In the hospital with bowel obstruction - help SCD?

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Jay25CA
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Date Joined Jul 2004
Total Posts : 114
   Posted 8/22/2009 11:06 AM (GMT -7)   
So I was admitted Thursday with a bowel obstruction and they are treating it with IV steroids and antibiotics. They are talking surgery as a possibility. I'm scared to death. Has anyone got to the brink of surgery, turned to the SCD, and avoided it?

Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 8/22/2009 11:21 AM (GMT -7)   
Yes, I did. But I didn't have an obstruction. I was on the brink of surgery and went on the scd for 6 months. I only quit because I ended up pregnant and was getting too hungry to not include carbs. Pregnancy also put me into a remission of sorts. BUT... it was the SCD that helped me avoid surgery. You could definitely give it a try.

Reef08
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Date Joined Dec 2005
Total Posts : 267
   Posted 8/22/2009 1:48 PM (GMT -7)   
That sucks to hear. So I'm guessing the RMAT's not helping?

pimfram
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Date Joined May 2009
Total Posts : 506
   Posted 8/22/2009 1:51 PM (GMT -7)   
I've been hospitalized 3 times with obstructions. Bowel rest has always been enough to avoid surgery, hopefully it will be the same for you. I was put on pred the first 2 times, but not the last time. And I am yet to change to SCD.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.


Keeper
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Date Joined Jun 2008
Total Posts : 1058
   Posted 8/22/2009 1:54 PM (GMT -7)   
There was a study done in the UK for children who had exhausted their options for meds to treat CD and were candidates for surgery. It involved taking a couple of grams a day of N-acetyl glucosamine. For more, see: Interscience

N-acetyl glucosamine is available in health food stores - phone to check. This is a study that has not had any followup, but since it is not a patentable med, who is going to fund the large scale studies needed to check its usefulness? I would not want to push this, but it may be suitable if you have a bit of time available before surgery. It may help in conjunction with the SCD program also.

Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 8/22/2009 4:16 PM (GMT -7)   
My 2nd resection was due to scar tissue. I was in the hospital for about 3 weeks of IV steroids and complete bowel rest to see if it could resolve the issue. The end result was that the steroids didn't help, so the blockage was scar tissue and had to come out. If you get no relief from the steroids, then scar tissue may be your problem and no diet will help you. If the steroids do help then the diet is worth trying. BUT, I am a strong proponent of maintenance meds in conjunction with diet to achieve and maintain remission. I went 10 years without medication and spent the next decade paying for my foolishness. I hope you are home soon and feeling better.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Rider Fan
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Date Joined May 2008
Total Posts : 1445
   Posted 8/22/2009 7:06 PM (GMT -7)   
Are you still on the Anti-MAP treatment? take care
Mike
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


ragbag
Regular Member


Date Joined Sep 2003
Total Posts : 109
   Posted 8/22/2009 7:43 PM (GMT -7)   
I feel pretty clueless, but I cannot figure out what SCD means?  Twice I've been hospitalized with partial obstructions, but with rest and antibiotics and steroids I was able to avoid surgery both times.  Good luck to you.

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 8/22/2009 8:05 PM (GMT -7)   
ragbag said...
I feel pretty clueless, but I cannot figure out what SCD means? Twice I've been hospitalized with partial obstructions, but with rest and antibiotics and steroids I was able to avoid surgery both times. Good luck to you.



ragbag, the SCD is the Specific Carbohydrate Diet. It's been around for decades and decades and has helped tens of thousands with IBD. Was pioneered by a Dr. Sydney Haas but brought to the forefront by Elaine Gottschall. Her book is called "Breaking the Vicious Cycle". If you go to this link here on the forum and scroll a ways down, you can read some previous discussions we've had about it! Good luck to you!

http://www.healingwell.com/community/default.aspx?f=17&m=1535560

(someone please tell me the secret on how to activate a link! shakehead )

______________________________________

Go back into the post after posting and hit enter after it.

Post Edited By Moderator (MMMNAVY) : 8/22/2009 9:12:00 PM (GMT-6)


Jay25CA
Regular Member


Date Joined Jul 2004
Total Posts : 114
   Posted 8/22/2009 8:52 PM (GMT -7)   
For those of you whos obstruction resolved itself via steroids and anitbiotics, how long did it take? I have been on them for two days now and only showing some minor improvement. Still no bowel movements or gas. They put a ng tube in and that doesnt seem to help either. Least not yet.

Jay25CA
Regular Member


Date Joined Jul 2004
Total Posts : 114
   Posted 8/22/2009 8:53 PM (GMT -7)   
pimfram how quickly did your symptoms resolved with bowel rest?

spookyh
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Date Joined Oct 2008
Total Posts : 1342
   Posted 8/22/2009 10:33 PM (GMT -7)   
Stef17 said...
Yes, I did. But I didn't have an obstruction. I was on the brink of surgery and went on the scd for 6 months. I only quit because I ended up pregnant and was getting too hungry to not include carbs. Pregnancy also put me into a remission of sorts. BUT... it was the SCD that helped me avoid surgery. You could definitely give it a try.


