I am hopeless, Little Vent

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isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 8/20/2009 5:32 PM (GMT -7)   
So I went to my hospital for some tests for three days.
Since I am recently dx with auto immune hepatitis and I have the worst heartburn ever and my joint pains are so bad I can hardly walk.

It was fun going to the hospital and not beging as sick as I usually am when I am in there. I looked at it like a few days of peace and quit to read my books and not having to do anything.
Well I went for some x rays, endoscope, colonscope, he messured the pressure of my esophagus(I am having difficulties in swallowing) and a Sonora of my tummy and of course the regular blood work.

My colon looked great :) better than ever so I am in remission there

But the latest theory of my illness is that I have Lupus !!!! It is not confirmed but that is what they are thinking.

And my doc told me something I haven't stopped thinking about :) we where discussing my mental health and he said that he felt that I took the bad news about my health a little to well.
And I am not so sure what that means :S If it is good or bad or just something he said with out thinking.

I always try to stay positive so maybe that's what he was talking about.

But I met the nicest lady in the hospital she is 70 and has had cancer for 9 years so I thought what ever happens to me cant be as bad as here illness.
So maybe thats why I am so happy hehe.

well hope you are all feeling great just needed to share this with someone.
24 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
Crohn's disease in December 2008 Then they changed it to UC in June 2009.
and Autoimmune Hepeatitis in July 2009


Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/20/2009 5:45 PM (GMT -7)   
ok could it just be that you are relieved to finally have a name for what is wrong with you? With lupus it can just feel like you are losing your marbles and to actually know what is wrong is a powerful in that it is easier to fight an enemy you know.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


cj7
Regular Member


Date Joined Jul 2009
Total Posts : 26
   Posted 8/20/2009 7:37 PM (GMT -7)   
You haven't been completely told that is what you have. they just think so. I so remember going through all those tests in the begining. They changed thier thoughts every test they did. Have they checked you for lyme disease and all of the Heps with letters. Because it took the doctor's about 6 months to finally dx me. It was the longest time in my life. I had all these symptoms and they just couldn't place it until they started looking for the more rare. that's when they dxed me with AIH. It is difficult to be sleeping all the time, Jaundice. I remember walking the braided rugs at night because I itched so badly on the inside and couldn't stop it. I had to rub my feet on the roughest surface I could find. I wasn't able to care for my children. Thank god for family. My husband tried to ignore it. He always thinks if you don't think about it it will go away. Well he found out he was wrong. They gave me 5-10 years before transplant. So today, 16 years later my daughters are grown and we have our first grandchild Grace Marie. Now she is my life and it makes it beautiful I am still here to share this all. I was glad to find your post and keep up the faith and the great attitude. I didn't have it. I was depressed, high anxiety, and just pure crazy.
Good luck with your tests. Hopefully it will be something treatable. But your doctor's have changed thier minds over the years. Always, Cindy
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