Both UC & CD? Or Switch?

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GDen
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Date Joined May 2009
Total Posts : 703
   Posted 8/22/2009 7:46 PM (GMT -7)   
I just saw somebody's sig that gives the impression they have both UC and CD. Is that possible? Or is it possible to switch from one to the other? I have never heard of having both, or switching from one to the other.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 8/22/2009 8:38 PM (GMT -7)   
What exactly did they have written down in their sig?

There is actually aprox 2% of patients that do have both (very rare), there are also many that get confused when their doc mentions the word colitis to a crohn's patient, the patient assumes that the doc means they also have UC which isn't the case at all, it infact means the patients crohns is affecting their colon---crohn's colitis (which is CD affecting the colon). Then there are those that have been DX as having CD for example and then it's reDX as actual UC instead (or visa versa), then there are those that are DX as having indertminant colitis, which usually means the doc doesn't have enough smarts to tell the difference between CD and UC...with CD the inflammation is skipped and has healthy tissues in between inflammed, with UC the entire area will be inflammed, with CD the inflammation can go through the many layers of the mucosal lining (it doesn't always for every CD, usually depends on severity of disease as well), whereas with UC the inflammation is limited to the surface of the mucosal lining only.

With CD it can affect any part of the GI tract (from mouth to anus) and fistulas are more common with CD, with UC the disease is limited to the colon/rectom only and fistulas are very uncommon for a true UCer.

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 8/22/2009 9:09 PM (GMT -7)   
Their sig said "dx'd UC in 2000, dx'd CD in 2008". I figured it was probably the same disease, just differently diagnosed by different doctors. I wonder how much worse IBD is for those that do have BOTH.

Tj1
Regular Member


Date Joined Jul 2008
Total Posts : 71
   Posted 8/22/2009 10:40 PM (GMT -7)   
That would be me you are talking about. I was dx'd with UC in 2000 and then dx'd in 2008 with CD by a different Dr .
Believe me if i had to pick the lesser of two evils it would have been UC. Don't know that i have both but i asked
both Dr's that were treating me at the time if they were sure it was Crohn's they were both sure, said the test results
were very conclusive.
 DX'd with UC 2000.
 DX'd with CD 8-9-08
 
 allergic to Asacol
 Colazal made Crohn's worse
 Prednisone 20mg X2 daily   (off Pred now) 
 Imuran 50mg X 2 daily
 Hyzaar 50-12.5
 Toprol XL --  Hypertension
 Insulin   --   Diabetes 
 vitamin
 
 First Remicade infusion 8-9-08
 Had allergic reaction on 5th infusion took benadryl got to finish
 Went for 6th took benadryl before infusion had reaction stopped
 Remicade.
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 8/22/2009 10:47 PM (GMT -7)   
Then that means UC was a misDX and crohn's is what you've had all along...or the slim chance that you have both UC and CD.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Tj1
Regular Member


Date Joined Jul 2008
Total Posts : 71
   Posted 8/22/2009 11:06 PM (GMT -7)   
Could be, I've just been trying so hard to feel better i haven't thought much about it. I will find out when I see the Dr. next time though.
I just know I was dx'ed at first with UC by three different Dr's and took treatments for that until last year when I was hospitalized and got new Dr's and a new dx.
 DX'd with UC 2000.
 DX'd with CD 8-9-08
 
 allergic to Asacol
 Colazal made Crohn's worse
 Prednisone 20mg X2 daily   (off Pred now) 
 Imuran 50mg X 2 daily
 Hyzaar 50-12.5
 Toprol XL --  Hypertension
 Insulin   --   Diabetes 
 vitamin
 
 First Remicade infusion 8-9-08
 Had allergic reaction on 5th infusion took benadryl got to finish
 Went for 6th took benadryl before infusion had reaction stopped
 Remicade.
 