Just so you know, SCD limits the types of carbs you can eat, not the amount of carbs. You can eat all the simple carbs you want (or can tolerate). Some people say they do better when following a low carb version of SCD. As for me, I'd say I eat an average number of carbs on the diet. Some higher carb SCD foods are butternut squash, carrots, bananas, apples, and of course, honey.

I've been following SCD for 9 months. It's done wonders for me, but unfortunately, it won't save me from surgery. I have major scar tissue at the ileocecal valve, and there's just no healing that. Once I have that small area cut out, I'm confident that SCD will keep me from needing further surgery. With the exception of that scar tissue, my colonoscopy in May showed a healthy looking colon (although biopsies showed I still have microscopic inflammation). They say that Crohn's people usually need 2 years on the diet to heal, so I'd say I'm making good progress towards it.

Jay, I hope that you "only" have inflammation instead of scar tissue, because SCD can most certainly help you avoid surgery then!
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/23/2009 6:31 AM (GMT -7)   
I am with Zanne here, if the stricture is caused by scar tissue no meds or diet are really going to help. But if it is from inflammation then definetly the diet should help, but like Zanne said you need to take maintainence meds too. I like Zanne went med free during nearly 20 years of remission, and it has taken me years to get back to where I am now. I will NEVER be without maintainence meds again, an emergency resection really opened my eyes and I would hate to see the same happen to you.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Jay25CA
Regular Member


Date Joined Jul 2004
Total Posts : 114
   Posted 8/23/2009 6:37 AM (GMT -7)   
Well I almost had a bowel movement this morning. Just too much pain to really push it out. Stomach still so fat. Did have some burping though that relieved some pressure. They plan to do a ultrasound of my tummy today. Thanks for all your help.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/23/2009 6:40 AM (GMT -7)   
Good luck with your tests, do keep us posted on what the tests show.

Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 8/23/2009 6:42 AM (GMT -7)   
Jay25CA said...
pimfram how quickly did your symptoms resolved with bowel rest?

It usually took around 2 days in the hospital on bowel rest until everything was passed through. Then clear fluids, full fluids, and then a soft diet before I was discharged. Then, at home, I was told to pretty much use common sense and not have a huge steak the next day, just keep things on the soft side and eat cautiously.

The main reason I have gone in is because I was unable to keep anything down, be it food or fluids. I sure as heck don't want to get really dehydrated.

Post Edited By Moderator (Nanners) : 8/23/2009 7:48:18 AM (GMT-6)


Jay25CA
Regular Member


Date Joined Jul 2004
Total Posts : 114
   Posted 8/23/2009 3:57 PM (GMT -7)   
well i am still waiting for my bowels to move. some stuff has come up thru the ng tube and released some pressure. i want to hold out as long as possible to see improvement before agreeing to surgery

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 8/23/2009 7:52 PM (GMT -7)   
Personally, I've never had a bowel obstruction last that long. I remember my last full obstruction (I've since had 2 partials that didn't require hospitalization), began building on a Wednesday, and I was hospitalized by that evening. They tried to put an ng tube in, but without success (it was also the first time I'd ever had one attempted on me). Thursday was nothing by mouth, and Friday was stuff like jello. On Saturday morning, they gave me regular food for breakfast and sent me home.

I think that time line has always been pretty typical for my obstructions.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/24/2009 6:37 AM (GMT -7)   
Jay25CA,

Doesn't sound good that you are not having a bm yet. Please don't try to be a hero and put off a surgery too long, if its needed. I don't want you to perforate or anything. Have the said anymore what type of stricture it is? I sure hope you get feeling better soon.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Jay25CA
Regular Member


Date Joined Jul 2004
Total Posts : 114
   Posted 8/24/2009 12:27 PM (GMT -7)   
i am going for surgery tomorrow. think i will finally be well again.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/24/2009 12:31 PM (GMT -7)   
Sending prayers up for you that your surgery goes well and you are able to then enjoy a long long remission.

BIG HUGS,
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Cleo
Veteran Member


Date Joined Apr 2004
Total Posts : 992
   Posted 8/24/2009 12:52 PM (GMT -7)   
God Bless. My prayers are with you! Cleo
Cindy 
 
Life isn't like a bowl of cherries, it's more like a jar of Jalapenos... What you do today, might burn your "butt" tomorrrow!


Jay25CA
Regular Member


Date Joined Jul 2004
Total Posts : 114
   Posted 8/24/2009 1:57 PM (GMT -7)   
thank you all

Octobergirl
Regular Member


Date Joined Aug 2009
Total Posts : 377
   Posted 8/24/2009 2:29 PM (GMT -7)   
First, Jay, I just want to say good luck and hope it all goes well!

Second, I am curious, Nanners and Zane, about the the no medication route. If you don't mind sharing, I'm curious what happened after the remission with no medication that lead to such problems. I know obviously you came out of remission, but during your non-medication time, did you not have any symptoms until it was too late? And did you follow a specific diet through all your years of remission?

I've been going back and forth between trying to get off meds, because I would like to try and get pregnant next year. I've read a lot of success with diet and then none at all, so I'm confused. I hope I'm not pressing too much about sharing, so if it's too personal, I understand.

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 8/24/2009 3:48 PM (GMT -7)   
Best of luck going under the knife.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

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