Crohn Disease Bracelet

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pups62
New Member


Date Joined Aug 2009
Total Posts : 13
   Posted 8/22/2009 2:35 PM (GMT -7)   
New here but have had Crohns for years. Am looking for a Crohns' bracelet to wear.
Can anybody help?

MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 8/22/2009 2:53 PM (GMT -7)   
Are you looking for a fashion bracelet, or one for medical purposes incase something happened to you?  I have quite a few fashion bracelets that have purple beads and beads with letters that spell out Crohns and have a ribbon on it and such.  I havent seen a medical one but I'm sure if you google it you would find something.
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings
Current Meds: Cimzia, Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: Sept 4, 2009 to Take Down Abdominal Fistula!!  (On hold until current flare is under control, boo!)
 

crohnielass
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Date Joined Mar 2009
Total Posts : 1118
   Posted 8/22/2009 3:00 PM (GMT -7)   
Hi, depending whether you want the awarness ones or the medical here's a site to look at or google crohns bracelets and loads of sites will come up Bev x
 
 
 
 
 


Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal sheduled for Nov09 Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid, Back on citalopram 40mg (for Anxiety.)

Post Edited (crohnielass) : 8/22/2009 4:19:37 PM (GMT-6)


vitaka
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Date Joined Jun 2006
Total Posts : 887
   Posted 8/22/2009 3:09 PM (GMT -7)   
If you're looking for an awareness bracelet, CCFA has a purple Livestrong-type bracelet that says "got guts" on it. I have gotten several over the years because I registered with them to do a walk a couple years ago. I'm sure you can get them online as well.
29-year-old PhD student, diagnosed with Crohn's ileocolitis in Feb. '06. During the summer of 2006, I completed the Adacolumn Apheresis clinical trial, which helped me enjoy 2+ years of remission and more than one year med-free. During spring and summer of 2009 the symptoms slowly but surely began to return, and now I'm flaring again. Waiting to see GI, back on 4g Pentasa/day.


Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 8/22/2009 4:10 PM (GMT -7)   
I have the "got guts" one. I got the adult ones. You had to get packs of 15 I think. I got them a few years ago. Unfortunately, it took a while to get them because they were out of stock and then when they came they were too big for my wrist. I am only 5' and about 120 lbs with a small bone structure, just letting you know if that is the type you want, you might want to order the kids ones.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


pups62
New Member


Date Joined Aug 2009
Total Posts : 13
   Posted 8/24/2009 2:33 PM (GMT -7)   
Thanks for the information. I will keep looking.
Had Crohns' since I was in my early twentys and now am 65 years old. On Mercaptopurine 50mg and Balsalazide 750 mg. I am lucky from what I have been reading. No bowel resection yet and it has been a while since a flare.


Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 8/25/2009 7:24 AM (GMT -7)   
I have 5 left. If you send me your address this morning I can mail them out by regular mail today. They should be able to go in a regular envelope without a problem, even to the west coast I would think it would only take a few days. I am in New England by the way.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


ISF13+
Regular Member


Date Joined Jun 2009
Total Posts : 202
   Posted 8/25/2009 10:50 AM (GMT -7)   

Zanne: I would love one too and I'm willing to pay you for it.  If they haven't all been dubbed yet, let me know and I'll send you some $ and give you my address.

 

tsitodawg:  Are you one of the BYU football players?  I ask because I am a BYU football fan.  The fun part (being sarcastic) is that I work for the University of Utah and so I have that thrown in my face every football season.  It really sucks!! 

 


Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum. 
Current Medications for the Crohns:  Humera 40mg injections every other week, Imuran 150mg, 3xday, Hyomax, Welchol 625mg, Vancocin HCI 125mg, 4xday for C-Diff, Calcium, Acidophilus & Potassium
Previous Medications I've been on:  Asocal, Pentasa, Cipro, Prednisone, Flagyl & Entocort


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/25/2009 11:50 AM (GMT -7)   
ISF13+,

I'd be happy to send you one. Just send me your address. My email is in my profile. No need for payment, I'm happy to find people who want them.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 8/25/2009 4:29 PM (GMT -7)   

Zanne, I’d love a bracelet if you have a spare! But I live in Australia so I’d understand if you didn’t want to post it, it might be too expensive?


