My daughter's only symptom for two years was extremely mild lower right quadrant pain. She could feel it ONLY if she pressed really hard. And never had D.
I hate to say it, but the results of the SBFT and CT, showing narrowing, plus the location of the pain do sound like Crohn's. If you still had pain while on Pentasa and Entocort you were not in remission.
Why are you tapering off all meds if you are not in remission?
If you have doubts absolutely get a second opinion. I had a diagnoses reversed by a second opinion.
I was diagnosed with Crohns in February after right lower quadrant pain. The doctors thought I had appendicitis and sent me for a CT. No problems with appendix but CT showed narrowing in TI and radiologist suggested CD. GI performed a colonoscopy, endoscopy, and small bowl fallow thru. I had several lesions and inflammation both visible and in biopsy. GI said although labs where negative and biopsy were not 100% conclusive he was pretty sure it was Crohns.
I started Flaygl, prednisone, and pentansa. 3 months later I had no perceived improvement and in fact felt much worse; more pain, more problems with bowel movements, and side effects from all the meds. So I was then referred to a Crohn’s specialist at UNC. He questioned the diagnoses and repeated the colonoscopy and a camera-pill small bowl fallow thru. Results showed no signs of active disease visually or with biopsy.
The crohn’s specialist believed I had NSIADs induced IBD/IBS and now I’m being treated for IBS only. I had been taking neproxin for back pain in January which he believed caused my problems. He thinks eventually the IBS will go away completely as long as I stay away from NSAIDs. My current pain is very similar to what it has always been…lower right and left mid. Additionally, I do have all the classic signs of IBS from time to time.
Obviously, I like this diagnoses better and I’m hopeful that it is accurate but I’m afraid that maybe I have more than IBS. I have never heard of NSAIDs induced IBD/IBS, despite knowing the fact that NSAIDs cause problems, especially for people with CD. I worry that maybe I have CD and it is just in remission after the 3 months of pred & pentansa. Maybe I just have IBS in addition to CD. Both are a possibility but my GI (crohns specialist) is pretty confident I don’t have CD. I guess time will tell. Good luck and please post results!!