Remicade for Crohn's disease, but also have Multiple Sclerosis

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leafsr1
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/22/2009 11:04 AM (GMT -7)   
here is my "brief" history - I have had Crohn's disease for 19 years, and have had 3 surgeries to remove areas of my small bowel. Am now only taking Immuran for my Crohns plus B12. I ws diagnosed with Multiple Sclerosis 12 years ago and am on Betaseron Injections plus other meds for that. I was in remission from both my MS and Crohn's for 2 years and then have just found out through a colonoscopy that my Crohn's is back throughout all my large bowel. My specialist is suggesting Remicade or Humira as a medication to go on (right now just high doses of Prednisone) my concern is what I have been reading in regards to the neurological issues related to both medications. Is there anyone else who has both Crohn's and MS who is on either of these drugs. I want to proceed very carefully. I would honestly rather deal with the Crohn's flared up then the MS.
thank you

PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 8/22/2009 9:47 PM (GMT -7)   
My husband's aunt died of MS, and while I've read that they don't think MS is a hereditary disease, it certainly was a big worry factor for me when my husband was put on remicade for crohn's. In fact, when he developed foot drop, I nearly had them stop the remicade, because I was so panicked. However, it turned out to be a false alarm, he only had some peripheral nerve damage, and he's fine now. I completely agree with you that MS is a bigger concern than Crohn's.

I don't think they recommend that people with MS take Remicade/Humira/Enbrel/Cimzia - it does have the possibility of making MS worse, and I wouldn't take it. There is a medication called Tysabri that can help both the crohn's and MS - though I think it also has some scary side effects (I seem to recall in the news). I'd look into that one rather than the ones in the remicade family.


PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, and in crohn's remission, knock on wood


leafsr1
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/24/2009 9:13 AM (GMT -7)   
thanks so much for your reply and the information...it really has helped alot....I will certainly look in to other options and discuss with my doctor......hope your husband is doing well
Pam

Escalador
Regular Member


Date Joined Jul 2009
Total Posts : 103
   Posted 8/24/2009 10:11 AM (GMT -7)   

leafsr1
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/24/2009 12:55 PM (GMT -7)   
yes please

Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 8/25/2009 6:51 PM (GMT -7)   
I would like to suggest enteral nutrition as a possibility (special liquid diet used instead of regular food and beverages for several weeks to induce remission, and sometimes used in addition to regular food to help maintain remission). Although some people find it difficult sticking with the diet, the upside for you would be no worry about the potential side effects of the biologics. It can be as effective as steroids in treating Crohn's, but like all other treatments, doesn't work for everyone. Just a thought.
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