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/25/2009 5:06 PM (GMT -7)   
I would have sent you one, no problem, but I am out now. I did find one more hiding in the back of the drawer, but it was first come first served, I am sorry. If I find any more in my cleaning efforts, you will be the first one the list. :)
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 8/25/2009 5:27 PM (GMT -7)   
Ahh thanks Zane. I would love a crohn's bracelet! I'm going to see if the aussie crohn's colitis assoc. does something similar! :)

atctackett
Regular Member


Date Joined Oct 2008
Total Posts : 114
   Posted 8/25/2009 7:57 PM (GMT -7)   
Zanne,
 
If you still have one of the bracelets left, I would love to get one from you. I will email you my information and please let me know how much I owe you.
 
Thanks!
 
Shawn
 
Diagnosed with Crohn's in July 2005. 2 Bowel Resections in 2008.
Currently taking Pentasa 1000 mg 4X/Day, 6MP 100 mg/day, multivitamin, Lopressor 100 mg/day (Blood Pressure), Remicade IV every 8 weeks, Omeprazole CR 40 mg/day, Lomotil BID, Immodium BID, Cholestyramine 2 grams daily


ISF13+
Regular Member


Date Joined Jun 2009
Total Posts : 202
   Posted 8/26/2009 6:51 AM (GMT -7)   

tsitodawg,

Wow!  as you said, who would have thought?  Nice to have a fellow BYU fan on the forum.  Thanks for all the good come-backs.  I'll be needing them soon.  I had season tickets for years, loved the games.  My ex-husband kept the seats after our divorce and my new husband isn't a sports dude so now I'm stuck watching the games on TV.  Oh well, such is life.  I wish you the best of luck with the upcoming season (Rah, Rah, Rah, Rah, Rah, Goooo Cougars!).  And as for the crohns, if you're the one with the disease, I'm sorry you have to be a part of all the yuk that goes along with it.  You probably know who Rolf Benirschke is from the San Diego Chargers?  He came to our support group a couple of months ago and told us his story of how he got diagnosed with Crohns and his field goal kick following his ostomy, etc.  It was a great story.  Look him up on the internet sometime if you haven't already read his story.  Take care.

 


Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum. 
Current Medications for the Crohns:  Humera 40mg injections every other week, Imuran 150mg, 3xday, Hyomax, Welchol 625mg, Vancocin HCI 125mg (generic for Vancomycin), 4xday for C-Diff, Calcium, Acidophilus & Potassium
Previous Medications I've been on:  Asocal, Pentasa, Cipro, Prednisone, Flagyl & Entocort


ISF13+
Regular Member


Date Joined Jun 2009
Total Posts : 202
   Posted 8/26/2009 8:05 AM (GMT -7)   
You don't have your e-mail address listed so this is the only way I can get a hold of you.  The crohns support group I go to actually got started by a couple of ladies who live in Ogden.  We meet at Davis Hospt usually on the 3rd Thursday of every month.  I'll let you know when the next one is.  Bring your wife if you come.  We all bring our support person.  It's good for them to be part of it and hear from others what we go through.  Thanks again for the jokes, love them.

Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum. 
Current Medications for the Crohns:  Humera 40mg injections every other week, Imuran 150mg, 3xday, Hyomax, Welchol 625mg, Vancocin HCI 125mg (generic for Vancomycin), 4xday for C-Diff, Calcium, Acidophilus & Potassium
Previous Medications I've been on:  Asocal, Pentasa, Cipro, Prednisone, Flagyl & Entocort


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 8/27/2009 10:01 AM (GMT -7)   
The CCFA will send you one if you join.  At first, they were sending them to me everytime they were asking me to join, so I think I have a couple extras, too.  Then they stopped sending them and said I could get one if I joined (thanks, I have enough now).  I have worn mine everyday since I was diagnosed in 2005.  They hold up very well.  You can buy them in lots online and they usually sell them at CCFA events, if there are any in your area.

