yes it will keep happening . . . in fact the next step is projectile vomiting, and I just ate chili. I will be right here in your office when it happens." Bet you get sent home in a hurry . . .

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4099
   Posted 8/20/2009 11:12 AM (GMT -7)   
Hi Cleo,
I don't know your boss, so I don't know if this would be helpful, but maybe you can get some literature from the Crohn's foundation (ccfa.org) and give it to your boss. I certainly didn't understand much about the disease before I was diagnosed. Maybe with a little education, your boss would be more understanding.
50 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics


It's in the bag
Regular Member


Date Joined Aug 2007
Total Posts : 122
   Posted 8/20/2009 1:38 PM (GMT -7)   
******s. darn :) Yeah we all prefer to spend our days pooping and bleeding and thinking about every scrap of food we look at. If your boss or anyone who thinks like that could spend an hour dealing with a flare up that sort of thing would end straight away methinks .
Asacol 400mg x 8 dly , 50 mg Mercaptapurine x 1 dly , 40 mg Omeprazole x1 dly , Remicade every 2 months , Multivitamin , Fish Oil ,


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 8/20/2009 5:19 PM (GMT -7)   
I am sorry for your problems.

And sometimes it is no fun having Disease that no one can see, but when you are having a good day I think god for not looking like the sickest person in the world.
If the way I feel inside would show up on my outside I would be in the hospital right now :P

I think it is a good thing to tell people to go to wikipedia and read about your disease, it helped a lot of my friends understand better what I am going through.

Good luck hope you feel better soon.
24 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
Crohn's disease in December 2008 Then they changed it to UC in June 2009.
and Autoimmune Hepeatitis in July 2009


Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


Cleo
Veteran Member


Date Joined Apr 2004
Total Posts : 992
   Posted 8/21/2009 9:00 AM (GMT -7)   
The amazing part is my boss is a nurse. Director of nursing. Imagine that! lol I have found over the years that the peeps one would think would have the most compassion, have none.

It's been awhile since I have been on steroids and how soon we forget. I want to rip someones head off today! lol Ididn't miss this feeling. Hope I get it in check before tomorrow, I have to go back to work. yuk

You all are the best! When no one else around me understands what I'm going thru Ican always count on you guys to not only understand but really put things in perspective. I know they can always get worse. I have been there. I have been very lucky since my surgery.
Cindy 
 
Life isn't like a bowl of cherries, it's more like a jar of Jalapenos... What you do today, might burn your "butt" tomorrrow!


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 8/21/2009 9:14 AM (GMT -7)   
What?! Your boss is a nurse and is that ignorant? That's amazing, you'd think someone in the medical field would be more understanding since they are supposed to know about the disease and how unpredictable it can be. Some of the people at my work are really bad too, right now my boss is my father so I'm lucky in that aspect, because he's supportive and goes with me to appointments even. However, I also do work in another department and my "boss" for that department loves to tell me I'd be fine if I would just drink teas and take supplements. She is convinced medications don't do anything, and I'd feel fine if I just did what she said. I know people have had success with diets and stuff, but I really don't believe that there's some magic cure or something. On top of that, when she knows I'm not feeling well, she pawns her work off on me and leaves early. I love it. Next month I won't be reporting to my father anymore, but my new boss' ex husband has Crohn's, so she is also very understanding when it comes to me not feeling well. I hit the jackpot I guess, but I get really frustrated with how ignorant some people can be, especially when they already know what the disease is.

kandc88
Regular Member


Date Joined Sep 2008
Total Posts : 65
   Posted 8/21/2009 12:42 PM (GMT -7)   
I have updated my friends on most of the gory details of my last hospital stay and subsequent surgery and recovery. Generally they were all blown away by the suffering that I go through and had no idea. It's definitely one of those diseases where we look good on the outside and are crazy bad on the inside. Sometimes we just have to be clear about what's going on and hope for the best. I understand people not understanding. Heck in another month when I'm feeling better, I too will forget how bad it was, so how can I expect people who have no idea what it's like to understand. Best to hope for some empathy and don't let it get you down. Come here to get some real understanding!

Kim

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/21/2009 1:06 PM (GMT -7)   
kandc88,

I told a friend of mine that my Crohns was mild. She looked at me in pure shock and said "Oh my gosh, if you are mild, what is severe like?" I told her, you don't want to know.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 8/21/2009 10:13 PM (GMT -7)   
Tell her if she has any ideas she should get with the people looking for a cure and help them out ,,,, because,,,,,THEY DONT HAVE AN ANSWER.......
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


eljay1066
Veteran Member


Date Joined Jan 2003
Total Posts : 3166
   Posted 8/23/2009 9:06 PM (GMT -7)   
Cleo, nice to see you again, and so sorry about your insensitive boss. As I started to read your post I remembered that I had terrible problems breathing when I was extremely anemic and needed two rounds of iron shots. Luckily that did the trick, and the only time I've been a little anemic since then is when they increased my Imuran to 250 mg. I'm off it now pending new blood tests, will see the doctor in a week or so.

I loved the hemotologist I saw that first time. He said "We can fix this," and they did. I am praying that you find out what's causing this and it can be fixed for you, too.
Take care. Lois

frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 8/23/2009 10:43 PM (GMT -7)   
Thats why i no longer work..because my job fired me from being sick too much late too much..after five years working their..the disease won...its not fair...not at all..twice denied disability as well...because i can lift 10 pounds..

 crohns/colitis/lupus/hyperthyroidism-seton fistula pentasa cipro flagyl vicodin


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 8/23/2009 10:44 PM (GMT -7)   
I was really anemic when i was pregnant i had the problem breathing..check with your GI...

 crohns/colitis/lupus/hyperthyroidism-seton fistula pentasa cipro flagyl vicodin

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