 


goldy3
Regular Member


Date Joined Feb 2009
Total Posts : 139
   Posted 8/22/2009 11:17 PM (GMT -7)   
I am one of the unlucky ones that may have had both... I had classic UC diagnosed 1991....I was acutely I'll and lost my entire large intestine in1992...it was at that time I had my J-pouch surgery (1992)...when they removed my large intestine they biopsied it and it confirmed UC.... Now 17 years later I'm deteriorating and diagnosed with crohn's disease... I'm told it is possible to have both...ofcourse my chronic pouchitis could have been crohn's all along...who knows... All I know is that I had a good quality of life when it was just pouchitis... Crohn's is a hole different beast from UC or pouchitis...
42 year old woman diagnosed with UC 1991, Jpouch surgery 1992, Crohn's diagnosis 2009....I also have Graves disease/Hypothyroidism and psoriasis
Current meds: 1200mg xifaxin, 3mg entocort, Humira (started 3/23/09), 150mcg synthroid, 20mg aciphex
Past meds: bactrum (side effect: rash), pentasa (tried twice in a 4 week period, severe nausea, vomiting and D), levaquin (ineffective), flagyl (works, hate the side effects), enemas and suppositories (ineffective), imuran- tried 2/09, landed in the ER with severe back pain and raised liver funtions....
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 8/22/2009 11:35 PM (GMT -7)   
Tj1, The good news is that the same meds are used to treat crohn's colitis as used to treat UC, of course it's natural for anyone to want to know for sure which one they have, but aw long as they can help you find remission soon (and a nice long one) I don't blame you for concentrating on that more than anything else...just watch for fistulas, if you end up with one (and of course I'm crossing fingers and toes that you never experiance that) then that will be a huge indicator of CD as well.


goldy, sorry for what you've been through, it's frustrating and heart-breaking to here stories like yours time and time again...that's why surgeons are suppose to make their pateints aware (before any surgeries) that there is the risk that although they are convinced you have UC the DX could be wrong and that you may actually have CD, not that stating that risk to the patient makes much of a difference, many CDers that have crohn's colitis still end up getting their colons taken out and wear the bag since the j-pouch is not a good option for CDers as it is for UCers due to the fact that CD can affect any part of the GI tract and typically when diseased area(s) are removed, at some point CD will usually make an appearance close by the surgery site (or anywhere it feels like for that matter), it is a nasty disease and definitely in that respect crohn's is a whole different beast.


:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Tj1
Regular Member


Date Joined Jul 2008
Total Posts : 71
   Posted 8/23/2009 12:57 AM (GMT -7)   
Pb4 Thank you for your reply, when they told me it was Crohn's I was in shock I asked if they were sure. I thought right then it was over for me, but one of the Dr's told me it is treated the same way as UC. That was when I started Remicade. Didn't have much luck with it though.

Goldy thank you too. You are right Crohn's is a whole different animal all together
 DX'd with UC 2000.
 DX'd with CD 8-9-08
 
 allergic to Asacol
 Colazal made Crohn's worse
 Prednisone 20mg X2 daily   (off Pred now) 
 Imuran 50mg X 2 daily
 Hyzaar 50-12.5
 Toprol XL --  Hypertension
 Insulin   --   Diabetes 
 vitamin
 
 First Remicade infusion 8-9-08
 Had allergic reaction on 5th infusion took benadryl got to finish
 Went for 6th took benadryl before infusion had reaction stopped
 Remicade.
 
 


littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 8/23/2009 2:58 AM (GMT -7)   
I have Crohns my boyfriend has UC. Lucky for us we have three toilets
Diagnosed 2005.  41 year old female living in UK
 
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/23/2009 9:31 PM (GMT -7)   
I have seen a report of a patient who went from UC to Crohn's as a result of treatment. Their analysis was that the two are extreme ends of the two immune response types - Th1 and Th2 and the balance can shift as a result of treatment. That may be why it is hard to get a diagnosis sometimes.
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