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


vitaka
Veteran Member


Date Joined Jun 2006
Total Posts : 887
   Posted 8/27/2009 11:43 AM (GMT -7)   
I was just on the website and they appear to be back in stock. $15 for 10-packs that say "Cure Crohn's & Colitis."

Link: http://www.workflowoneaccess.com/customers/ccfa/Pages/GearUp.aspx
29f, PhD student, diagnosed with Crohn's ileocolitis in 2/06.
During the summer of 2006, I completed the Adacolumn Apheresis clinical trial, which helped me enjoy 2+ years of remission and more than one year med-free. During spring and summer of 2009 the symptoms slowly but surely began to return, and now I'm flaring again. Waiting to see GI.
Current meds: 4g Pentasa, 150mg Trazadone, Ativan as needed


pups62
New Member


Date Joined Aug 2009
Total Posts : 13
   Posted 8/28/2009 1:04 PM (GMT -7)   
ZenaWP said...
The CCFA will send you one if you join.  At first, they were sending them to me everytime they were asking me to join, so I think I have a couple extras, too.  Then they stopped sending them and said I could get one if I joined (thanks, I have enough now).  I have worn mine everyday since I was diagnosed in 2005.  They hold up very well.  You can buy them in lots online and they usually sell them at CCFA events, if there are any in your area.

Hi,

Would love to have one if you have extras. Let me know through my e-mail in my profile and I'll send you my address.

Thanks,pups62


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 8/28/2009 1:12 PM (GMT -7)   
Pups, it's so funny that you just posted because I was in the process of trying to email a couple of people who asked Zanne after she ran out.  I have three...I know that phoebe and atctackett asked Zanne previously, but I can send you the last one.  Phoebe and atctackett, I will email you both also, in case you still need/want one.  I'll email you, Pups.  Thanks.

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


pups62
New Member


Date Joined Aug 2009
Total Posts : 13
   Posted 8/28/2009 1:16 PM (GMT -7)   
In case my e-mail is not available-twoolard1@roadrunner .com
Had Crohns' since I was in my early twentys and now am 65 years old. On Mercaptopurine 50mg and Balsalazide 750 mg. I am lucky from what I have been reading. No bowel resection yet and it has been a while since a flare.


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 8/28/2009 1:16 PM (GMT -7)   
Pups, I don't see your email address in your profile.  Phoebe's either.  Let me go in and add my email address to my profile and you both can email me your mailing address.
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 8/28/2009 1:20 PM (GMT -7)   
Sorry Pups, guess we were typing at the same time.  I've emailed you. 

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 8/28/2009 4:46 PM (GMT -7)   
Hi Zena!! Thank you so much your're so thoughtful, but Zanne found an extra one and has offered to post it out to me. I know someone else here would love the bracelet though! I'm in AUS so i'm eagerly watching the post these days!! thanks so much for thinking of me....

Veebo
Regular Member


Date Joined Nov 2007
Total Posts : 147
   Posted 8/28/2009 7:41 PM (GMT -7)   
There is a company that makes a lot of different awareness bracelets. I wanted a custom bracelet celiac/crohn's mix and they were able to make it for me...nice people. Here is the site http://www.vaeldesigns.com. There is a section for awareness bracelets.

jmiller89
New Member


Date Joined Oct 2016
Total Posts : 1
   Posted 10/15/2016 6:23 AM (GMT -7)   
This is extremely late but i have been researching for some of the old "Got Guts" bracelets from like 10 years ago and finally found these https://www.amazon.com/dp/B01LZB49SH hopefully it helps somebody!
i can lo longer find the dark purple but these look pretty cool tongue
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